Chronic UTI Australia Inc.

21/09/2025

New recurrent UTI guideline update by the American Urological Association (AUA) - Emphasises Treating People, Not Just Tests

The updated guidance reflects the growing understanding of the urinary microbiome and emphases that clinicians should no longer rely on the findings of standard urine culture or any other bacterial detection method as a substitute for clinical judgement.

Symptom resolution is now considered more important than simply eradicating bacteria. If someone doesn’t have symptoms, treatment may not be needed—even if tests are positive.

The guidelines aim to reduce confusion caused by newer, more sensitive testing methods, which sometimes detect bacteria that aren’t causing symptoms.

Guideline amendment chair, Dr. A. Lenore Ackerman, says:

“We wanted to make sure to bring that focus back to the idea that we treat patients and not tests. If patients don't have symptoms, there's no need to treat them, and if they do have symptoms, we should be focused on managing the symptoms, regardless of what our tests say.”

A. Lenore Ackerman, MD, PhD, discusses the renewed emphasis on symptom resolution over microbial eradication in the new AUA guideline for recurrent uUTI in women.

18/09/2025

𝗚𝗿𝗲𝗮𝘁 𝗽𝗿𝗼𝗴𝗿𝗲𝘀𝘀 𝗶𝗻 𝗿𝗮𝗶𝘀𝗶𝗻𝗴 𝗮𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗼𝗳 𝗨𝗧𝗜𝘀 𝗮𝘁 𝘁𝗵𝗲 𝗳𝗲𝗱𝗲𝗿𝗮𝗹 𝗹𝗲𝘃𝗲𝗹!

Yesterday, Chronic UTI Australia Inc. had a very positive and constructive online meeting with Queensland Senator Corinne Mulholland to share our concerns about the growing public health challenge of urinary tract infections (UTIs).

More meetings are scheduled in the coming weeks with MPs from Tasmania, Western Australia, South Australia and New South Wales, as well as a meeting in Canberra at the end of October.

𝗔 𝗵𝘂𝗴𝗲 𝘁𝗵𝗮𝗻𝗸 𝘆𝗼𝘂 𝘁𝗼 𝗲𝘃𝗲𝗿𝘆𝗼𝗻𝗲 𝘄𝗵𝗼 𝗵𝗮𝘀 𝘄𝗿𝗶𝘁𝘁𝗲𝗻 𝘁𝗼 𝘁𝗵𝗲𝗶𝗿 𝗹𝗼𝗰𝗮𝗹 𝗠𝗣𝘀. Your powerful letters and personal stories are making a real impact.

MPs are prioritising meetings based on the concerns raised by their constituents. If you've been thinking about writing but haven’t yet, now is the time. Your voice truly matters.

16/08/2025

✍️ Add your voice to our open letter to Mark Butler MP.

We’re calling on the Federal Minister for Health to:

- Recognise chronic UTI as a real condition
- Review outdated testing and treatment guidelines
- Educate health professionals on best-practice care
- Fund research into better diagnostics and treatments
- Establish specialist clinics

Sign the letter now 👉 www.chronicutiaustralia.org.au/take-action

Please help us spread the word and share this post to encourage others to sign.

13/08/2025

11/08/2025

Monica’s 50-Year Fight with Chronic UTI

Monica has battled UTIs since childhood, enduring over five decades of pain, misdiagnosis, and medical dismissal. She was told it was “all in her head” until she finally found help through a UK clinic in 2020.

Her story represents thousands of Australians living with chronic UTI—unseen and unheard due to outdated tests and a lack of recognition.

It’s time for change:
- Recognition of chronic UTI as a real and serious condition
- Better, more accurate testing
- Improved treatment options
- Updated clinical guidelines to stop the dismissal of patients

💌 Sign the open letter to the Federal Health Minister
📢 Write to your MP
✊ Chronic UTI shouldn’t be a life sentence. We deserve answers.

Join the campaign: https://www.chronicutiaustralia.org.au/take-action

09/08/2025

Jenny’s Story: The Emotional Toll of Chronic UTI

Jenny shares what it’s like to live with chronic UTI—not just the physical symptoms, but the deep emotional impact and isolation of having a condition that’s misunderstood and often dismissed in Australia.

Her story is a moving reminder that we need urgent change.

Support the call for:
- Recognition of chronic UTI as a serious condition
- Better testing and treatment
- Updated medical guidelines

💌 Sign the open letter to the Federal Health Minister
📢 Write to your MP
✊ Chronic UTI shouldn’t be a life sentence. We deserve answers.

Join the campaign: https://www.chronicutiaustralia.org.au/take-action

07/08/2025

Annie’s Story: Chronic UTI is Real and Life-Altering

After years of UTIs and kidney issues, Annie was repeatedly dismissed—until she discovered the truth: an embedded infection not recognised by most doctors in Australia.

Her story exposes the hidden struggle of chronic UTI and why we urgently need better testing, treatment, and recognition.

✊ Help us push for change.
💌 Sign the open letter & write to your MP.
🔗 Join the campaign: https://www.chronicutiaustralia.org.au/take-action

05/08/2025

“It never went away.” Amy’s story of chronic UTI.

After the birth of her daughter, Amy developed a UTI that never cleared. For nearly five years, she was misdiagnosed—left housebound, unable to work, drive, or care for her child.

Her story is powerful. But she’s not alone. Thousands of Australians are suffering, dismissed by outdated tests and a medical system that still doesn’t fully recognise chronic UTI.

We’re calling for:
- Recognition of chronic UTI as a real and serious condition
- Better, more accurate testing
- Improved treatment options
- Updated clinical guidelines to stop the dismissal of patients

💌 Sign the open letter to the Federal Health Minister
📢 Write to your MP
✊ Chronic UTI shouldn’t be a life sentence. We deserve answers.

Join the campaign: https://www.chronicutiaustralia.org.au/take-action

04/08/2025

There have been no game-changing treatments for urinary tract infections (UTIs) in a century.

We need urgent and serious investment in UTI research to develop fast, safe, effective, and affordable alternatives to antibiotics.

Enough waiting — break the 100-year cycle and make UTI a health priority in Australia now!

Join in demanding real funding for better UTI diagnosis and treatment.

Find out how to take action 👉 https://www.chronicutiaustralia.org.au/take-action/

03/08/2025

The 𝗦𝗲𝗻𝘁𝗲𝗻𝗰𝗲𝗱 𝗯𝘆 𝗨𝗧𝗜 photo movement gives faces—and voices—to those fighting this hidden, life-altering battle, like Jim.

These aren’t just people pics. They’re protest photos. Because when the medical system locks you out, you have to break in.

🧡 Sentenced by UTI is part of our 𝗧𝗮𝗸𝗲 𝗔𝗰𝘁𝗶𝗼𝗻 𝗰𝗮𝗺𝗽𝗮𝗶𝗴𝗻, designed to push for real change—more research, better care, and recognition for those living with chronic UTI.

Be part of it:
1. Take a photo holding a sign with your “UTI sentence” (e.g. “5 years,” “misdiagnosed,” “daily pain”).
2. Share it on social with hashtags: and tag (or email your photo to us to share if you prefer)

𝗧𝗵𝗶𝘀 𝗶𝘀 𝗺𝗼𝗿𝗲 𝘁𝗵𝗮𝗻 𝗮 𝗽𝗵𝗼𝘁𝗼. 𝗜𝘁’𝘀 𝗮 𝗺𝗼𝘃𝗲𝗺𝗲𝗻𝘁. 𝗕𝗲 𝘀𝗲𝗲𝗻. 𝗕𝗲 𝗵𝗲𝗮𝗿𝗱
Join the campaign today—because your experience matters, and it’s time the world knew it.

31/07/2025

The 𝗦𝗲𝗻𝘁𝗲𝗻𝗰𝗲𝗱 𝗯𝘆 𝗨𝗧𝗜 photo movement gives faces—and voices—to those fighting this hidden, life-altering battle, like Marilyn.

These aren’t just people pics. They’re protest photos. Because when the medical system locks you out, you have to break in.

🧡 Sentenced by UTI is part of our 𝗧𝗮𝗸𝗲 𝗔𝗰𝘁𝗶𝗼𝗻 𝗰𝗮𝗺𝗽𝗮𝗶𝗴𝗻, designed to push for real change—more research, better care, and recognition for those living with chronic UTI.

Be part of it:
1. Take a photo holding a sign with your “UTI sentence” (e.g. “5 years,” “misdiagnosed,” “daily pain”).
2. Share it on social with hashtags: and tag (or email your photo to us to share if you prefer)

𝗧𝗵𝗶𝘀 𝗶𝘀 𝗺𝗼𝗿𝗲 𝘁𝗵𝗮𝗻 𝗮 𝗽𝗵𝗼𝘁𝗼. 𝗜𝘁’𝘀 𝗮 𝗺𝗼𝘃𝗲𝗺𝗲𝗻𝘁. 𝗕𝗲 𝘀𝗲𝗲𝗻. 𝗕𝗲 𝗵𝗲𝗮𝗿𝗱

Join the campaign today—because your experience matters, and it’s time the world knew it.

30/07/2025

The 𝗦𝗲𝗻𝘁𝗲𝗻𝗰𝗲𝗱 𝗯𝘆 𝗨𝗧𝗜 photo movement gives faces—and voices—to those fighting this hidden, life-altering battle - like Rachel.

These aren’t just people pics. They’re protest photos. Because when the medical system locks you out, you have to break in.

🧡 Sentenced by UTI is part of our 𝗧𝗮𝗸𝗲 𝗔𝗰𝘁𝗶𝗼𝗻 𝗰𝗮𝗺𝗽𝗮𝗶𝗴𝗻, designed to push for real change—more research, better care, and recognition for those living with chronic UTI.

Be part of it:
1. Take a photo holding a sign with your “UTI sentence” (e.g. “5 years,” “misdiagnosed,” “daily pain”).
2. Share it on social with hashtags: and tag (or email your photo to us to share if you prefer)

𝗧𝗵𝗶𝘀 𝗶𝘀 𝗺𝗼𝗿𝗲 𝘁𝗵𝗮𝗻 𝗮 𝗽𝗵𝗼𝘁𝗼. 𝗜𝘁’𝘀 𝗮 𝗺𝗼𝘃𝗲𝗺𝗲𝗻𝘁. 𝗕𝗲 𝘀𝗲𝗲𝗻. 𝗕𝗲 𝗵𝗲𝗮𝗿𝗱
Join the campaign today—because your experience matters, and it’s time the world knew it.