27/10/2024
In what was an incredibly enlightening and informative, brave talk, deeply founded in research, was Professor Peter Smiths presentation on Chronic fatigue, myalgic encephalomyelitis and long covid. Prof is a leader and pioneer in immunology, he is a THRICE professor (yep, 3!!) and possibly the smartest person I’ve ever listened to 🤯 . The take home messages here: Chronic fatigue syndrome is now classified as a biological disease now termed Myalgic encephalomyelitis (ME) We are WeLL past labelling these chronically unwell patients as “just tired” and depressed. Is the perhaps the most gaslit, poorly validated and supported condition in health care? Often occurs post virally or other significant traumas, ME is a whole body, systemic condition effecting the GIT, brain, heart, causing symptoms such as poor exercise tolerance, pain, poor sleep, GIT symptoms, poor immunity, to name a few…. Interestingly, a rather prominent symptoms/phenomenon is an increased sensitivity to smells and sounds…. Going back to my post from Olivia regarding inflammation, what is happening here, is that due to chronic and persistent triggering of the body’s immune system , it starts to perceive otherwise innocuous things as a threat. From what we breathe in, (increase in allergies and rhinitis) to feeling easily startled and overwhelmed. Tolerance to normal life is significantly impaired…. These patients can develop significant allergies, sensitivities and intolerances and even go on to develop MCAS (mast cell activation syndrome) Think rashes, hives…. Our ANS (autonomic nervous system, “rest and digest”) is hugely impacted, leaving the body in a heightened stated of “fight and flight”, on guard, ready to run/fight/freeze…. We actually see so much inflammation in these post viral conditions such as long covid, that imaging shows swelling in the brain stem…Supporting treatment discussed included B12, mag, zinc, folate, quercetin, vitamin A, probiotics, vit C. Medically things like low dose naltrexone and some anti virals. Simple sleep, vitamin C, zinc and A showed 50% symptoms improvement in covid compared to 16% with some of the prescribed medications. So MUCH to talk about here!