Ehlers-Danlos Australia

Ehlers-Danlos Australia An Australian awareness page for Ehlers-Danlos Syndrome and its associated conditions. A hub for sharing articles, facts and related support groups.

https://pubmed.ncbi.nlm.nih.gov/41924132/
04/04/2026

https://pubmed.ncbi.nlm.nih.gov/41924132/

Evidence suggests an association between EDS/HSD, VCS, POTS, and MCAS but remains limited. Underdiagnosis and delayed treatment are common and underscore the need for multi-disciplinary care. Invasive imaging and interventions appear generally safe in EDS/HSD, excluding vascular EDS, yet robust safe...

02/04/2026
28/03/2026
23/03/2026
21/03/2026

Complicated is a documentary seven years in the making, with a deeply important message. Directed by Andrew Abrahams, the film follows several young people living with Ehlers-Danlos Syndrome (EDS), a connective tissue disorder that, as one of the film’s subjects puts it, feels like being “built with Elmer’s glue instead of a hot glue gun.” Because collagen is one of tue body’s primary structural proteins, EDS can affect virtually every system in the body — joints, skin, blood vessels, and more.

But this film is about so much more than a diagnosis. It’s about the families who build walls of calm around themselves because collapse isn’t an option. It’s about the friendships forged between people whose lives are “too weird and complicated” for most of the world to understand. And it’s about a medical system that too often responds to complexity with suspicion — many of the families in the film faced allegations of medical child abuse at some point in their child’s journey.

Complicated is unflinching, necessary, and deeply human. If you or someone you love navigates chronic illness, complex disease, or a medical system that has ever made you feel blamed for being sick — this one’s for you.

Complicated is now available on Apple TV.

EDS can cause swallowing issues for a variety of reasons. What issues do you experience?
18/03/2026

EDS can cause swallowing issues for a variety of reasons. What issues do you experience?

Today is Swallowing Awareness Day (18 March 2026) 💙

Dysphagia is the medical term for swallowing difficulties. Difficulty swallowing, or needing to drink a lot of liquid to help food go down, can be a symptom of eosinophilic oesophagitis (EoE).

If you or someone you care about is experiencing swallowing difficulties, it is important to speak with your doctor. There can be many possible causes, and support is available.

📘 Learn more about EoE and its symptoms by downloading the “Could It Be EoE? The Signs and Symptoms” guide: https://bit.ly/CoulditbeEoE-guide

🔗 Find out more about dysphagia and Swallowing Awareness Day via Speech Pathology Australia: https://www.speechpathologyaustralia.org.au/Public/Public/About-Us/News-media-campaigns/Campaigns/Swallowing-Awareness-Day.aspx

17/03/2026
16/03/2026

A bit of fun.

Webinar on Aortic Emergencies March 17th @ 530pm AEDTA webinar on aortic emergencies that is geared toward people living...
15/03/2026

Webinar on Aortic Emergencies March 17th @ 530pm AEDT

A webinar on aortic emergencies that is geared toward people living in Australia and New Zealand. Dr. Michelle Lim, a member of the Foundation’s Genetic Aortic Network Education Working Group, leads this effort for Aussies and Kiwis. Aimed at those with CTDs like Marfans and EDS.

For more information follow this link:

https://marfan.org/calendar/aortic-emergencies-webinar-for-aussies-and-kiwis/?

12/03/2026

Address

Brisbane City, QLD

Website

https://linktr.ee/edsaus

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