14/05/2026
Let's sit down and dissect even just this headline for a moment.
Because the title itself contains the first problem.
It asks us to choose.
It places a false competition in front of us before we've even read the main body: if we recognise more Autistic people, does that mean we're abandoning those who need the most support?
That’s the language that is being pushed onto us, and with it, the implicit messaging of “You don’t think about those with higher support needs (and we do)”.
At the heart of neuroaffirming, Autistic-led messaging, it is not the argument of which Autistic people deserve to exist in public consciousness, but asking for more diverse representation to understand the various ways Autistics can present. Those are VERY different things.
The article warns that broader diagnosis risks medicalising normal childhood differences, lowering expectations, and providing supports that are "unnecessary, inappropriate or harmful."
Fascinating claim because well, those are exactly the concerns the neuroaffirming community has been raising for decades, but…… about the opposite problem.
The supports that have caused the most documented harm to Autistic people aren't the ones that come from broader recognition. They're the compliance-based, deficit-focused interventions, particularly those designed to make Autistic people appear less Autistic. A major Cochrane review found only weak evidence that intensive early behavioural interventions are effective, and subsequent research suggests those effects often don't generalise beyond the therapy room at all.
So….. where is the evidence? [My echo here is “Show me the moneyyyyy!”]
This fearmongering and political opinion that passes as fact because it comes from a research institution is concerning, yet it drives community rhetoric when this gets platformed, and ultimately, government decisions.
We are navigating an economic climate of NDIS cuts and uncertainty about the future, where families are deeply concerned about the functional impact of the loss of supports. We’re looking at not being able to participate in education, or daily living activities, or social groups, and being told that those things don’t matter because your disability doesn’t look like the one I have in my head.
(One of the reasons why increased representation is helpful, y’know?)
The article ends with: "The challenge is to retain the gains of broader recognition while ensuring those with the most complex needs remain clearly in view."
Honestly? Absolutely. Whilst research in the past have focused on Autistics with developmental delays, and research gaps therefore focused on understanding the needs of Autistic people with higher cognitive abilities, masking and/or lower support needs, it is important for us to also keep up with evidence changes for our higher support needs Autistics. Recognising their voices in community through alternative communication methods and advocacy for their support needs is, and remains, crucial for progress.
But who gets to decide what "greatest needs" means?
This piece was written entirely from a clinical and institutional perspective. Autistic voices weren’t consulted, nor family members (maybe), nor a person who uses AAC or supported decision making. We need to embody “Nothing About Us Without Us” at institutional levels to avoid the replication of harm to communities.
I guess a bigger question I am sitting with is this: How do we build a country where all disabled people are genuinely supported through appropriate allocation and structures, rather than pitting communities against each other to compete for finite resources?
It begins first, in my opinion, with a mindset shift away from the false dichotomy and an acceptance of disability as part of our diversity, moving towards creating commnuities and governance structures that honour dignity, autonomy and access to community, education, housing and safety.
Few diagnoses have broadened their diagnostic boundaries as much or as quickly as autism. This has affected those with the most profound disability.
👉 Read the article: https://theconversation.com/as-the-definition-of-autism-expands-are-we-losing-sight-of-those-with-the-greatest-needs-281991
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