Every Moment Matters - Dementia Care, Training and Consultation

Every Moment Matters - Dementia Care, Training and Consultation Teaching, caring and supporting end of life and dementia journeys, one moment at a time.

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15/01/2026

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For Lewy body dementia, night waking is usually driven by REM sleep disruption, hallucinations, vivid dreams, and fluctuating alertness.

Here’s how you manage night waking specifically in Lewy body dementia.

First: believe what they’re experiencing
If they wake frightened or talking about people, animals, or threats, do not correct them.
Don’t say: “There’s nothing there.”
Say: “That sounds upsetting. You’re safe. I’m here.”

In Lewy body dementia, hallucinations feel real so arguing increases fear and agitation.

Second: keep lighting soft but clear
Darkness makes hallucinations worse, but bright lights overstimulate. Use lamps or night lights and avoid sudden overhead lights

Third: slow everything down
People with Lewy body dementia process information slowly and fluctuate.
Slow speech
One sentence at a time
Long pauses
Rushing can tip them into panic.

Fourth: offer grounding, not activity
This is not the time for folding towels or “keeping busy”.
Sit beside them
Hold a warm drink
Gentle reassurance
Too much activity can worsen confusion and hallucinations in Lewy body dementia.

Fifth: don’t force bed immediately
Trying to push sleep often backfires.
Sit first
Calm the body
Let sleep come after regulation
In Lewy body dementia, calming the nervous system matters more than bedtime rules.

Sixth: watch medications carefully
Some sleep meds/antipsychotics
can seriously worsen Lewy body dementia symptoms.
Any increase in night distress after medication changes is a red flag and needs urgent review.

Seventh: consistency is your secret weapon
Same staff approach.
Same words.
Same tone.
Same routine.

15/12/2025

This is a question I’m asked often—and even more so during the holidays:
“My dad keeps asking where my mom is. She passed away years ago. What do I say to him?”
As care partners, we want to protect the people we love. We don’t want to retraumatize them by repeatedly delivering painful news, and we also don’t want to feel like we’re lying. So what can we do?
One gentle approach is to respond with curiosity and compassion rather than correction.
You might say something like,
“You’re wondering where Mom is. Are you missing her right now?”
Listen closely, and reflect back what you hear.
“Ah, you’re missing Mom. What are you missing most about her today?”
This opens the door for connection. It gives your dad the opportunity to talk about her—to share memories, feelings, and love. You can even join in and share what you miss about her too.
Sometimes, through the conversation, he may come to realize she’s no longer here. And sometimes he may not. Either way, you’ve offered him something deeply important: the chance to feel seen, heard, and comforted.
By speaking about her—her kindness, her laughter, her beautiful qualities—you may help lighten his emotional load, even if just a little. After all… how could anyone not miss her?

Send a message to learn more

15/12/2025

This is a question I’m asked often—and even more so during the holidays:
“My dad keeps asking where my mom is. She passed away years ago. What do I say to him?”
As care partners, we want to protect the people we love. We don’t want to retraumatize them by repeatedly delivering painful news, and we also don’t want to feel like we’re lying. So what can we do?
One gentle approach is to respond with curiosity and compassion rather than correction.
You might say something like,
“You’re wondering where Mom is. Are you missing her right now?”
Listen closely, and reflect back what you hear.
“Ah, you’re missing Mom. What are you missing most about her today?”
This opens the door for connection. It gives your dad the opportunity to talk about her—to share memories, feelings, and love. You can even join in and share what you miss about her too.
Sometimes, through the conversation, he may come to realize she’s no longer here. And sometimes he may not. Either way, you’ve offered him something deeply important: the chance to feel seen, heard, and comforted.
By speaking about her—her kindness, her laughter, her beautiful qualities—you may help lighten his emotional load, even if just a little. After all… how could anyone not miss her?

Send a message to learn more

Hey friends, please feel free to share this.  It's open to anyone needing support and it's free. Thanks.
07/12/2025

Hey friends, please feel free to share this. It's open to anyone needing support and it's free.
Thanks.

07/12/2025
Remembering self care during this busy time is so very important.  This is a great time to begin to create a supportive ...
04/12/2025

Remembering self care during this busy time is so very important. This is a great time to begin to create a supportive neighbourhood. Let's get the conversations going.
,

02/12/2025

01/12/2025

New website will be launched in a couple days instead of today.
Sorry to those looking for it today. 😔

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23/11/2025

I watch her from a distance—the woman who used to dance with me when I first began working at the residence she calls home. The 'joy of life' that once radiated from her so brightly has softened into the dimmer space around her. Over the years, I’ve watched this change, and each time my heart cracks just a little more.

I call her name in the familiar way I always have.
“Yes? Yes?” she replies, her eyes wide and searching. She can no longer locate where sound comes from—Dementia has taken that from her—so she searches for where her name is coming from.

I step into her line of sight and gently say her name again.
When her eyes find mine, her face brightens. Her smile returns, and her blue eyes sparkle once more.

I offer my hand. She reaches for it, and we sit together, side by side. No words are needed. My hand gives hers a small “pump,” and when I glance at her, she’s smiling brightly.

I know she doesn’t remember my name. But the sound of my voice, the way I greet her, the gentleness of my presence—those things tell her I am someone safe, someone caring. That is where her Dementia is now, and I meet her there without any expectation.

She and I will remain heart centered friends until her last breath is taken. That's what true 'care' is really about.

Send a message to learn more

21/11/2025

Thanks to our lovely government, I cannot post the article.
Here is what is written though! This article was in the Powell River Peak, November 20th, 2025

Do you know someone living with dementia?
'When the right care and the right support are provided, you can truly connect with your loved one'
Heather MacLeod
a day ago

3106_heather-macleod_2
Heather MacLeod is certified in dementia training and a consultant from Powell River who serves Vancouver Island and the Sunshine Coast.
Listen to this article
00:03:02
Dementia is a disease that affects so many people, in so many ways, that it boggles the mind. What comes to mind when you think of dementia?

I invite you to open hearts and minds, with curiosity and wonder, about this disease. I offer conscious conversations on the what, how, when, where, and why of dementia for anyone in a care partnership.

Dementia has affected my own family, and at the time, I had very limited resources to guide me. I decided to get curious about what I could do to be supportive. I learned that my loved one living with dementia was not trying to give me a hard time; they were having a hard time.

I struggled to understand why so many things were changing: hallucinations, this thing called sundowning (which sounds lovely, but is not), words getting mixed up, shuffling feet and why they jumped every time I came close for a hug. So many things didn’t make sense and nothing I tried seemed to help.

That continued until I got curious. I decided to become a detective and learn as much as possible to support care partners and people living with dementia, as well as self care, to reduce burnout.

By seeking out training online, I discovered several excellent resources that helped me understand why all these changes were happening with my family member and how I could share it with others. Burnout is a thing.

Through Positive Approach to Care (PAC), the National Council of Dementia Minds (NCDM) and Ageless Grace, I learned that people are no longer defined solely by their diagnosis of dementia.

It is possible to live with dementia, and to truly live life. Known as the long goodbye, we still have a life worth living, and we are still valued members of society.

The person living with dementia will move through stages and they will still be living. I found that when we meet people where they are, learn how their brains are changing and use the skills and tools to support those changes, we can create an environment for success in the home. We can also recognize when our support is no longer enough and draw strength from the community to seek additional help, or when a residential care home becomes necessary.

None of this needs to be done alone, nor is it something to be ashamed of. Through coffee chats and classes, I teach you skills and tools to support anyone in your neighbourhood and community.

I am a PAC trainer and consultant, passionate about teaching and sharing everything I know about the dementia journey with those affected by this disease. I also work at Providence Living at The Views in Comox, alongside many wonderful residents living with dementia.

When the right care and the right support are provided, you can truly connect with your loved one.

Heather MacLeod is certified in dementia training and a consultant who serves Vancouver Island and the Sunshine Coast.

Send a message to learn more

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Courtenay, WA

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