ME/ CFS South Australia Inc

07/10/2025

AGM & Speaker

Molly Schultz, OT, from Lofty Health and Wellness.
The Annual General Meeting of ME/CFS South Australia Inc. members is on Saturday 18 October 2025 at 2pm ACDT.

We will hold a short meeting to share our annual report and hold elections for the management committee first, then our seminar, followed by chat. Welcome to join for the entire time, or jump in as you feel.

This seminar will discuss key considerations for the ME population, and pro's and con's of various mobility aids. Examples of various types of aids will be presented with a focus on powered mobility aids features and considerations.
To learn more about Molly and her presentation, visit: https://mecfssa.org.au/event/seminar-mobility-aids-for-me-with-molly-schulz-ot

It is being held online via Zoom. You can access this over the internet or by calling the phone number on the invitation. Seminars are available in Members Resources after the event.

Reminder: You must be a financial member to attend the upcoming AGM and seminar. You can renew online through our website or please call 0493 468 288.
Membership: https://mecfssa.org.au/get-involved/membership

03/10/2025

Jack has already completed 6 marathons to raise awareness of ME/CFS!

His next marathon is in Perth on 12th October.

Please, if you can, support him by donating at https://www.justgiving.com/charity/mecfsaust

Currently patients of ME/CFS receive less than $1 per person for research into their condition.



https://mecfs.org.au/

02/10/2025

Date: Thursday 28 August 2025Time: 12:30 pm – 2:30 pm AESTLocation: Virtual meeting

22/08/2025

𝐏𝐋𝐄𝐀𝐒𝐄 𝐍𝐎𝐓𝐄 𝐓𝐇𝐀𝐓 𝐓𝐎𝐌𝐎𝐑𝐑𝐎𝐖'𝐒 𝐒𝐄𝐌𝐈𝐍𝐀𝐑 𝐁𝐄𝐆𝐈𝐍𝐒 𝐀𝐓 𝟐.𝟑𝟎𝐏𝐌!!

We apologise for any misunderstanding around the start time.

To attend you must be a Member (a whole $5!) so if you aren't already, join now at https://43660467.hs-sites.com/membership-sign-up

15/08/2025

EDIT: Please note that the start time is now 2.30pm!

A reminder about our upcoming Seminar:

To attend you must be a Member (a whole $5!) so if you aren't already, join now at https://43660467.hs-sites.com/membership-sign-up

is holding an online Seminar on 23rd August at 2.30pm, by Savita Sandhu.

Savita is a patient-turned-practitioner who is passionate about bringing ease and clarity to the nutrition journey of those living with invisible illnesses.

She has a particular interest in Ehlers Danlos Syndromes and co-existing conditions like POTS, MCAS, and abdominal vascular compressions due to lived experience of these.

For more information - https://mecfssa.org.au/event/seminar-mcas-and-me-with-savita-sandhu

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership

08/08/2025

Severe ME Awareness Day is held every year on August 8th.

Twenty-five percent of people with ME/CFS have severe or very severe ME, meaning they are almost completely housebound, permanently housebound or bedbound.

Today we acknowledge those in our ME/CFS community who are rarely or never seen by others, as patients or as dedicated carers.

07/08/2025

NEW national website! https://mecfs.org.au/
ME/CFS Australia is the peak body for patient-led ME/CFS charities in Australia.
As a member, ME/CFS South Australia has contributed to the production of this website, together with the other member organisations. Take a look and let us know what you think!

ME/CFS Australia is excited to announce the launch of our new website!

Designed and written by people with ME/CFS, checked and edited by medical experts.

Take a look… let us know what you think. 😊

www.mecfs.org.au

31/07/2025

is holding an online Seminar on 23rd August at 2.30pm, by Savita Sandhu.

Savita is a patient-turned-practitioner who is passionate about bringing ease and clarity to the nutrition journey of those living with invisible illnesses.

She has a particular interest in Ehlers Danlos Syndromes and co-existing conditions like POTS, MCAS, and abdominal vascular compressions due to lived experience of these.

For more information - https://mecfssa.org.au/event/seminar-mcas-and-me-with-savita-sandhu

This seminar is for members of ME/CFS SA only. Annual membership is only $5, and you can join here - https://mecfssa.org.au/get-involved/membership

17/07/2025

New peer-reviewed article released yesterday! The Flinders University Frail, Homebound and Bed-ridden People project has just released their new paper on telehealth for homebound people. Read a news release about it here:

https://www.eurekalert.org/news-releases/1091388?fbclid=IwY2xjawLldgZleHRuA2FlbQIxMQABHlKkfZBWeoqJ4rHTkXpOPxc7p4OIPsYJ9UtsM8BE5HS2L3lrVEdj4UOnbSj-_aem_ZUQPptPIVh2MDPLpIulrEw


Our own Advocacy Lead, Penelope McMillan, is the consumer co-author on this academic paper and will be on the radio with Dr Maria Alejandra Piñero de Plaza, live-to-air on ABC North and West SA on Friday 18th July at 7.10am SA time, available afterward on their website as a recording.

https://www.abc.net.au/northandwest

Also, ABC Radio Riverland will play an interview on Friday 18th July on or after 7.50am SA time, available afterward on their website as a recording.

https://www.abc.net.au/riverland


Read the academic paper here:

https://onlinelibrary.wiley.com/doi/10.1155/hsc/7224151?fbclid=IwY2xjawLlc2FleHRuA2FlbQIxMQABHnbDwohf8pIQ7gMfMETmpnwtKISj6Oyqx-IONfXnl0e8EfGs684Kf7sYpwi3_aem_359tR18U_QNYgBCJmwmQ0Q

This evidence will help support advocacy toward access to telehealth for people in Australia who are homebound.

09/07/2025

For those who listen to podcasts, this recent Australian story may be picked up by print media if the podcast attracts enough listeners. It features Peter McCluskey, full-time carer for a severe ME/CFS patient. Available on Red Circle website
https://redcircle.com/shows/tcrp or where you get your podcasts.

Thank you to host Peter Hoysted (known as Jack the Insider) and to Peter McCluskey.

26/06/2025

ME/CFS SA members can join the zoom social catchup every Thursday afternoon, starting at 2.30pm and finishing at 4pm.
Open to members of ME/CFS SA. ( Join here https://mecfssa.org.au/get-involved/membership )

Head to the Member Resource Login and then to the “Upcoming events: links”

Make a cuppa, get comfy and join us for a chat. Everyone is welcome to stay for as little or as long as they need, health depending.

Hope to see you soon