Ethan's Endeavour

Ethan's Endeavour Ethan was diagnosed with a very rare genetic disease called Cystinosis at 11 months of age.

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20/08/2025

Ethan had to do a speech for the public speaking competition with school. 2 people from his class are then chosen to go into the finals and perform their speech infront of the school. Ethan did this today and did a fantastic job. In fact it was so good he was one of the two chosen to go through to zone and represent the school. He spoke about Cystinosis and how it affects him.

About to put in a chocolate order. Would anyone like a box or two ordered? Leave your order in the comments
28/07/2025

About to put in a chocolate order. Would anyone like a box or two ordered? Leave your order in the comments

Ethan having his bladder and kidney ultrasound.
16/07/2025

Ethan having his bladder and kidney ultrasound.

Influenza B has smashed Ethan and 2 of his brothers for the past few days. High temps of 39°, cough, sore throat, migrai...
29/06/2025

Influenza B has smashed Ethan and 2 of his brothers for the past few days. High temps of 39°, cough, sore throat, migraines, lethargic, and shortness of breath. All of them are on anti virals but they dont seem to be helping. Nurofen, Panadol, sleep and fluids are the go to right now.

Chocolates have arrived. Let me know if you would like to purchase a box. We currently have the following available:4x E...
20/02/2025

Chocolates have arrived. Let me know if you would like to purchase a box. We currently have the following available:
4x Easter egg boxes $80 each
3x Goody boxes $60 each
3x Freddo Fun boxes $60 each
2x Freddo & Friends boxes $60 each
2x Lolly boxes $60 each

Today we had the leadership ceremony at school where I got to pin Ethan's Prefect badge on him. This was then followed b...
20/02/2025

Today we had the leadership ceremony at school where I got to pin Ethan's Prefect badge on him. This was then followed by a morning tea with parents and grandparents. Super proud of you Ethan.

Would anyone be interested in purchasing some fundraiser chocolates if i was to order some? Funds raised will go towards...
13/02/2025

Would anyone be interested in purchasing some fundraiser chocolates if i was to order some? Funds raised will go towards getting Ethan to the next Cystinosis conference.

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Rutherford, NSW

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