Ehlers-Danlos Australia

19/02/2026

19/02/2026

Interesting study despite being a very small group. Using optics to look at skin biopsy and the collagen to discern EDS and potentially types. Hope they get enough support to bring this to some bigger research.

Canadian group presents polarization method to diagnose human tissue condition subtypes.

16/02/2026

🦓 𝐙𝐞𝐛𝐫𝐚 𝐐𝐮𝐞𝐬𝐭𝐢𝐨𝐧𝐬 🦓

Hydration is important for all and can make a huge difference to our symptoms. What have you done to increase your hydration?

𝐄𝐡𝐥𝐞𝐫𝐬-𝐃𝐚𝐧𝐥𝐨𝐬 𝐀𝐮𝐬𝐭𝐫𝐚𝐥𝐢𝐚

www.ehlersdanlosaus.com
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12/02/2026

10/02/2026

09/02/2026

🦓 𝐙𝐞𝐛𝐫𝐚 𝐐𝐮𝐞𝐬𝐭𝐢𝐨𝐧𝐬 🦓

If you could go back in time and give yourself one piece of information to make things better/easier for you now - what would it be?

What should Newbies to EDS/HSD know?

𝐄𝐡𝐥𝐞𝐫𝐬-𝐃𝐚𝐧𝐥𝐨𝐬 𝐀𝐮𝐬𝐭𝐫𝐚𝐥𝐢𝐚

www.ehlersdanlosaus.com
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04/02/2026

02/02/2026

🦓 𝐙𝐞𝐛𝐫𝐚 𝐐𝐮𝐞𝐬𝐭𝐢𝐨𝐧𝐬 🦓
What is your favourite (or least) TV episode that contained EDS/HSD?
Which show and season/episode and how realistic was it?

𝐄𝐡𝐥𝐞𝐫𝐬-𝐃𝐚𝐧𝐥𝐨𝐬 𝐀𝐮𝐬𝐭𝐫𝐚𝐥𝐢𝐚

www.ehlersdanlosaus.com
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01/02/2026

We’re so excited to share the launch of our newest venture, The Hypermobility Project, a new education initiative led by our award winning principal physiotherapist and hypermobility advocate Sharon Hennessey.

We've created The Hypermobility Project to improve how healthcare professionals understand, recognise, and treat hypermobility, Ehlers-Danlos Syndromes (EDS), and Hypermobility Spectrum Disorders (HSD).

How and why does this matter for both patients and healthcare professionals?

Because better educated clinicians mean:

⏳ Earlier recognition and diagnosis
✅ More confident, evidence-informed treatment
🫂 A more compassionate and informed care journey
🔍 Fewer years spent searching for answers
🩺 Clarity for clinicians to treat hypermobility with confidence and the right resources

Far too many people with hypermobility currently experience long and tiring delays before receiving appropriate care. By supporting education for healthcare professionals, we can help shift the standard of care and improve outcomes for the hypermobility community as a whole.

Through The Hypermobility Project, Sharon will be sharing practical and evidence-informed education, resources, and research-informed insights designed to support medical and allied health professionals who want to improve hypermobility care.

If you’re a healthcare professional, or if you’re a client who values informed, evidence-based care - we invite you to follow The Hypermobility Project on social media and stay connected as new resources and education are released.

Follow The Hypermobility Project to help build a better future for hypermobility care.

31/01/2026

ausEE Inc. is promoting Australia’s Feeding Tube Awareness Week. With your support we can raise awareness for those living with feeding tubes.