28/04/2025
This message is not for sympathy, it’s for awareness for women and men suffering with a disease and infertility issues. You are not alone 🩷.
This is my journey!
For 13 years, my husband and I searched for answers. My health problems really started at the age of 14 with getting multiple cysts on my ovaries constantly and when I turned 21 I was diagnosed with stage 2 cervical Cancer which had been successfully removed at the time with surgery.
My husband and I continued to see countless doctors, had endless ultrasounds, blood tests and went through specialist after specialist — but no one could explain what was happening to my body or any diagnosis.
We endured the journey of IVF after not being able to naturally fall pregnant after 1 year. I had a total of 4 egg collections, which took a massive toll on my body every time, over 1,500 plus injections, and round after round of IVF, we had failed transfers over and over, waiting for the phone calls from the clinics with our results was the worst feeling.
We did fall pregnant multiple times, only to lose every single baby.
Five years ago, We finally got some clear answers I’d been desperate for: PCOS, stage 4 endometriosis, and stage 4 adenomyosis. By then, the damage was overwhelming. I had to have invasive surgeries and I had to put my body medically into menopause three times! Still, my husband and I held onto hope to have our own family.
In January this year, we sent our last egg off for a biopsy, only to learn I carry two genetic conditions. It crushed us — we would never be able to have our own family. After everything, hearing those words shattered our hearts.
This has caused me severe depression, stress and anxiety.
This caused me to self isolate from family and friends as i felt like I was on a very lonely journey and no one truly really understood.
However, we both had a tremendous amount of care, kindness and support from family and friends. In a situation like we were in you truly know who loves you, cares for you and has your back.
It’s also very important to think about the other person in the relationship and in the situation, women are physically, mentally and emotionally affected by this! However our partner is there watching and seeing the pain in our hearts, body and soul.
There needs to be more support and funding with women and men experiencing infertility issues, the financial strain can be overwhelming and can be impossible at times.
With my disease so advanced, I was recommended by a pain specialist to try Ketamine infusions, which was quite horrific and once again took a toll on my body.
My disease is so severe that I had to choose: keep fighting and suffering, or to let go. I chose my life.
I have to have a full hysterectomy next month — womb, ovaries, everything! With that comes along with then starting HRT.
We lost the family we dreamed of, but I fought for the life I still have. We had to make an impossible decision: choose my health over our dreams! We had always imagined having our own family.
Endometriosis and adenomyosis are not “bad periods.”
PCOS is not just “hormones.”
These diseases destroy lives, fertility, and futures.
Please, take it seriously. Listen to women. Listen to your bodies and demand better care.
You are not alone.
