Fibromyalgia ME CFS Australia Bridges & Pathways

24/07/2025

As promised to a commenter last month, we have published an article clarifying the relationship between blood pressure and PoTS (a common ME/CFS comorbidity): https://bit.ly/potsandbp

05/07/2025

This literature review summarizes recent studies on T cell exhaustion and its role in post-acute infection syndromes (PAIS), including Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID. It synthesizes the current evidence on...

04/07/2025

It is 1st Friday in July - if you are wanting an invite please message me

27/06/2025

The National Health and Medical Research Council (NHMRC) is developing clinical practice guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). They will be developed in consultation with patients, health professionals, and medical researchers. The recommendations will focus on the interactions between patients and general practitioners within primary care and outline appropriate referral pathways.

NHMRC has established two committees to advise on this work:
- a Steering Committee to advise on the initial set up of this project
- a Guideline Development Committee to oversee the guideline development process and draft recommendations.

For more information on the development of the guidelines and the committee appointment, please visit: https://www.nhmrc.gov.au/health-advice/me-cfs/guideline-development

24/06/2025

WORKSHOP CHANGE OF VENUE

Due to unavoidable circumstances the 'Living with chronic pain and debilitating fatigue' workshop on Thursday 26 June has been moved to Ainslie Arts Centre, 30 Elouera Street, Braddon. Accessibility information has been emailed to those who had already registered and is available in Eventbrite when you register.

Places are still available- please register through;
https://www.eventbrite.com.au/e/1370500135799?aff=oddtdtcreator

Places are also still available for the online workshop on Wednesday 25 June;
https://www.eventbrite.com.au/e/1370497919169?aff=oddtdtcreator

Light refreshments will be provided

21/06/2025

Prof. Brett Lidbury at the Australian National University, and colleagues at various other institutions in Australia and Colombia, have been engaged in the search for genetic markers of ME/CFS.

The team has recently published the findings of an ME Research UK-funded study in which they analysed the whole-exome sequences (i.e. all the regions of genes that provide instructions for making proteins) of 77 people with ME/CFS.

Variants in a number of genes were significantly associated with ME/CFS, compared with a matched population. These genes are involved in several processes in the brain – including the generation of new neurons in the cerebral cortex – and in the development of neuroblastoma, a type of cancer affecting the nerve tissue. Interestingly, variants in these genes have also been linked with neurological conditions.

These findings were backed up by analyses in an independent cohort of patients, and the researchers emphasise the need for further studies to look at their implications on the development of ME/CFS.

Read more: bit.ly/4l76mLz

13/06/2025

Australian research study

Prof. Janet Taylor and Dr Chris Latella at Edith Cowan University have been investigating the source of muscle weakness in people with ME/CFS, as part of an ME Research-funded study. They presented some of their initial findings at the Australasian Neuroscience Society annual meeting last December. The researchers measured the activity of nerves supplying the foot muscles during ankle contractions, and found that this nerve activity was 25% lower in people with ME/CFS than in healthy controls. These results suggest that impaired motoneuron behaviour could contribute to muscle weakness in ME/CFS, and the team now plans to explore the mechanisms causing this. meres.uk/taylor064

13/06/2025