Ethan's Endeavour

Ethan's Endeavour Ethan was diagnosed with a very rare genetic disease called Cystinosis at 11 months of age.

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Today is Cystinosis Awareness Day.This is my son Ethan. 💚Cystinosis is a rare genetic condition that affects children an...
06/05/2026

Today is Cystinosis Awareness Day.

This is my son Ethan. 💚

Cystinosis is a rare genetic condition that affects children and families every day. Today I’m sharing Ethan’s photo to help raise awareness, understanding and support.

Please like and share this post to see how far we can get with raising awareness for Cystinosis.

Ethan had his 6 monthly follow up appointment with his endocrinologist at Westmead Children's Hospital yesterday. He has...
21/04/2026

Ethan had his 6 monthly follow up appointment with his endocrinologist at Westmead Children's Hospital yesterday. He has grown 17cm since starting the growth hormone. She is happy with his growth and will see him again in 6 months.

Ethan just chilling on a Sunday while his other brothers are at footy. This kid cracks me up 🤣🤣
29/03/2026

Ethan just chilling on a Sunday while his other brothers are at footy. This kid cracks me up 🤣🤣

Ethan has just hit 30kgs. This is a huge milestone for him. He has grown out of flexing his muscles for his photos lol. ...
14/03/2026

Ethan has just hit 30kgs. This is a huge milestone for him. He has grown out of flexing his muscles for his photos lol.

It's rare disease day today. Our family know too well what this is. If you havnt already please share and follow Ethan's...
28/02/2026

It's rare disease day today. Our family know too well what this is.
If you havnt already please share and follow Ethan's Endeavour and let's get Cystinosis more noticeable.

24/02/2026

Looking at having Ethan's Endeavour fundraiser in September this year. Would love to get an idea of who would like to join us.

When Ethan gets hungry no problem, he will just take himself off to the kitchen to whip something up.
23/02/2026

When Ethan gets hungry no problem, he will just take himself off to the kitchen to whip something up.

Ethan is still collecting cans and bottles to help reach his fundraising goal ♻️💙Every 10c return makes a difference! Al...
21/02/2026

Ethan is still collecting cans and bottles to help reach his fundraising goal ♻️💙

Every 10c return makes a difference! All monies raised go towards getting Ethan and our family to the Cystinosis Medical Conference, where we can connect with specialists, learn about new treatments, and build support networks for his rare condition.
If you have any cans or bottles you don’t want, we would be so grateful for them. Even better if you know a local business that would be willing to save their returns for Ethan, please let us know!

Your support truly means the world to our family. Thank you for helping us get one step closer ✈️

Ethan has some money left over from the holidays so we go to the shop and he buys himself 2kgs of chicken drumsticks, c...
15/02/2026

Ethan has some money left over from the holidays so we go to the shop and he buys himself 2kgs of chicken drumsticks, comes home and coats them in batter then cooks them up for lunch. He calls it home made KFC. This kid needs a job as a chef.

🎉 I earned the emerging talent badge this week, recognizing me for creating engaging content that sparks an interest amo...
15/02/2026

🎉 I earned the emerging talent badge this week, recognizing me for creating engaging content that sparks an interest among my fans!

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Rutherford, NSW

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