Amazing Grace

25/05/2025

Hepatoblastoma- a rare, aggressive liver cancer and our girl had Stage 4. We were told it was "one in a million." An expression we’d heard all our lives—but suddenly, it wasn’t quirky or charming. It was devastating.

That moment took so much from us—peace, certainty, time, and parts of her childhood we’ll never get back.
But what it didn’t take was Grace.

She fought with more courage than we thought possible in someone so small. And she survived.

Today, on Hepatoblastoma Awareness Day, our hearts are with those still fighting and those who have walked this painful path. We know what you’re feeling—the fear, the anger, the exhaustion, the hope.

Childhood cancer is like a wild animal—scary and unpredictable—but our children are fierce. And so are the families who walk beside them.
To the warriors, the survivors, the angels, and the families we honour you today and always.

17/03/2025

08/02/2025

Our little miracle 💛

25/01/2025

It’s hard to believe how much time has passed. This year, we almost let the anniversary slip by unnoticed. The 21st came and went, and we couldn’t figure out why something felt off. Then, we realized—it had been five years since Grace was diagnosed.

Five years.

Today, on the 5th anniversary of her christening, we had dinner with friends, and we watched Grace run around and play with her little friend, full of laughter and life. There’s something so surreal about seeing her so healthy and happy when just a few years ago, we didn’t know if we’d get this moment.

We are lucky, so incredibly lucky. We know it, and we never forget it. We’ve walked a tough road, and while we’ll never erase the fear and uncertainty, seeing her full of life tonight was a reminder of how far we've come.

To all the families still fighting, and to the ones who have lost their warriors, our hearts are with you. Childhood cancer is a battle no one should have to face, but we stand in awe of the strength of those who do. Grace’s journey is proof of that strength, and we’ll forever cherish every second we have with her.

We are beyond blessed.

01/01/2025

Happy New Year from our families to yours! May this year bring boundless opportunities, ignite passions and may the new year bring health and happiness ❤️

18/12/2024

We have had such a whirlwind month! We almost don’t know where to begin. We now have a six year old- how did that happen ❤️ We went to the pet farm and had a blast then Grace went horse riding as her birthday present from us and fell in love with horses. We also had Grace’s oncology review- her afp is 2! Can you believe it’s still so low?? How are we so lucky! Not only that we were informed because Grace will be off treatment 4 years in February so she only needs one more blood test in June 2025 and then a visit in Feb 2026 when she is 5 years off treatment and then that’s it! Done and dusted two more visits to the oncology clinic and then it’s off to late effects for monitoring. It is the best Christmas gift we could have ever gotten. We are flying high into 2025! Happy Christmas 🎄

22/09/2024

Yesterday we celebrated Grace being 3 years in remission. What an utter privilege it is to see her grow and flourish each day. We are seeing her achieve things we at one point could only dream of. All she wanted was a unicorn cake and to play with her friends. So that’s what she got. It was wonderful to see her laughing and squealing with her friends. Thank you Wayne and the team Cake Mania in Northmead for the hard work that went into this allergy free amazing cake.

12/09/2024

In honor of Childhood Cancer Awareness Month, we are sharing this picture of hope and resilience. Despite the challenges, there’s always something to do at the oncology clinic, like making this crown, which was one of Grace’s favorites. We still have it today. We had just received the devastating news that her cancer had spread even further in her lungs and the treatment wasn’t working. She was removed from standard protocols and had to follow a personalised plan. The surgeon needed to operate as soon as she was strong enough. Although we were terrified, Grace faced everything with incredible courage. Today, September is a time raise awareness of those who are fighting and those who have fought and for Grace herself. We remember her struggles, honor her strength, and in a week, celebrate her third remission Birthday 🎂🎉🎁 We know how lucky we are and the miracle that was granted to us but more research around why this happens is needed. For anyone looking for more information please visit https://www.ccia.org.au/

08/09/2024

September is Childhood Cancer Awareness Month, a time when we honor the strength and resilience of children battling cancer and their families. This month, as we go gold, we reflect on the journey of our beloved Grace and feel an immense gratitude that she is nearly 3 years through the other side. Her courage and the support of everyone around her have been a testament to the power of hope and community. As we raise awareness and advocate for a future free from cancer, let's also cherish every moment of grace and resilience we see in the faces of those who continue to fight. Thank you to everyone who has been a part of this journey—your love and support mean the world.

01/09/2024

Adam Happy Father's Day!
We just wanted to take a moment to celebrate you! I’m so sorry it’s a day late but we were having so much fun yesterday posting this slipped my mind. Your dedication to being an amazing dad shines through from fun trips to the zoo, supporting her through school interviews or like yesterday- pony rides you're there with a smile. Your love and involvement mean the world to us.
Thank you for trying to make every day special for Grace. We hope you loved yesterday making memories for a lifetime through all the squeals and giggles ❤️

We never for a second take for granted we get to celebrate days like yesterday. To everyone doing it tough our hearts are with you 💛⭐️💛

19/06/2024

Happy Birthday Adam 🎂 We hope you had the most amazing birthday with the sweet cherry on the top being Grace’s oncology review being super successful with an AFP of 2 ❤️❤️

26/05/2024

Yesterday was Hepatoblastoma awareness day and we never really know what to write or say to promote awareness. Hepatoblastoma is a form of liver cancer that only one in a million children get. It is usually found in boys, premature babies, babies with low birth weight or children that have Beckwith-Wiedemann syndrome. Grace had none of this “common factors” and is obviously not born a boy. We have read studies that say it doesn’t usually metastasise and survival rate depends on this. Grace’s had metastasised all throughout her torso so she had a rare form of a rare cancer. As treatment went on she slipped down into a less than 5% chance of survival but here we are four years later 2 and half years into remission. Yesterday we went to the park with friends, baked cupcakes and had fun going out for chippies. We pinch ourselves a little harder on these days because we cannot believe how lucky we are that Grace is here. It catches your breath in the most unexpected ways. Cancer does not discriminate it turns your whole life upside down, shakes you to your core and takes everything from you. We don’t know why Grace survived while so many around her did not. No one knows we just take one step at a time one foot in front of the other and pray every night it never comes back.