CRPS Awareness - The Purple Bucket Foundation Inc.

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CRPS Awareness - The Purple Bucket Foundation Inc. Established in 2011, we are Australia's leading charity committed to raising awareness about Complex Regional Pain Syndrome (CRPS).

We provide education, resources, and support to individuals living with CRPS and other chronic pain conditions. Established in 2011, we are the leading registered charity in Australia committed to raising awareness about Complex Regional Pain Syndrome (CRPS). We provide education, resources, and support to individuals living with CRPS and other chronic pain conditions, as well as support their fri

ends and family. Through dedicated research initiatives and advocacy efforts, we strive to improve the quality of life for those affected by these challenging conditions. Join us in our journey to make a difference in the lives of those battling chronic pain. CRPS is a chronic physical, neuro-inflammatory disorder, occurring when the immune and nervous systems malfunction as they respond to traumatic tissue damage, often following a nerve injury, a musculoskeletal injury, immobilization or even surgery, causing the nerves to misfire and sending constant pain signals to the brain. While early diagnosis and treatment offer the highest possibility of remission, there is no single diagnostic tool for CRPS. Doctors and specialists must look at the patient’s history. By running tests and examinations, they will rule out all other possible conditions before reaching a final diagnosis. A CRPS pain flare is the most intense pain known to man, scoring higher than childbirth and traumatic amputation on the McGill pain scale. The McGill pain scale was developed in the 1970s and is widely used throughout the world. The recognition of pain as a subjective and individual experience led to its development. With CRPS presenting a variety of symptoms that can present so differently for each patient, and still being barely heard of and little understood, developing a good doctor patient relationship is particularly important. Compiling a treatment plan to suit the individual patient requires input from the General Practitioner, Physiotherapist, Occupational Therapist, Neurologist, etc., and the patient themselves. There is presently no cure for CRPS. The key symptom is prolonged pain that may be constant and, in some people, extremely uncomfortable or severe. The pain may feel like a burning or “pins and needles” sensation, or as if someone is squeezing the affected limb. The pain may spread to include the entire arm or leg, even though the precipitating injury might have been only to a finger or toe. Pain can sometimes travel to the opposite extremity. There is often increased sensitivity in the affected area, such that even light touch or contact is painful (called allodynia). People with CRPS also experience constant or intermittent changes in temperature, skin colour, and swelling of the affected limb. This is due to abnormal micro-circulation caused by damage to the nerves controlling blood flow and temperature. An affected arm or leg may feel warmer or cooler compared to the opposite limb. The skin on the affected limb may change colour, becoming blotchy, blue, purple, pale, or red.

We are here if you need help!
04/07/2025

We are here if you need help!

Happy International Joke Day. Drop your favourite (PG) below 😂😂😂
01/07/2025

Happy International Joke Day. Drop your favourite (PG) below 😂😂😂

Our Junior Ambassador Cooper Fysh Lur discussing the importance of physio 🧡💜
22/06/2025

Our Junior Ambassador Cooper Fysh Lur discussing the importance of physio 🧡💜

💜 CRPS Peer Support – Perth Locals!Hey Perth fam!Do you or someone you love live with Complex Regional Pain Syndrome (CR...
13/06/2025

💜 CRPS Peer Support – Perth Locals!

Hey Perth fam!

Do you or someone you love live with Complex Regional Pain Syndrome (CRPS)?

Maybe you're caring for a child or teen with CRPS? You’re not alone—and we’d love to connect!

Advocacy champion Melinda and Junior Warrior Cooper are in Perth and keen to help set up local peer groups for anyone impacted by CRPS. It's all about creating a safe space to share, chat, and support each other through the ups and downs.

As part of a grassroots initiative with CRPS Awareness – The Purple Bucket Foundation, we're working to build stronger local communities of support across Australia—and Perth is next!

If you're in the area and interested, drop us a message or tag someone who might be—we’d love to hear from you 💜

Email mel@tpbf.org.au

Welcome and Thank You!
06/06/2025

Welcome and Thank You!

We are proud to support Chronic Pain Australia and the launch of the 2025 National Pain Survey.This important initiative...
28/05/2025

We are proud to support Chronic Pain Australia and the launch of the 2025 National Pain Survey.
This important initiative gives people living with chronic pain the chance to be heard.
Their voices will shape advocacy, inform policymakers, and help improve access to pain management services.

👉 Take the survey now: https://redcap.hmri.org.au/surveys/?s=AEM7AWMMN4KE7RTY

And by awesome we mean your version of awesome... we never ever want you to compare yourself to anyone else. This is you...
26/05/2025

And by awesome we mean your version of awesome... we never ever want you to compare yourself to anyone else. This is your own journey! Being awesome will look absolutely differently to everyone 💜🧡💜🧡

If you like playing cards games but have hand pain there are some devices that can assist you. 1 - Automated Card Shuffl...
25/05/2025

If you like playing cards games but have hand pain there are some devices that can assist you.

1 - Automated Card Shufflers. These can be manually wound one, to battery operated to USB plugged in. Some even deal for you. Fantastic if you struggle (like me) holding the weight of a pack of cards or shuffling without dropping them.

2 - Playing Card Holders. From something that holds a small hand to one that can hold many. These come in many sizes, colours and can stand alone making card playing a one handed game and allowing hands to rest between turns.

To find something that suits your needs have a search as there are so many products on the market. Card games don't need to be given up because of chronic pain.

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The Purple Bucket Foundation Inc. is an Australian charity and not for profit organisation, seeking to raise awareness for those living with Complex Regional Pain Syndrome (CRPS) and other Chronic Pain conditions as well as support for their families and others.

CRPS is a chronic physical, neuro-inflammatory disorder, occurring when the immune and nervous systems malfunction as they respond to traumatic tissue damage, often following a nerve injury, a musculoskeletal injury, immobilization or even surgery, causing the nerves to misfire and sending constant pain signals to the brain. While early diagnosis and treatment offer the highest possibility of remission, there is no single diagnostic tool for CRPS. Doctors and specialists must look at the patient’s history. By running tests and examinations, they will rule out all other possible conditions before reaching a final diagnosis.

A CRPS pain flare is the most intense pain known to man, scoring higher than childbirth and traumatic amputation on the McGill pain scale. The McGill pain scale was developed in the 1970s and is widely used throughout the world. The recognition of pain as a subjective and individual experience led to its development. With CRPS presenting a variety of symptoms that can present so differently for each patient, and still being barely heard of and little understood, developing a good doctor patient relationship is particularly important. Compiling a treatment plan to suit the individual patient requires input from the General Practitioner, Physiotherapist, Occupational Therapist, Neurologist, etc., and the patient themselves.

There is presently no cure for CRPS.