Duchenne Muscular Dystrophy Therapeutic & Behavioural Consulting

02/09/2025

In case you missed it… you’re invited! ❤️

We’re hosting a community catch-up and lunch to mark World Duchenne Awareness Day, and we’d love to see you there, and if youre able to, wearing RED to celebrate ❤️ 🎈

🗓 Saturday, 6th September
🕛 12:00 – 2:00 PM
📍 Butler Reserve, Butler Drive, Hendon, SA

Let us know if you’re coming so we can plan food, see the flyer for more information 🍽️
See you there!

05/08/2025

World Duchenne Awareness Day – Help Us Plan! 🎈🍳🌭
We’re putting together a special celebration for World Duchenne Awareness Day – and we’d love your input before we lock things in!
💬 We’re thinking either Saturday 6th or Sunday 7th September (Father’s Day weekend!)
🍳 Bacon & egg breakfast and catch up at 10am
or
🌭 Sausage sizzle lunch and catch up at 12pm
🎁 Plus a little something special for all the amazing dads in our community
📍 At Butler Reserve, Butler Drive, Hendon, SA, 5014

🎈To help us choose the best day and plan food, please fill out this quick interest survey:

https://www.surveymonkey.com/r/QNBGG2Q

We’d love to see you there!

Take this survey powered by surveymonkey.com. Create your own surveys for free.

01/08/2025

📧Our First eNewsletter is Here!📧

We’re excited to share the very first edition of our bi-monthly newsletter 🎉

This will be a regular way for us to share more about what we do, who we work with, and useful info for the neuromuscular community.

Whether you’re part of our groups, work with us, or just want to stay in the loop; we’d love you to have a read.

Check it out here 👉 https://www.dmdconsulting.com.au/our-enewsletter/dmd-therapeutic-amp-behavioural-consulting-enewsletter-vol-1

You can also become an email subscriber and recieve a notification and direct link to the eNewsletter everytime we publish the newest edition, so don't forget to sign up after you read ☺️

August 2025 Edition. This is the first issue of our new bi-monthly eNewsletter, and we are so excited to be sharing this with our community. In this issue… For this bi-monthly update , we wanted to share that we’re taking steps towards becoming a registered NDIS provider, particularly aft

23/07/2025

Working with people on the NDIS, or navigating it yourself?

We're hosting a free info session offers a clear, practical overview of the NDIS from a NDIA epresentative.

Whether you're a person living with neuromuscular disability, a carer, or a professional like a physiotherapist, OT or support coordinator, this session will help build your confidence in understanding and using the NDIS well.

✅ Get up to speed on how the NDIS works
✅ Understand where it fits alongside health, education and other services
✅ Learn how to better support people through their NDIS journey

📅Wednesday, 6 August at 6pm AEST | 💻 Online via Microsoft Teams

Note: Session won’t be recorded and case-specific questions can't be answered on the night.

🔗 Save your spot: mda.org.au/ndisunlockedgettingthemostoutofthescheme

16/07/2025

Figuring out adulthood with an NMC? You’re not alone.

Join our online InfoShare to get real-life insights on navigating life your way – from study and work to healthcare, support and independence. 🧠💬

🔹 Hear from OT and MDNSW camp fave Izzi, and PhD student/powerchair footballer Chris
🔹 Paralympian Jamieson shares her independence journey
🔹 Expert tips from Trapeze’s Transition Care Coordinator, Deb

📩 Register at info@mdnsw.org.au or message us to learn more!

16/07/2025

10/07/2025

Opens 9.30 am tomorrow… sneak peek of our stall

09/07/2025

As the colder months set in, managing respiratory health becomes even more important for individuals living with DMD.
Join us for an educational session with two of Australia’s leading senior respiratory physiotherapists, Liz Lambrinos and Sharon Kwiatkowski, as they guide you through the key considerations for respiratory physio.
Whether you’re living with DMD, caring for someone who is, or simply want to learn more – this session will help you feel informed and empowered.
Join us on Monday, July 14 at 7 PM AEST

Register here: https://saveoursons.org.au/pages/webinar-14-july-2025

08/07/2025

🛠️ CraftLab Update 🛠️

CraftLab, our 10-week Therapeutic Group-based Program, has wrapped up. Each of the three participants brought something completely unique to the table through a craft-based project, including:

🛠️ Exploring the ins and outs of old electronics by slowly deconstructing an old printer and typewriter
🚗 Modifying Hot Wheels to create custom builds inspired by favourite games and movies like Gaslands or Mad Max
📍 Using spare printer parts to map out Pokémon regions in incredible detail

We swapped our original diorama plan and, to bring everyone together on a shared goal, decided to make one large collaborative art piece combining elements from everyone’s individual projects. Check out the final product in the image below :)

Alongside all the creativity, participants were constantly provided capacity building for self-direction, communication, and social skills like planning, problem-solving & decision making, following safety rules, sharing and explaining ideas, collaborating with each other, developing theory of mind, building skills of reciprocal communication and initiating conversations, and strengthening their rapport and relationships together 🧠

After a successful program, we’ll be taking a short break now over the school holidays, but stay tuned - we’ll have updates on the next round of our CraftLab Therapeutic Group-based Program early August📅🔜

08/07/2025

🗝️ MLAK Keys - Did You Know?🗝️

If you hold a Companion Card in SA or Victoria, you're entitled to receive one MLAK key for FREE - and it can make a real difference when you're out and about.

The MLAK (Master Locksmiths Access Key) system lets people with disability access locked public facilities 24/7, including Changing Places toilets, lifts, Liberty Swings, and more.

Changing Places are especially useful as, unlike standard accessible toilets, Changing Places facilities are designed for those with more complex/increased needs and often include:
✔️ Extra space for mobility equipment
✔️ Height-adjustable adult-sized change tables
✔️ Hoists
✔️ Showers
✔️ Room for a support person/people

For our South Australian families, here are just a few MLAK-accessible Changing Places facilities around Adelaide:
📍 Ngutungka West Lakes – Accessible toilet (no shower)
📍 Henley Square – Full Changing Places facility with shower
📍 Parks Library – Accessible toilet (no shower)
📍 Adelaide Botanic Garden – Accessible toilet (no shower)

A full list can be found on the Changing Places Website.

While MLAK keys can sometimes be borrowed at these places, having your own means you’re never stuck if you need quick access.

🔗 Get your free key if you're a Companion Card holder:

SA Residents: https://forms.office.com/Pages/ResponsePage.aspx?id=DhSu2KJa5UaHnDlSMgUasGnnmIDWu_BNhaSRvJ7OR6JUOUoxRzVCT0IzMFJJOURRU0I4OVlWNEMxMi4u

VIC Residents: https://forms.office.com/Pages/ResponsePage.aspx?id=DhSu2KJa5UaHnDlSMgUasGnnmIDWu_BNhaSRvJ7OR6JUMlEyOE81OU41QlNQNDhZODJaOTBGTENDTi4u

💡 Don't have a Companion Card? You can still purchase a key for $64 (as of July 1st). More info here: https://masterlocksmiths.com.au/mlak/

Send a message to learn more

04/07/2025

📸✨Service Highlight – Modelling Pathways 📸✨

We’ve been working on something exciting with one of our adult participants outside of the neuromuscular community and wanted to share a little peek behind the scenes!

After attending a community event to learn about microbusinesses, this participant expressed an interest in getting involved modelling world. Our Developmental Educator, Thomas, created a program to support this goal, which Therapy Assistant, Rhiannon, has been implementing with the participant. Together, they’ve been diving into what it takes to break into the industry - from learning about portfolios to researching agencies, and even hearing directly from working models, things have been off to a great start!

Thanks to the great guys over at FOUR3 Productions, we recently organised an amazing photoshoot session with the participant to start building their first portfolio of headshots and portraits 📷🙌. The day was fantastic, and it’s been great seeing things come to life.

Next up they will keep exploring different agencies and pathways the participant wants to follow, and we can’t wait to see where it goes 💫