Tourette Syndrome Association of Australia, Inc.

30/09/2025

Université du Québec à Montréal are running an online study investigating explosive outbursts/rage attacks and their impact on family functioning; please see the flyer attached.

29/09/2025

Paid members will by now all have received a couple of emails regarding next week's SGM, one with the full details of the proposed changes to the constitution and the other with a link to voting for the changes. Voting is open from now until the meeting.

Please note: to meet quorum requirements under our constitution, we still require at least 20 members present via Zoom at the start of the meeting.

It's really important that members get involved and vote on this.

14/09/2025

Dear Members,

I am writing to inform you that a Special General Meeting (SGM) of the Tourette Syndrome Association of Australia (TSAA) will be held on Thursday 9th October 2025 at 7:30pm.

The purpose of this meeting is to seek your approval on several important constitutional amendments. These changes are designed to future-proof the TSAA and ensure we are best positioned to act on the findings and recommendations of the Impact for Tourette's Study.

Details will be emailed to everyone with a current/valid membership. If you do not receive an email, please check your spam filter, contact info@tourette.org.au and/or check your email is correct on your membership.

Thank you.

03/09/2025

Would you like to take part in a study on tics and tic urges in Tourette
Syndrome aimed at kids aged 12-17?

Deakin University is currently conducting a study on tics and tic urges in Tourette Syndrome at The Royal Children’s Hospital, Melbourne, Australia.

This study is funded by the National Health and Medical Research Council (NHMRC).

The project looks at the subjective experience of tics and tic urges in young people and compares these to images taken of their brain activity during a Magnetic Resonance
Imaging (MRI) scan.

If you are interested in participating or would like further information, please contact the study coordinator at jade.zouki@deakin.edu.au.

Once you contact them, they will send you an information sheet, explaining the research in more detail.

Details of the study will be emailed to TSAA members

30/08/2025

Thank you to Nat Cook MP for hosting Charlene Pinnock, Conor Maysey and South Australian delegates of the TSAA for a presentation in SA Parliament. It was very encouraging to see so many members if parliament and heads of support agencies stay behind to not only speak with our delegation, but pledge inclusion and assistance gaining practical supports for our members.

Thanks to Samuel Wannan, Jaz Edson and Conor Maysey for sharing your lived experiences and representing our community so truthfully.

A tremendous thank you to ABC Riverland and ABC Stateline journalist Amelia Walters. Amelia dedicated herself to sharing the plight of people with Tourette’s without resorting to sensationalism, which often accors in articles about Tourette Syndrome.

29/08/2025

"The loudest person in the room that everyone stares at. Yet when it comes to what matters we are not seen or heard." Impactful words from National Education Advisor Conor Maysey to South Australian Government last week.

Thanks to Amelia Walter’s ABC Riverland for her dedication to covering our plight and the good work being done by the South Australia Government to improve the life of people living with Tourette’s

A very big thank you to TSAA Treasurer Charlene Pinnock for her hard work in organising this event and once again a huge thank you to our SA members and their families for representing yourselves so wonderfully.

Keep your eyes out for ABC TV News stories.

From poorly categorised NDIS support to high rates of su***de, Tourette syndrome advocates say it's the last disability where "it's still acceptable for people to laugh at".

26/08/2025

Thank you to Connie Bonaros MLC for taking the time after our SA Parliamentary presentation, to interview TSAA National Education Advisor, Conor Maysey and pledging your support to the TSAA

21/08/2025

Today Conor Maysey TSAA National Education Advisor presented to members of SA Parliament on the Impact of living with Tourette’s and how state governments can make a difference.

Conor was supported by a large contingent of our South Australian members, who were able to speak with ministers and key stakeholders about their lived experiences, these conversations made a marked impact on all the members present and gave them a view into the real lives of people with Tourette Syndrome

The TSAA would like to extend a special thank you to SA Minister for Social Services, The Hon Nat Cook for her support and invitation to speak. This is a historic opportunity for the TSAA, together we can forge a new path for all people with Tourette’s and make a society that’s accepting and supportive of all people.

08/07/2025

NSW Camp
15th - 17th August, 2025
The Tops Conference Centre
Stanwell Tops
Registrations close Friday 18th July, 2025
https://tourette.org.au/event-6196841

Please ensure you are logged in and your membership is up to date. All family members attending must be added to your household bundle or you will not be able to complete registrations for them.
Only one registration can be completed at a time (sorry for the inconvenience).
Payment Plan - If you would like to pay your registration off over the weeks leading up to camp please contact treasurer@tourette.org.au

02/06/2025

Two thirds of people with Tourette Syndrome report moderate to extreme impact on their day to day life.

The impact of having Tourette Syndrome isn't one big traumatic event, it's a thousand tiny cuts, every day with bullying, exclusion, misunderstanding and rejection.

Share the study and the information sessions with your friends, family, school, clinicians, MP etc. We need real lasting changes and we need them NOW!

02/06/2025

Nita and Anzac share their story to help raise awareness for Tourette’s Awareness Week 2025

Dr Melissa Licari shares key insights from her two year study report, on the impact of living with Tourette’s!

You can read the full report here: https://www.tourette.org.au/impact-for-tourettes

01/06/2025

Every day in Australia, over 50,000 people live with LIFELONG Tourette Syndrome or another tic disorder.

They’re not just battling tics - they're living with daily pain, exhaustion, and emotional distress. Many wait years for a diagnosis, only to be offered little to no support.

The attempted su***de rate for this community is five times higher than the national average.
And 80% of caregivers are struggling with their own mental health.

This is a hidden crisis, affecting children, adults, and families across the country.

But it doesn’t have to be this way.

We now have the first national report capturing the lived experience of people with tic disorders. With clear, community-driven recommendations for change.

Please read the report, share it, and help us push for real, impactful change.

www.tourette.org.au/impact-for-tourettes

Because Tourette Syndrome isn’t rare, it’s neglected.