Sami Life Rainbows

Sami Life Rainbows 💜Melbourne Mum of 3
🌈Life is more fun in colour
🌻Autistic ally
🧿Recovery #12
🎗Endometriosis

So I went down a rabbit hole last night 🤣 See stories for more... each one more horrendous & hilarious than the last lol...
11/04/2025

So I went down a rabbit hole last night 🤣 See stories for more... each one more horrendous & hilarious than the last lol! This one though 🤔 why is one arm so tiny? 🤭

When Stevie was a toddler she was very different to her two older siblings when they were that age. She seemed to take m...
02/04/2025

When Stevie was a toddler she was very different to her two older siblings when they were that age. She seemed to take more extreme risks, climb higher, attempt escapes, be constantly on the move & I quite literally could not turn my back for a second for fear of her safety & my own sanity. There was once a time when nature called & when I returned back to the room Stevie was in the back sliding screen door was completely off the track!

Stevie was never content to just stay in a room & play. She’d be bouncing off the walls, rearranging furniture & climbing to dangerous heights. She also loves to put random items & objects into cases, baskets, drawers & odd places like mugs for eg. I once opened a draw to find our coffee mugs filled with pretzels. And when things go missing around the house they could quite literally be hidden anywhere. She still does this type thing most recently she’s been putting pyjamas into cosmetic cases & travel bags. Before this is was slippers in a suitcase.

During Stevie’s kinder years where her social & emotional struggles became more obvious was when we began to question ourselves as parents & our child’s behaviour. Amongst her kinder group Stevie was obviously the odd one out. In daily pictures we’d clearly see Stevie was the only child by herself during group time activities. We’d see a photo of the kinder group sitting on the mat for story time & off in the background by herself was Stevie.

I remember saying to my husband “We are parenting Stevie the same way we have our other 2 kids. What’s going on? Is it me? (I’d had some health issues & surgeries) so am I just not coping with a third child because of my health?” Then came the discussion “Is there something more going on here?”

Prompted by kinder when Stevie was 4 years old we began the 2 year long process that led to her diagnosis. In many ways we were very fortunate along this road. Being our third child we already had a family pediatrician who we trust & has known our family since the day our first baby was born. I also made myself available to take any appointments made available to us. I sat through countless questionaries, assessments, therapies, meetings etc. It was mentally & emotionally exhausting as well as being very expensive as funding is extremely hard to qualify for without significant evidence to support your case.

Stevie was diagnosed AuDHD just over a year ago. Autistic with ADHD 💛🌻🦄🌈

Over the last year we have worked tirelessly to establish ‘Team Stevie’. Team Stevie understands her needs; they hold space & make adjustments for her. They include & accept Stevie as she is without judgement.

We have close family & friends on Team Stevie as well as support workers, teachers, LSO’s, therapists, a swim school & more! It has basically been my full time job learning about Stevie’s invisible disability then educating those around us.

With love, understanding & unwavering support we have watched Stevie flourish. We have also, daily watched her struggle. Feel overwhelmed, socially awkward, emotional & confused. It is very tough existing in a neurotypical world. We’ve shed many tears. It’s hard as a parent, her carer, life & plan manager. But it is also so magical to see the world through Stevie’s beautiful eyes.

She’s just a girl, standing in front of society asking it to include her!

And I am her Mum. Her biggest advocate & supporter, hoping that you do.

Neurodiversity Celebration Week thoughts shared in today's story & on the Sami Life Rainbows page 🌻🦄🌈
19/03/2025

Neurodiversity Celebration Week thoughts shared in today's story & on the Sami Life Rainbows page 🌻🦄🌈

Neurodiversity Celebration Week is a worldwide initiative that challenges stereotypes and misconceptions about neurologi...
19/03/2025

Neurodiversity Celebration Week is a worldwide initiative that challenges stereotypes and misconceptions about neurological differences. It aims to transform how neurodivergent individuals are perceived and supported by providing schools, universities, organisations, and others around the world with the opportunity to recognise the many skills and talents of neurodivergent individuals, while creating more inclusive and equitable cultures that celebrate differences and empower every individual.

“I founded Neurodiversity Celebration Week in 2018 because I wanted to change the way learning differences are perceived. As a teenager who is autistic and has ADHD, dyslexia, and dyspraxia, my experience has been that people often focus on the challenges of neurological diversity. I wanted to change the narrative and create a balanced view which focuses equally on our talents and strengths.” Siena Castellon, Founder

You’ve likely noticed by now the theme to the content I’ve been sharing this week 🌻🦄🌈 It’s obviously very close to my heart as our 6 year old daughter Stevie is Autistic with ADHD (AuDHD). She’s a hyperactive little firecracker who has many invisible daily struggles. Stevie is a misunderstood, funny, colour loving, creative, active, clever & eccentric kid 💜
Sadly society has been cruel in it’s judgement & ignorance.

I’ve listened to & read many messages shared by parents of neurodivergent kids this week. Majority of the words ring true but I don’t necessarily agree with some.

I can’t say to date that I’ve felt a sense of grief since Stevie has been diagnosed. The diagnosis & assessment process is brutal & confronting. But to finally come out with a diagnosis at the end of that long, torturous process was honestly a relief. I felt so motivated to hit the ground running & learn as much as I could about Stevie’s diagnosis. I’ve read the books, listened to the podcasts, tuned in to the conference, tackled NDIS & road tripped with my bestie to a seminar. All in an effort to advocate for Stevie & set her up for success. Success looks different to each individual & for now we'll settle with happy.
We simply want Stevie to be happy 🌞

Stevie attends various therapy sessions week to week to support her needs. While the knockbacks from NDIS can be disheartening; as a parent with access to these professionals it is actually empowering to provide Stevie with these supports. Something special happens once you find your people 🥰 The connection feels almost sacred. I can’t explain the relief I feel in a space full of people who GET IT. The joy I feel watching my child feel safe enough to be herself 🤩 Through unspoken words, comradery, eye contact & silent communication WE KNOW. We know the silent struggle is real. The challenges are daily if not hourly or minute to minute. The STRESS & EXHAUSTION! It is impossible to explain it to those outside of our bubble.

So to those on the outside looking in. Look, be curious, ask questions, offer support. We want you to know. Because once you know we can stop apologising & explaining. We can take a breath & just be.

A little kindness & understanding goes a long way in creating a safe space where a neurodivergent child can simply exist ✨️

Thank you to our support network, to those who accept our family, do not judge our child & who continue to show up. Thank you 😍

Mama with her birthday wishes & kisses 🥰 Thanks for all the Bday love 💜
07/02/2025

Mama with her birthday wishes & kisses 🥰
Thanks for all the Bday love 💜

Back to school hits a little different in our fam 💜We're less about the new uniforms & excitement & more for the comfy u...
03/02/2025

Back to school hits a little different in our fam 💜

We're less about the new uniforms & excitement & more for the comfy un**es, socks that feel juuussst right, a lunchbox filled with comfort foods, shoes that will be happily worn even if they're rainbow sparkles rather than the standard black.

We celebrate simply getting up & dressed on time with or without meltdowns.
Walking through the school gates is a feat in itself, making it into the classroom an amazing achievement!
We work hard throughout the entire school year building our support team, turning up to PLP & PSG meetings, advocating, spreading awareness, understanding, acceptance & inclusion. All in preparation for the following year.

We survive school holiday mayhem then the back to school stress & anxiety.

Once our family settles into the new year, class, routine, sports & therapies then we can finally rejoice that the kids have gone 'back to school'.
Hold on fam. we're almost there 🌻🦄🌈💜

Happy New Year 💜 Mum & Dad. Be good kids 🥳
31/12/2024

Happy New Year 💜 Mum & Dad. Be good kids 🥳

Fashunnnn! Post op. socks & crocs 🤭
13/12/2024

Fashunnnn! Post op. socks & crocs 🤭

Bestie by my bedside 💜🤗
12/12/2024

Bestie by my bedside 💜🤗

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