Let's Talk FND

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Let's Talk FND

We are a multidiciplinary team using evidence-based therapy for Australian people with functional neurological disorder to equip them to recover

Empowering lives affected by Functional Neurological Disorder (FND).

🌟 At Let’s Talk FND, we provide the tools, knowledge, and compassionate support needed to help individuals and their supporters thrive with confidence and resilience.

💪 Together, we’re building a community where understanding, education, and empowerment go hand in hand.

💬 Join us on this journey to make FND management accessible and impactful.

13/04/2026

Timing can play an important role in your recovery journey.

👉 Getting the right help at the right time can help you:
- Understand your symptoms sooner
- Access appropriate treatment
- Feel more in control of your condition

🧠 But even if it’s been a long time — support is still important.

👉 Recovery is still possible at any stage.

💬 What would early support have changed for you?

🔁 Share this to help others understand the importance of timing.

12/04/2026

To every person living with FND, you are believed. Your symptoms are real.

You deserve care from a team that truly understands what you are going through.

FND is a condition where the brain's signalling system is disrupted, producing symptoms that are genuine, variable, and often deeply confusing for both the person experiencing them and the clinicians trying to help.

Symptoms can include functional seizures, tremor, limb weakness, altered sensation, speech and swallowing difficulties, fatigue, and cognitive changes.

No two presentations are quite the same. That variability is part of what makes FND both a clinical challenge and a genuinely fascinating area of practice.

The good news is that the evidence base is growing. We understand more about the neuroscience of FND than ever before, and there are established, effective treatment approaches that address both the physical and psychological dimensions of the condition.

At Let's Talk FND, this is the work we show up for every day. Supporting people with FND, and the clinicians who care for them, to navigate this condition with clarity and confidence.

Awareness is where change begins. 🌐 letstalkfnd.com.au

12/04/2026

A study just published in 2025 sat down with Australians living with Functional Neurological Disorder ( ) and asked them: what is your experience really like?

Here's what they found:

🔹 Daily life is deeply affected: routines, relationships, independence, identity. FND touches all of it.

🔹 Getting a diagnosis takes years: and the journey there is often filled with dismissal, confusion, and being passed from one specialist to another without answers.

🔹 If you live outside a major city, you're even more on your own: regional Australians face enormous barriers just trying to access appropriate care.

🔹 Stigma is still doing serious damage: the assumption that FND is 'all in your head' or somehow less real continues to harm the people living with it every single day.

🔹 The financial impact is real and largely invisible. Many people with FND can't work, or can only work inconsistently, and the strain of that is rarely acknowledged.

None of this is new information to people living with FND. But having it documented in peer-reviewed research matters because it means we can no longer say we didn't know.

To everyone living with FND: your experience is real, it is documented, and it deserves far better than what the system has offered so far. 💙

To fellow health professionals: this is our call to do better.

📎 Full study: https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2481986

11/04/2026

April is FND Awareness Month 💙

Did you know that Functional Neurological Disorder is one of the most common conditions seen in neurology clinics? Up to 30% of people attending neurology outpatients may have symptoms that are functional in nature. FND shows up across almost every area of healthcare, every single day.

FND affects the way the brain and nervous system send and receive signals. Symptoms can include tremor, weakness, seizures, difficulties with walking, fatigue, pain, and problems with speech or thinking. These symptoms are real and they can be seriously disabling.

What is often not well known is that FND is not a diagnosis of exclusion. There are clear, positive clinical signs that point to FND directly. And importantly, how a clinician explains and frames the diagnosis has a significant impact on how a patient understands and engages with their recovery.

That is why education matters so much, for clinicians and for the people they care for.

At Let's Talk FND, we take a holistic, integrated approach to FND care that brings the mind and body into the same room.

We are here for the patients navigating a confusing and often isolating diagnosis. We are here for the clinicians who want to show up well for them. We are here for the teams, communities, and organisations who support FND work.

🌐 letstalkfnd.com.au

09/04/2026

Getting help early after symptoms begin can make a real difference in Functional Neurological Disorder (FND).

🧠 Why?
Because the brain is more adaptable (neuroplastic) earlier on.

This means symptoms may respond more effectively to treatment when addressed early.

👉 Early support can include:
- Education about FND
- Physiotherapy
- Psychological support
- Multidisciplinary care

👉 Early support helps your brain learn new patterns sooner.

💬 If you had access to early support, how do you think it would have helped you?

🔁 Share this post to help others understand why timing matters.

07/04/2026

Many people with Functional Neurological Disorder (FND) experience what’s called “fragmented care.”

This means seeing different doctors or therapists who may not always communicate with each other.

This can feel like:
- Being passed from one specialist to another
- Getting different explanations for your symptoms
- Feeling confused or overwhelmed
- Not feeling fully understood

🧠 When care isn’t connected, it can make recovery harder and more stressful.

👉 You deserve care where everyone is working together and supporting you.

👉 You deserve clear and consistent information about your condition.

💬 Have you experienced fragmented care? What helped or didn’t help?

🔁 Share this post to raise awareness and support others.

07/04/2026

🧬 Safety isn't just a feeling, it's something your body works to maintain at a cellular level.

The 2025 Nobel Prize in Medicine was awarded for a discovery that changes the way we should understand illness, healing, ourselves and the people we support.

Here's the short version:

Your immune system has a dedicated group of 'peacekeeper cells' called regulatory T cells whose only job is to recognise what is safe and make sure it isn't attacked.

They are your body's way of saying: "This belongs here. Leave it alone."

When those cells don't work properly, the immune system loses its ability to tell safe from unsafe and starts attacking healthy tissue.

Real damage. Real suffering. From a system that simply couldn't recognise safety anymore.

The nervous system faces the exact same challenge.

In Functional Neurological Disorder ( ), the nervous system becomes sensitised. It lowers its threshold and starts amplifying signals that should be ignored. It loses its capacity to register safety.

And this is why the environment we create around people with FND matters so much.

Compassion, consistency, and genuine support aren't just kindness, they are biological inputs that help a dysregulated nervous system begin to feel safe again.

Safety isn't soft. It's science. 💙

06/04/2026

The way your condition is explained to you matters.

👉 Clear, supportive communication can:
- Help you feel understood
- Build trust with your clinician
- Improve your recovery journey
- Help you understand your symptoms better

🧠 When healthcare providers explain things clearly and respectfully, it can make a big difference in how you feel and how you manage your condition.

👉 You deserve to be heard and understood.

💬 Have you ever felt misunderstood by a healthcare provider? What made a difference for you?

🔁 Share this post to help raise awareness about the importance of communication.

04/04/2026

Being heard and believed is incredibly important.

👉 Validation means:
- Your symptoms are real
- Your experience matters
- You are not imagining your condition

🧠 Many people with FND go a long time without feeling understood — validation can be a powerful step in healing.

👉 Feeling supported can make a real difference in your journey.

💬 Have you felt validated in your journey?

🔁 Share this to help raise awareness and support others.

01/04/2026

You’re not alone — and more importantly, you’re not without options.

👉 Many people with Functional Neurological Disorder (FND) are left asking:
“Why is this happening to me?”
“Why now?”
“What actually helps?”

That’s exactly why we created the “Building Your FND Recovery Roadmap” Webinar Series — to give you clear answers and a practical path forward.

🧠 In this supportive, step-by-step series, you’ll learn:
✔ Why Me?
Understand how FND develops and the brain–body connection
✔ Why Now?
Identify triggers and what contributes to symptom flare-ups
✔ What Works?

Learn practical, evidence-based strategies to support recovery
💡 By the end, you’ll have:
A clearer understanding of your symptoms
Practical tools you can start using straight away
A personalised recovery roadmap
Greater confidence and direction in your journey

👉 This is not about “pushing through” — it’s about understanding what your brain and body need to move forward.

🔗 Start here:
https://www.letstalkfnd.com.au/Building_Your_FND_Recovery_Roadmap

💬 What’s the biggest question you still have about FND?

🔁 Share this with someone who needs clarity and support.

01/04/2026

Functional Neurological Disorder (FND) is a condition where the brain and body aren’t communicating as they should.

👉 This can cause real symptoms like:
- Weakness
- Tremors
- Difficulty walking
- Non-epileptic seizures

🧠 Important: These symptoms are real — not imagined.

FND is a recognised medical condition, and understanding it is the first step toward recovery.

Many people with FND experience a long journey before getting answers, including:
- Multiple tests
- Seeing different specialists
- Feeling dismissed or confused

👉 A diagnosis of FND is not the end — it’s the beginning of understanding what’s happening and how to help.

💬 What’s one thing you wish more people understood about FND?

🔁 Share this to help others understand the condition.

27/03/2026

🌟 UK FND Community — Your Voice Is Needed!

Researchers from St George’s, University of London are running a new study exploring how people with FND use social media for information, support, and self‑management. If you live with FND and regularly engage with FND‑related content online, they’d love to hear from you.

🖥️ It’s a friendly 45–60 minute online interview (Microsoft Teams), scheduled at a time that works for you.

👥 Who can join?
• Adults (18+)
• UK residents
• Diagnosed with FND
• Use social media for FND‑related content

📧 To take part, email: fndresearch@outlook.com

📎 See the flyer

https://drive.google.com/file/d/1PH9BnHz12x8-8x2uiTOvlsPxpzNCYvmK/view?usp=share_link

and scan the QR code to learn more or express your interest
https://drive.google.com/file/d/1NgOqpOaA2ccgxqkx7Lp9u-noiSVzHpf5/view?usp=sharing

Please share this with anyone who might be interested. Every story helps build better understanding and visibility for the FND community 😀

Address

2300

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 17:00

Website

http://www.letstalkfnd.com.au/

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