Chiari and Syringomyelia Australia

07/08/2025

06/08/2025

🔍 Seeking Participants for Chronic Pain Research Survey

Researchers are inviting adults with chronic pain to take part in an online survey to explore their views about participating in an N-of-1 trial – a personalised study that helps test how well different chronic pain treatments work for each individual.

To take part, you must:
✅ Be aged 18 years or older
✅ Currently live in Australia
✅ Be experiencing persistent or chronic pain lasting 3 months or more

🕒 The survey will take approximately 20 minutes to complete.
🔒 Your answers are anonymous and can’t be linked back to you.
🚫 You will not be asked to try any treatments – this survey is just to gather your opinions.

🎁 After completing the survey, you’ll have the option to enter a prize draw to win one of four $50 Coles e-vouchers.

📢 Your feedback will help shape the future of personalised chronic pain studies.

🔗 For more info and to take the survey, visit: https://tinyurl.com/UQChronicPain

This study has been approved by The University of Queensland Human Research Ethics Committee (2025/HE001307) and is led by The University of Queensland in collaboration with Southern Cross University and the University of Ottawa

05/08/2025

31/07/2025

At David Jones, we’re proud to join the Hidden Disabilities Sunflower initiative—a globally recognised symbol of support for people living with non-visible disabilities. This meaningful step reflects our ongoing commitment to making our stores more inclusive, accessible, and supportive for every customer, team member and community.



Across all our stores, we aim to create a shopping experience where everyone feels seen, understood, and welcomed. By joining the Hidden Disabilities Sunflower initiative, we’re making it easier for individuals with hidden disabilities to navigate our spaces with confidence.

Our team members across David Jones stores are trained to help recognise and assist customers wearing the Hidden Disabilities Sunflower.

Read More Here: https://david-jones.visitlink.me/eNryOD

25/07/2025

24/07/2025

Prenatal Case of Chiari I Identified

PDF version: https://www.conquerchiari.org/library/index/click/847

24/07/2025

Today, we stood at Parliament House to launch our White Paper and call on the Australian Government to recognise chronic pain as a National Health Priority.

It’s time pain was counted, funded, and taken seriously.

A huge thank you to all of Chronic Pain Australia’s lived experience members who helped shape this White Paper — ensuring it’s grounded in the real priorities and vision of our community for a pain-healthy Australia.

View the White Paper and National Pain Report — link in bio.

23/07/2025

When you already knew your own genes showed you had more Neanderthal genes than 89% of the other customers one does feel the theory has legs lol.

Testing was done by 23&me years ago, who are currently going through major issues. So please look elsewhere if you want to have fun and check.

Testing the Neanderthal Theory of Chiari

PDF version; https://www.conquerchiari.org/library/index/click/846

23/07/2025

Study Tracked Natural History of Sringomyelia for 10 years+

PDF version; https://www.conquerchiari.org/library/index/click/845

22/07/2025

Learn more about symptoms, diagnosis, and management on The Ehlers-Danlos Society website: https://www.ehlers-danlos.com/This video dives into the relationsh...

14/07/2025

Chronic Pain Australia are running a survey to learn more about how chronic pain affects children and teenagers. By hearing directly from young people and their families we can better understand what matters to you most. This will help Chronic Pain Australia (CPA) shape our work - like the topics we...