Ethan's Endeavour

28/02/2026

It's rare disease day today. Our family know too well what this is.
If you havnt already please share and follow Ethan's Endeavour and let's get Cystinosis more noticeable.

24/02/2026

Looking at having Ethan's Endeavour fundraiser in September this year. Would love to get an idea of who would like to join us.

23/02/2026

When Ethan gets hungry no problem, he will just take himself off to the kitchen to whip something up.

21/02/2026

Ethan is still collecting cans and bottles to help reach his fundraising goal ♻️💙

Every 10c return makes a difference! All monies raised go towards getting Ethan and our family to the Cystinosis Medical Conference, where we can connect with specialists, learn about new treatments, and build support networks for his rare condition.
If you have any cans or bottles you don’t want, we would be so grateful for them. Even better if you know a local business that would be willing to save their returns for Ethan, please let us know!

Your support truly means the world to our family. Thank you for helping us get one step closer ✈️

15/02/2026

Ethan has some money left over from the holidays so we go to the shop and he buys himself 2kgs of chicken drumsticks, comes home and coats them in batter then cooks them up for lunch. He calls it home made KFC. This kid needs a job as a chef.

15/02/2026

🎉 I earned the emerging talent badge this week, recognizing me for creating engaging content that sparks an interest among my fans!

01/02/2026

Ethan is now a highschooler. Have the best day my boy.

02/01/2026

Ethan weighed for the first time for 2026 and was excited to see he was the heaviest he has ever been 29.2kgs. Lets get behind him and cheer him on as he aims to be 35kgs by the end of the year.

23/12/2025

This is what we all want every year.

19/12/2025

Ethan graduates year 6
Emotions running high, happy tears, sad tears, excitement, and nervousness all rolled into one. Congratulations Ethan.
The ringing of the bell symbolises the start and end of primary school. Ethan rang the bell on the first day of school and again today.

We dont own the rights to this music

15/12/2025

Ethan's year 6 farewell tonight. He looked very smart. A huge THANK YOU to Roger Lewis for driving him in his awesome car. It was the highlight of his night. Ethan felt very special getting out of the car. His sister got the pleasure of doing the last dance with him. As most of you would understand struggles of the sun in the eyes of someone with cystinosis. Ethan struggled today hense the sunglasses.

10/12/2025