Tourette Syndrome Association of Australia, Inc.

02/04/2026

Tuesday Night it was Sydney's turn to see I Swear!

Adelaide and Lismore coming up next on April 19th, keep your eyes peeled for ticket registration links after Easter!

29/03/2026

It was Perth’s turn last night to see I Swear at Luna on Essex. Thank you to Luna Palace Cinemas and Transmission films for supporting the screening.

What a great turn out for an incredible film. Thank you to the research team from The Kids Research Institute Australia for attending and
Daniel and Sarah Pillar who are the creative duo behind our rebranding! Nicole Radcliffe and Team from the West Australia Assistant Teacher Association, representatives from Education WA plus of course our incredible members and their families.

A special thank you to Perth Social Coordinator Nita and Board Member Dr Melissa Licari for hosting ✨

Get excited Sydney, it’s your turn on Tuesday!

27/03/2026

Tourette's Australia is thrilled to share a 53% boost in memberships since our inaugural Board took office in September 2025!
It’s a fantastic milestone to mark our first six months of leadership.
We’re looking forward to the next half-year and can’t wait to update our members on the projects we’ve been working on, including the launch of our new website packed with accessibility features.

20/03/2026

I Swear - Tourette's Australia Melbourne Member showing.

Tissues ready!

16/03/2026

Our new event banner was proudly on display in Brisbane tonight, for the first preview screening of I Swear, for Tourette’s Australia.

Thank you to films and Event Cinemas for your support of tonight’s event!

07/03/2026

News...

07/03/2026

📣Announcement 📣

I’m Mandy Maysey, previously President of the Tourette Syndrome Association of Australia and now following the restructure after the SGM - Chair of the Board.

To reflect our updated governance model and our commitment to strengthening the professionalism of our organisation, I have what I think is exciting news to share with our community, something I have wanted to look at for several years now.
I know it may seem like we’ve been a little quiet recently, but I can assure you we’ve been like little ducks: calm on the surface and paddling very fast underneath!
Today, I’m pleased to announce that we are officially launching our new trading name:

Tourette’s Australia

This decision was made to better align with other international organisations and to move away from the perceived negative connotations often associated with the word "syndrome". Language matters, and we want our name to reflect strength, identity, and community.
Importantly:
• We will remain legally registered as the Tourette Syndrome Association of Australia.
• We will continue to operate as an incorporated association.
• Our ABN remains unchanged.
• Invoices and formal documentation will still be issued under our registered legal name, as many organisations do when operating under a trading name.
This change has given us the opportunity to refresh our branding and modernise our media assets, so they better reflect who we are today and where we are heading.

With that in mind, I present to you our new logo and the beginning of this next chapter.

Thank you to everyone who has supported us along the way; this evolution belongs to our entire community.

02/03/2026

Dear Saturday Night Live,

In response to your recent skit on Tourette's Syndrome, I want to highlight how and why you missed the mark. Joking that Tourette's is an excuse for being racist, bigoted, even engaging in cannibalism is inherently not funny. One out of five adults with Tourette's, attempt to take their own lives, because of the abuse and stigma associated with Tourette Syndrome. I have attached for you a copy of the 2025 Impact for Tourette's report. This 94-page report is the culmination of a two-year, multi-disciplinary study, led by women of colour, into the impact of living with Tourette Syndrome. I invite you to read the horrifying statistics and then apologise to the entire global Tourette's community for contributing the misinformation that leads to such high numbers of self-harm within the TS community. As a show with a large global following, you have a responsibility to ensure you are not deliberately causing harm to the 1/100 people on the planet who live with Tourette Syndrome or a Tic Disorder. The harm and resulting shame you have cast upon people with Tourette's was publicly broadcast, we request that your sincere apology is also broadcast publicly.

https://tourette.org.au/Impact-for-Tourettes

Regards,

Amanda Maysey
Chair of the Board
Tourette Syndrome Association of Australia

Tourette Scotland, Tourettes Action, Tourette Association of America, Tourette Canada, Tourettes Association of NZ

A Message of Gratitude and Purpose It is my absolute pleasure and honour to present the findings of the Impact for Tourette Study. A couple of years ago, I was fortunate to be approached by Dr Melissa Licari with an idea that was close to her heart. A research study driven by passion, connection, an...

01/03/2026

🫶

Just a reminder to all our members, you matter, please take care of yourselves and each other.

26/02/2026

MEDIA REQUESTS
Attention all media outlets
Please contact us via email for all interview requests.
Please do not reach out to individuals with Tourette Syndrome whom you have may have had contact with previously. Some of our members are experiencing distress over the current conversations around Tourette Syndrome. Unsolicited interview requests are adding to this distress.
By contacting the TSAA, Australia's only organisation that represents people with Tourette's and Tic Disorders in Australia, we can ensure you will be connected with someone who has lived experience with the topic at hand, and is capable of discussing it in an interview format.

Thank you for your understanding and cooperation.
Please send media requests to:
info@tourette.org.au

06/12/2025

Many people have questioned why someone with Conor’s complex medical issues would go on a show like Big Brother … THIS is why! 👇🏻

We’re incredibly proud of our National Education Advisor and all the work he does to improve the lives of people living with Tourette Syndrome.

23/11/2025

And that ladies and gentlemen is the difference between a relaxed, accepting and welcoming environment compared to a stressful one 🫶🏻