Not Just Bendy

29/05/2026

We're thrilled to announce that Sharon will be speaking on an expert panel Q&A next Tuesday, following a single night screening of the documentary “Complicated”, presented by Pelvico Physiotherapy!

Complicated: When Help Turns to Harm - is a powerful new documentary exploring the realities of living with Ehlers-Danlos Syndrome (EDS) and the challenges many people face navigating healthcare.

Following the screening, you'll hear from an incredible multidisciplinary panel of experts who will discuss EDS, current research, clinical care, patient experiences, and answer your questions live.

Some of the experts you'll see in this panel are:

🦓 Dr. Ken Loon - Colorectal Surgeon
🦓 Dr. Rebecca Ryan - Gastroenterologist & Hepatologist
🦓 Phoebe Armfield - Pelvic Health Physiotherapist
🦓 Sharon Hennessey - EDS & Hypermobility Physiotherapist
🦓 Dr. Marek Ciarkowski - Chronic Disease GP
🦓 Joshua Morgan APD - Specialist Dietician
🦓 Dr. Kristy Seymour - ASD Researcher, Living with HSD

The screening and Q&A Panel event is open to both healthcare professionals and the general public.

If you're local to the Gold Coast or surrounding areas, we hope you'll clear a space in your calendar to see this amazing documentary and listen to some of QLD’s finest clinicians working with EDS & HSD. ✨

Tickets to see Complicated are FREE! To book your place visit the link in the comments below. 👇

20/05/2026

20/05/2026

While our principal physiotherapist Sharon was in the USA attending the Ehlers Danlos Society's annual CORE Network of Excellence meeting, she was treated to a wonderful surprise from Dr. Jason Lam, a temporary Hollywood Walk of Fame Star experience with Not Just Bendy's name!

This was such a thoughtful and generous gesture, and one that truly means a lot to our whole team at NJB ❤️

Moments like these remind us how amazing it is to have such wonderful connections in this community ✨

15/05/2026

Congratulations to Anna, Gloria and Tina! 🥳🦓

We're excited to share that Anna and Gloria have been promoted to Senior Physiotherapist and Tina has been promoted to Associate Physiotherapist! 🎉

✨ Anna 🦓

Anna has seen over 77 new clients with EDS/HSD since joining Not Just Bendy! She’s also conducted over 500 consults and instructed over 27 classes during her time here.

✨ Gloria 🦓

Gloria has seen over 114 new clients with EDS/HSD since joining Not Just Bendy. She's also conducted over 2140 consults and attended over 9 additional training initiatives during her time here!

✨ Tina 🦓

Tina has seen over 105 new clients with EDS/HSD since joining Not Just Bendy. She's conducted over 300 classes and over 800 consults during her time here!

There will be a small price increase for sessions with Anna, Gloria and Tina, reflecting their new roles and expertise. For more details on updated costs, please visit our website here:
https://www.notjustbendy.com/prices/

13/05/2026

✨🦓 May is EDS & HSD Awareness Month! 🦓✨

Arthrochalasia Ehlers Danlos Syndrome (aEDS) is an ultra-rare subtype of EDS, affecting less than 1 in every 1 million people globally, with less than 50 cases reported in medical literature.

However there are more people diagnosed with aEDS than those listed in medical literature.

The most commonly seen traits of aEDS are severe generalised joint hypermobility, congenital bilateral hip dislocation, joint dislocation of major joints - with most of these symptoms occurring early in infancy or early childhood.

aEDS is often diagnosed at birth or infancy due to the severity of symptoms appearing from the time of birth, but there are those who slip through the cracks of the medical system and end up getting diagnosed later on in life.

Many people living with aEDS describe living a life of constant joint surgeries, non-stop joint management and a challenging childhood filled with injuries that continue on into adulthood.

🦓 🦓 🦓

We'll be dedicating a post to each subtype of EDS this month, going into more detail on the unique differences between them all. Keep a look out for a post on Brittle Cornea Syndrome next!

We would appreciate it so much if you shared this with your friends and loved ones to spread awareness ❤️

For more information on how you can help raise awareness be sure to check out The Ehlers-Danlos Society and Connective Tissue Disorders Network Australia!

13/05/2026

So amazing to see an MP getting involved in EDS awareness! Amazing work Connective Tissue Disorders Network Australia & Paul Mercurio!

08/05/2026

Recently we've said a bitter sweet goodbye to two of our amazing team members, Sue and Michelle 💔😢

Sue has been with NJB since the very beginning as our shining rockstar of a senior receptionist, helping to keep reception running smoothly while being a memorable, friendly face for all our new and long-term clients.

She's been here through it all, training new staff over the years, ordering and tracking our inventory and being a true support to all our physiotherapists.

NJB won't be the same without Sue and we're wishing her all the best in her new life of retirement! We'll miss you so much! 😭❤️

Michelle came to us 2 years ago when NJB was beginning to get a little bit too popular and we needed to grow. As our business manager she helped shape and grow NJB into the business it is today. Shaping our culture, our procedures and growing our staff to nearly double its amount.

We'll miss her very much and we'll never forget everything she's done for NJB. Good luck Michelle on your new future and everything it brings you! ❤️

06/05/2026

From Brisbane to Los Angeles, and straight into the rooms where global change and connections are happening.

Our founder and principal physiotherapist, Sharon Hennessey, travelled to the United States last week to attend the The Ehlers-Danlos Society's CORE Networks of Excellence meeting in Los Angeles.

There she spent a powerful few days alongside close to 40 international leaders, all working hand in hand to tackle some of the biggest challenges in care for EDS and HSD.

Despite a small Australian/New Zealand contingent (just five in the room), everyone's voices were impossible to miss, proving that impact isn’t about numbers, it’s about advocacy, clarity, and collaboration.

This was Sharon's second year in a row attending the Ehlers Danlos Society's CORE Network meeting, further cementing the relationships fostered the previous year, and left her feeling satisfied with the direction the Ehlers Danlos Society is going and the large plans they have in place.

These meetings aren’t just conversations. They’re where barriers are named, ideas are challenged, and real solutions begin to take shape.

While much of the detail stays private, what Sharon and all members of the Ehlers Danlos Society's CORE Networks of Excellence bring back are just as important:

🦓 Stronger global connections.
🦓 Deeper insight into the direction of symptomatic hypermobility, EDS and HSD research and care.
🦓 New collaborations and opportunities.
🦓 And a renewed drive to create meaningful change for people with symptomatic hypermobility, EDS and HSD.

This is the work happening behind the scenes, the kind that shapes the future of care.

03/05/2026

Sharon Hennessey ( Not Just Bendy ) is in Los Angeles with many of the other EDS The Ehlers-Danlos Society core network leaders and had dinner with Lara Bloom.

It is has been amazing to hear what other networks are doing around the world and really appreciate the EDS society asking our opinion and bring us together.

02/05/2026

✨🦓 May is EDS & HSD Awareness Month! 🦓✨

It's day 2 of EDS & HSD Awareness Month!

Let's introduce what the Hypermobile Spectrum Disorders (HSD) are for those who aren't already aware.

HSD is a small group of connective tissue disorders. Many people have heard of HSD, but quite a lot still aren't aware that HSD isn't a single diagnosis, but comprises of 4 different types:

✨ Generalised HSD (G-HSD)
🦓 Peripheral HSD (P-HSD)
✨ Localised HSD (L-HSD)
🦓 Historical HSD (H-HSD)

We'll be dedicating a post to each type of HSD this month and going into more details on the experiences those with HSD can have.

We would appreciate it so much if you shared this with your friends and loved ones to spread awareness. ❤️

For more information on how you can help raise awareness be sure to check out The Ehlers-Danlos Society and Connective Tissue Disorders Network Australia!