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Myeloma ain't ready for Michelle

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Sunshine Coast, QLD
Myeloma ain't ready for Michelle

Hi all, my names Michelle, follow my journey in the fight against my diagnosis of Multiple Myeloma.

16/02/2026

It's been 2 weeks since my admission to SCUH. I'm finally coming out the other side. What a ride, it was worse this time around and so glad I don't have to have another one of these for hopefully a very long time. Only required 4 bags of platelets and no MET call this time. Bloods are coming back up so out of isolation now but still have to be careful. I'm so ready for home. Fingers crossed they say I can leave over the next couple of days.

04/02/2026

Admitted Monday and had my Hickman line inserted under a light sedation. Yesterday had a big dose of Melphalan chemo then today had my stem cell transplant (SCT). Last night had a migraine and felt sooo nauseous. Today I have slept most of the afternoon. Starting to feel really anxious because I know what's coming. Anywho just need to get through these few weeks as I know its to help me live longer.

30/01/2026

Pentamidine today! It's a medication to help avoid getting pneumonia. Last thing and we are all ready to be admitted on Monday. Monday I will be taken to theatre to have my hickmann line placed then Tuesday I receive a massive dose of chemo and Wednesday will be called day zero and I receive my stem cells back. Until then, we will enjoy our last weekend together as a family for a few weeks.

19/01/2026

Sorry I've been MIA, I've been living life with my kids. Took them away which was full on and I'll be paying it off over the next 6 months but so worth it. Now prepping for my next stem cell transplant. Lots of appointments over the next 2 days. Not looking forward to it but ready to get it over and done with.

18/12/2025

Final round of chemo today after 6 months in total of RVd treatment line 1. Will have my 2nd stem cell transplant in Feb then have to take daily maintenance dose of Lenolidamide orally till the cancer rears its ugly head again and thats when they move to line 2. Now we just have to hope I stay in remission for a very long time.

25/11/2025

Today I had 3 of my minis with me due to a teacher strike for my haematology apt.
What a day for them to be there with me.

The abnormal protein that is caused by the cancer is non detectable which means I am in remission! Still have another month of chemo and my second stem cell transplant in Feb but that is awesome news.
With Multiple Myeloma everyone is very different and people go into remission for all different lengths of time. Some for a year and others for 15 years. We know my type is more likely going to come back quicker and this is the reason I am having 2 stem cell transplants back to back. To give me more of a chance to stay in remission longer.
Lets hope the cancer stays away for many many years 🙏

We celebrated by going to timezone and using up some vouchers we had. Buying pizza for dinner and Ryan brought me some flowers home. Looks like he does actually care haha

21/11/2025

Chemo and bone strengthening infusion day yesterday. Endocrine also came to see me and put a CGM on my arm. These steroids are causing havoc, BSLs are out of control and the insulin doesn't seem to be doing much. Think they will have to be more aggressive on the days I have the steroids.

13/11/2025

Its been a week, I tell ya!
Today I had chemo which I'm surprised they went ahead with as I've been sick all week. Although coming out the other side.

Ontop of this I saw endocrine at the start of the week and they decided to start insulin as the steroids have made me hyperglycaemic. Maybe diabetic, not 100% sure and won'tknow till I'mback off the steroids. My cortisol levels are also low and they have no idea why, so further investigations into my bloods and will have another meeting/phone call next week.

Its just one thing after another with this cancer. The good thing is I'm still trying to manage a walk in some mornings with mum and watching what I'm eating so starting to loose the weight I'd gained over the past 8 months and building up the muscle tone I'd lost.

07/11/2025

My dad finally made it up here from Newcastle. We only got a few days with him, but I am so very greatful for the time we spent together. The kids were also so happy to see him 🤩

03/11/2025

How strange is life. I'm sitting here waiting for Elara to finish dance yet yesterday I was unwell and in hospital with AF. Mum life just continues even when I'm fighting to stay alive 🤣

02/11/2025

Finally back into sinus rhythm, I feel soooo much better, wasn't the nicest feeling sitting in AF for so long. They still want me to stay but the doctors have just discussed the option of going home on beta blockers and following up over the coming weeks. So just another thing to add to my list of s**t thats wrong with me. I have Atrial Fibrillation. Wanted to be just like my mumma ;)
Being in hospital is traumatising so I'm glad they have listened to me when I said I'd rather go home if safe to do so.

01/11/2025

Not where I want to spend my day. Currently in AFIB. Was in rapid AFIB, even though still very irregular, heart rate now sitting between 120 and 160. Fun times!

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