Haylee's Page

Haylee's Page haylee's progress
Alexis's progress
Nephrotic Syndrome info
Alpers Syndrome info
inspirattional posts

haylee who is 8 years old was diagonised with nephrotic syndrome in jan 2012,she has been on a high dose of steriods and other medicines.this page was started by her big sister krisi to inform people about kidney disease and to keep you updated on her progress.we wish all the best to all ns kids and their families hugs and kisses to you all

19/09/2024

Hello to everyone I know it's been awhile but the 2 ppl who run this page have had a very busy time. I thought I would give a beautiful update to haylees story. She got married. This is a day my mother and didn't know we would get to see with how sick she used to be but she now has been in remission for quite a few years. She was a beautiful bride and her groom looked handsome. They are very happy together. Much love guys, Big sis xx

24/12/2020
Today is a devastating day for me and my family ,we are saying goodbye to my beautiful Granddaughter who at 14 months ol...
02/06/2020

Today is a devastating day for me and my family ,we are saying goodbye to my beautiful Granddaughter who at 14 months old passed away
For Alexis , can you hug someone , your child , a parent or friend
We want everyone to feel the love she left us

Alexis looking like a princess 💚
22/03/2020

Alexis looking like a princess 💚

Haylee having cuddles with Alexis 💚
15/03/2020

Haylee having cuddles with Alexis 💚

Alexis has been transferred to Taree hospital safely , now the hospital staff and Krisi will settle her into her room Pl...
11/03/2020

Alexis has been transferred to Taree hospital safely , now the hospital staff and Krisi will settle her into her room
Please remember that NO visitors are allowed without confirmation from Krisi
Thank you all for your love and support
Keep fighting baby girl 💚

Our beautiful Alexis today 💚
10/03/2020

Our beautiful Alexis today 💚

10/03/2020

This a post i have delayed writing but has to be done. Due to circumstances i am no longer pregnant it was a hard decision to make and one myself and pete do not want to discuss so please dont ask. Alexis diagnosis is TERMINAL and every day is a blessing we are hoping to have another year with our precious girl if circumstances allow. This year will be precious and we are gonna spend every minute making her and our other 2 kids lives as memorable as possible.

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Sydney, NSW

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