Lynch Syndrome / HNPCC Support Group

07/03/2025

Today Show (USA): Lynch Syndrome 2025

Highlighting Lynch Syndrome; surveillance and genetic testing. Excellent video for introducing the topic ⭐️⭐️⭐️⭐️

Having Lynch syndrome makes it more likely to be diagnosed at a young age with several different types of cancers, especially colorectal and uterine.

07/03/2025

Mayo Clinic
Living with Lynch Syndrome: Managing Cancer Risks
2025

People with Lynch syndrome develop colon cancer more often than those without. The Gastroenterology and Hepatology team at Mayo Clinic can help those living ...

06/03/2025

Dana-Farber Cancer Institue:

Lynch Syndrome Cancer Prevention Vaccine: What is the Latest?

Written by: Beth Dougherty
Medically Reviewed By: Ramona Lim, MD

Explore the Lynch syndrome vaccine clinical trial aimed at reducing cancer risk. Discover how it trains the immune system to fight cancer.

17/12/2024

Information about Lynch Syndrome is consistently developing and the growing statistics of Pancreatic Cancer for people with Lynch is substantial enough to place this cancer on the list. Please be informed and inform family members both those that are tested and those that have not. This knowledge could save a life. Also keep in contact with your genetic councillor with updated family cancers as this contributes to their research.

Lynch syndrome is an inherited condition due to a gene fault that increases a person’s risk of developing certain types of cancer. What is Lynch syndrome? When a person has Lynch syndrome, it means that a gene involved in repairing specific DNA errors does not work properly. As a result, DNA damag...

17/12/2024

“…Cancer Australia is inviting people to have their input on the National Framework for Genomics in Cancer Control.

The Framework is intended to:

🧬 help people benefit from cancer genetic testing and genomic treatments
🧬 help health professionals and services incorporate genomics into their care
🧬 ensure genomics is used in a safe, evidence-based and culturally appropriate way.

Cancer Australia is seeking feedback from all stakeholders, including patients, health professionals, policy makers, researchers, carers and community…”

Complete the online survey before Tuesday 24th December 2024 link below

A person’s cancer can be as unique as their fingerprint. Access to genomic profiling can identify treatments that specifically target each person’s cancer.

Cancer Australia is inviting people to have their input on the National Framework for Genomics in Cancer Control.

The Framework is intended to:

🧬 help people benefit from cancer genetic testing and genomic treatments
🧬 help health professionals and services incorporate genomics into their care
🧬 ensure genomics is used in a safe, evidence-based and culturally appropriate way.

Cancer Australia is seeking feedback from all stakeholders, including patients, health professionals, policy makers, researchers, carers and community.

Complete the online survey before Tuesday 24 December at: https://bit.ly/3Bl3vgl

17/12/2024

A great explanation.

Lynch syndrome is a hereditary condition that predisposes individuals to colorectal and other cancers. Learn more about how this syndrome can be managed.

17/12/2024

23/03/2024

Those with Lynch Syndrome are not alone. Today we share some of the organisations and social media groups that you can seek information from. Remember Knowledge empowers you.

There are Facebook Groups where discussions take place about Lynch Syndrome. These groups are not a place to seek medical advice however they are good place for support both as an active member or silent observer. Support is different for everyone. Links to these groups will appear in the comments below.
Please feel free to add any other Support Groups below in the comments

23/03/2024

Those with Lynch Syndrome are not alone. Today we share some of the organisations and social media groups that you can seek information from. Remember Knowledge empowers you.

23/03/2024

Those with Lynch Syndrome are not alone. Today we share some of the organisations and social media groups that you can seek information from. Remember Knowledge empowers you.

This International Lynch Syndrome Awareness Day (22 March), Bowel Cancer Australia is encouraging all Australians to better understand their bowel cancer family history and for all newly diagnosed patients to speak with their treating specialist about having their tumour tested for mismatch repair deficiency as a means to subsequently identify Lynch syndrome.

Lynch syndrome can affect the best choice of treatment options for bowel cancer patients, and also has preventative health and screening implications for family members.

It is the most common genetic condition that increases a person’s risk of developing bowel cancer and is caused by a change in a gene that normally functions to protect a person from getting cancer.

In families where there is a clear history of Lynch Syndrome, screening with colonoscopy every 1 to 2 years usually commences from age 25 or 5 years earlier than the youngest affected family member if they were diagnosed under 30, whichever comes first.

If you have been diagnosed with bowel cancer, ensure your treating specialist performs the test that could help determine if your cancer may have been genetically inherited.

https://bit.ly/lynch-syndrome-awareness-day

23/03/2024

Those with Lynch Syndrome are not alone. Today we share some of the organisations and social media groups that you can seek information from. Remember Knowledge empowers you.

Today is Lynch Syndrome Awareness Day.
Lynch syndrome is a genetic condition that increases a person's risk for certain cancers. It is the most common inherited cause of colorectal and endometrial cancers. People with Lynch syndrome have a defect in a gene that helps repair damaged DNA, which can lead to the development of cancerous cells. Many individuals with a Lynch mutation develop related cancers at very early ages, much younger than the general population. People with Lynch syndrome may be advised to undergo regular cancer screening tests starting at a younger age to detect cancer early, when it is most treatable.

🔵 1 in 279 people are Lynch positive

🔴 95% of them do not know it

🟡 People with Lynch Syndrome have a 50% chance of
passing the mutation on to their children

🟢 Know your family history

For further information/support, click the links below: 👇

https://www.macmillan.org.uk/.../causes.../lynch-syndrome-ls
https://lynchsyndromeireland.com/
https://www.lynch-syndrome-uk.org/


Lynch Syndrome Ireland

23/03/2024

Those with Lynch Syndrome are not alone. Today we share some of the organisations and social media groups that you can seek information from. Remember Knowledge empowers you.

Today is Lynch Syndrome Awareness Day! We're partnering with our friends at AliveAndKickn and Fight Colorectal Cancer to raise awareness for one of the most common causes of hereditary colorectal cancer.

Those diagnosed with Lynch have a 60% increased risk of developing colorectal cancer, so don't wait, talk to your doctor and see if genetic testing is right for you!

Click here to learn more: LivingWithLynch.org