Interaction - Prader-Willi Syndrome

Interaction - Prader-Willi Syndrome Interaction offers best-practice supports for people with PWS. Prader-Willi Syndrome (PWS) is a genetic disorder.

People with Prader-Willi Syndrome experience problems related to their hypothalamus which overseas respiration, body temperature, sleep, appetite, activity, regulation of emotions and the endocrine system. Individuals with Prader-Willi Syndrome live with poor muscle tone, slow metabolisms and an excessive desire to eat due to a lack of satiety (feeling full). This leads to obesity, low activity le

vels and under developed social and sexual maturity. To minimise the stress and anxiety to both individuals with Prader-Willi Syndrome and their families, and to maintain a level of health and well-being, Prader-Willi people require a specific home environment that promotes a stage and busy activity schedule with an emphasis on fairness, well established house rules and equitable division of resources. In 1992 INTERACTION established Australia's first accommodation model for adults with Prader-Willi Syndrome designed to meet these specific criteria. INTERACTION'S Prader-Willi accommodation provides individuals with Prader-Willi the opportunity to participate in the social, economic and cultural life of the wider community, while providing a safe, happy, healthy and structured environment that encourages broader behavioural benefits for all residents. The success of INTERACTION's residential model was recognised by the International Prader-Willi Syndrome Organisation (http://www.ipwso.org) as 'BEST PRACTICE' for individuals with Prader-Willi Syndrome.

20 years on and INTERACTION's commitment to important research into Prader-Willi Syndrome continues. We are participating in studies with the Garven Institute (http://www.garvan.org.au) and the Brain & Mind Institute (http://sydney.edu.au/bmri/) to develop, refine and improve the current service and accommodation models, staving always to provide ever better, person centred supported programs. Our emphasis will always be on health, happiness and a higher standard quality of life for people with Prader-Willi Syndrome. INTERACTION specialises in supporting people with Prader-Willi Syndrome. For more information please visit https://interactionservices.org

Interaction Disability Services is proud to be a sponsor of the 6th Asia Pacific Prader-Willi Syndrome conference hosted...
31/08/2024

Interaction Disability Services is proud to be a sponsor of the 6th Asia Pacific Prader-Willi Syndrome conference hosted in Sydney.

The conference brought together researchers, clinicians, allied health professionals, families and service providers from across the Asia Pacific PWS community to improve the health, wellbeing and supports for people living with Prader-Willi syndrome.

The conference showcased the latest in PWS research, support and care to equip and inform families, and those working in a support role to connect, learn and problem solve together.

Our incredible team attended the conference to advocate for the PWS community and discuss important topics such as positive behavioural support and restrictive practices.

31/05/2024

May is PWS Awareness Month where participants around the world wear ORANGE to come together as a community to help educate the world on PWS and our need for continued research to find treatments! Interaction participant Daniel decided to wear his orange Fitbit and show us his favorite fruit – a mandarin.

Daniel tells us a little bit about what it is like living with PWS and what his biggest achievement is so far.

We are so proud of you, Daniel! 😀

We are thrilled to share that Jack has been announced as Interaction's Goal Kicker of the Month! Jack was nominated for ...
02/05/2024

We are thrilled to share that Jack has been announced as Interaction's Goal Kicker of the Month!

Jack was nominated for his involvement in developing Interaction's Easy Read policies. Jack's insight and feedback has allowed us to create fit-for-purpose policies for Interaction participants. He has been incredibly helpful and enthusiastic throughout the process.

Thank you for your support, Jack - and congratulations on your win!

Interaction will soon be running a 2-hour training program to support participants in accessing the internet safely. Top...
18/04/2024

Interaction will soon be running a 2-hour training program to support participants in accessing the internet safely. Topics such as cyberbullying, scam prevention, and sharing personal private information will be covered. The course is interactive with various mediums used to keep the topics interesting.

The course can be self-funded or covered by funding depending on your NDIS Plan.

Spaces are limited. Click on the link to register your interest --> https://rb.gy/1a3982

Interaction's CEO Brett Thompson recently visited long-term employee Richard at one of our accommodation sites in recogn...
14/04/2024

Interaction's CEO Brett Thompson recently visited long-term employee Richard at one of our accommodation sites in recognition of achieving 20 years of service with Interaction.

Richard shared that he has worked with the same participants for the majority of his time with Interaction and enjoys being able to spend time with them.

Congratulations Richard and thank you for your dedication to the gentlemen you support and to the organisation. This is a milestone you should be very proud of, as we are!

Congratulations Tania, from the team at Interaction! This is fantastic news for you and your team, as well as for the fu...
10/04/2024

Congratulations Tania, from the team at Interaction! This is fantastic news for you and your team, as well as for the future of people living with PWS. We can't wait to see how the trial unfolds!

🌟 Congratulations to Tania and her team at RPAH! 🌟

We are delighted to announce that our 2023 PWRFA Grant of $50,000 is awarded to A/Prof Tania Markovic and her team at the Royal Prince Alfred Hospital (RPAH), to investigate the safety of tirzepatide in individuals with PWS.

Tirzepatide is marketed by Eli Lilly as Mounjaro for diabetes, and Zepbound for obesity. It targets specific receptors in the body (GIP and GLP-1), aiding in blood sugar regulation and appetite reduction, which can lead to enhanced insulin sensitivity and weight loss.

However, individuals with PWS often encounter gastrointestinal difficulties, including severe constipation and the risk of stomach rupture. As tirzepatide influences stomach emptying, it is crucial to determine its safety for use in people with PWS.

With the support of the grant from PWRFA, A/Prof Markovic and her team will:

Gain Insight: understand gastric emptying and intestinal transit before and after tirzepatide treatment, exploring potential treatment avenues.

Ensure Safety: Monitor participants to assess tirzepatide's safety and any changes in bowel function, vital for individuals with PWS.

Explore Benefits: Investigate effects on weight, appetite, behaviour, and metabolism in individuals with PWS, building pilot data for future research.

Stay tuned to our page for updates on recruitment for this clinical trial. Join us in our mission to change lives.

Thank you to all of our donors. These are your funds at work to change life for our loved ones with PWS.

Bradley and the Easter Bunny getting in a workout at Planet Fitness over the long weekend 🐰
02/04/2024

Bradley and the Easter Bunny getting in a workout at Planet Fitness over the long weekend 🐰

Have you seen our Social Scripts? Developed specifically for people with PWS, our Social Scripts are a valuable resource...
25/03/2024

Have you seen our Social Scripts?

Developed specifically for people with PWS, our Social Scripts are a valuable resource for people with PWS and are used to explain common social situations in a suitable way that sets clear rules and expectations.

Click here to access the free Social Scripts --> https://praderwilli.com.au/social-scripts/

Social scripts are a valuable resource for people with PWS, and are used to explain common social situations in a suitable way that sets clear rules and expectations. As an educational tool, social scripts are especially useful in introducing individuals with PWS to new activities, locations, and ch...

A huge congratulations to Nathan, Interaction's Goal Kicker of the Month! Nathan was nominated for committing to his hea...
20/03/2024

A huge congratulations to Nathan, Interaction's Goal Kicker of the Month!

Nathan was nominated for committing to his health and fitness with great results. He makes friends wherever he goes and is always enthusiastic to compete with his gym mates in cardio classes.

Nathan was presented with his award by Interaction's Executive Officer. Great work, Nathan!

I grew up witnessing the challenges and the opportunities that come with navigating the disability sector alongside my s...
07/03/2024

I grew up witnessing the challenges and the opportunities that come with navigating the disability sector alongside my sister Miriam, who has Down Syndrome. She, like many other participants, wanted her own independence. It was through her journey to a group home with the support of the NDIS, that my passion to aid the sector and support others developed.

Joining the Interaction Board in 2022 was the perfect opportunity to offer my finance and business experience to an organisation that had the same vision for people like my sister. Being part of the Board and watching Interaction - a business that truly does put its participants, and its staff, at the heart of all its decisions - has been a true blessing.

To me, the theme for this year’s International Women’s Day, Count Her In: Invest in Women, Accelerate Progress, is relevant for women of all abilities. Women with disability deserve the opportunity to offer their knowledge and unique perspectives in business, the community, and to society in general. Fundamentally, International Women’s Day is about equality and inclusion. Ensuring that all women, of any ability, are equal and included in all forms of community and civic progress is an investment that will only serve to benefit us all. My hope is that women like my sister, will be afforded the same opportunities as anyone else to contribute to society without discrimination.

Rachel Riley, Interaction Director and Co-Founder & CFO of Ansarada Australia

Nathan loves to visit his family's pet bird at his parents house, they have become good friends!
05/03/2024

Nathan loves to visit his family's pet bird at his parents house, they have become good friends!

Interaction proudly sponsors the Sensory Space for the Pennant Hills Demons Junior AFL Club Kickability Team. On Saturda...
27/02/2024

Interaction proudly sponsors the Sensory Space for the Pennant Hills Demons Junior AFL Club Kickability Team.

On Saturday 10th March, the Club is hosting a Family Fun Day where everyone is invited to drop by for games, food and the opportunity to see what AFL and the Kickability team is all about. Team.

All the information you need is on the flyer below - everyone is welcome!

Address

Sydney, NSW

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

Alerts

Be the first to know and let us send you an email when Interaction - Prader-Willi Syndrome posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share