Love Lottie xo

30/07/2025

Head of Lotties incredible team of hero’s ❤️

The winner of the Champion Advocate Award is Dr Claire Wainwright.

Dr Wainwright is a paediatric respiratory physician and is currently employed by the Queensland Children's Hospital and the University of Queensland as a professor of Paediatrics and Child Health. In 2016 Dr Wainwright was elected Fellow of the Australian Academy of Health and Medical Sciences and in 2018 was awarded a Member of the Order of Australia. Claire always acts in the best interest of our community and works alongside our CEO, supporting and advocating for improved clinical care – especially for our rural, regional and remote members, and access to life-changing medicines. Thank you for standing up, speaking out, and helping to shape a better future.

11/07/2025

What a very big day for our little girl today, but like the boss she is, she nailed it.
Who would have thought turning 3 was going to change so much and have her learn so many new things… again. 

Lottie is now beginning her PEP therapy (Positive Expiratory Pressure)
This type of therapy can help “splint” the airways open and move mucus in her lungs.
This technique is used by breathing out through a small hole, PEP creates back pressure in her airways.
This in turn will help Lottie’s lungs stay open for better flow and volume of air and easier removal of mucus.

So we have a new piece of equipment that will enable to start learning this technique to help strengthen her lungs. She did so well practising today with Dr Kate, she was very intrigued and proud of herself.
Like everything it takes time and practise and for Lot will all be about repetition, starting at 5-8 blows in a row and slowly increasing this to 10, Then repeating this process 3-5 times.

We were also introduced to a technique called “Huffing” or forced expiration. Basically blowing out through a small pipe forcing an object to move.

Lottie also met 2 new members of our CF team, the science behind the lungs. Lottie’s lungs will now be tested every visit against 100% oxygen intake to see how her lungs cope and work.
*a very new bit of science and CF that I am still wrapping my head around*
We tried a few times but the length of time the test goes for and Lotts attention son just didn’t quite pair up. But she wasn’t scared nor bothered by it which is the best part. So next time I’m sure we’ll see the results.

Otherwise everything else went exceptionally well and seeing all of our amazing team at QCH was lovely, and them seeing how much she’s grown is always heart warming.
We touched base with Lottie’s, social worker, occupational therapist, dietician, physiotherapist, clinic nurses, scientists and our Dr Claire all of which sent Lott away with about 1000 stickers and a healthy report card.

We’re back in 3 months for our full annual check up, big day of bloods, X-rays and being examined … nothing she can’t handle.

Queensland Children's Hospital Cystic Fibrosis Queensland

02/07/2025

Three years ago, we held our newborn daughter in our arms, completely in awe of her. Just three weeks into her life, we received the news that she had Cystic Fibrosis—a diagnosis that changed the course of our family’s story forever.

Today marks the anniversary of that moment, a day that broke our hearts and built our strength all at once.

In these three years, we’ve learned to live one breath at a time. We’ve faced fear, fatigue, and so many unknowns—but we’ve also witnessed resilience, joy, and the fiercest little fighter we’ve ever known.
Lottie has taught us more about courage and hope than we ever thought possible.

We are endlessly proud of everything she has faced and continues to face with such bravery and spirit. She is our little fighter—resilient, bright, and full of life.
With the unwavering support of our family, friends, and the incredible hospital staff who walk this road with us, we will keep showing up every day to fight for her and with her.
This journey is not easy, but it is filled with love, hope, and a determination that grows stronger with every breath she takes.

Queensland Children's Hospital Cystic Fibrosis Queensland

15/05/2025

A special little apppintment for Lottie today at our home away from home.. little check up at the dermatologist, always making new friends with the doctors and specialists.

06/05/2025

Lottie just loves her new hat! Cystic Fibrosis Queensland Queensland Children's Hospital

03/05/2025

I’m so excited to continue to support Cystic Fibrosis QLD and this year CF QLD turns 65.
So fittingly this year marks their Ruby Jubilee with beautiful ruby merchandise for sale to raise funds for people born with this genetic disease.

This year we were humbled to be asked if Lottie could help bring CF QLD to life and be the face of their tax appeal.

To help support CF QLD and children like our darling Lottie please see attached, items for sale with the special edition of Jubilee merchandise where all funds raised goes to Cystic Fibrosis QLD. 🌹

03/03/2025

It’s been a month, with antibiotics for the first time in a long time, lack of sleep and blood tests, Lottie’s little body is exhausted.
Clinic this coming Friday hopefully we’ll get some idea as to what’s happening in this little body of hers.

Lottie still smiles most days and keeps everyone on their toes ❤️
Our brave girl!
Queensland Children's Hospital Cystic Fibrosis Queensland

03/03/2025

💔

07/02/2025

Naughty little cough we’re hoping to squish!

07/02/2025

Well we were hoping to avoid antibiotics but here we are… 1st lot for quite some time though so that’s a very big positive.
This nasty cough is still sticking around so better safe then sorry to help get on top of it before it becomes worse.
She puts a smile on my face every day though, such a little trooper while she sits with her neb every morning and evening without fail, can’t be prouder of her. Queensland Children's Hospital Cystic Fibrosis Queensland

02/02/2025

So proud of this kiddo xo Queensland Children's Hospital Cystic Fibrosis Queensland

27/01/2025

We’ve got a little cough but this little poppet is handling it so well!
Cystic Fibrosis Queensland Queensland Children's Hospital