Epilepsy Queensland

Epilepsy Queensland For over 50 years, Epilepsy Queensland has been the beacon of hope for people living with, and impacted by epilepsy.

We envision:

An individual understood and supported to live life well
A community aware, removing barriers and in search of a cure
An organisation financially strong, ready to deliver and measure impact

Seizures can come with many different presentations, often mistaken for tics or other strange behaviours.Depending on wh...
27/09/2025

Seizures can come with many different presentations, often mistaken for tics or other strange behaviours.

Depending on where the electrical activity occurs in your brain, seizures can impact movement, vision, taste, memory and even smell.

Were there any particular behaviours or actions you exhibited that were explained once you received your epilepsy diagnosis?

Feel free to share your experience in the comments below, and spread awareness of what epilepsy can look like!

25/09/2025

AFL legend, Brett Ratten, is joining Walk for Epilepsy this October - not as a footy figure, but as a dad walking for his child with epilepsy.

Who will you walk for?

Join Brett this October and register at bit.ly/EQ_W4E

While around 70% of people with epilepsy are able to control their seizures with medication, it's not always an easy roa...
23/09/2025

While around 70% of people with epilepsy are able to control their seizures with medication, it's not always an easy road to get there.

Many people with epilepsy need to trial various medication options and dosages to find the right balance between seizure control and other side effects that may occur from the medication.

How long did it take you to find the right medication to reduce your seizures? Let us know in the comments ๐Ÿ‘‡

21/09/2025

Walk for Epilepsy means the world to our ambassador Adrian, who lives with epilepsy every day.

When you register, youโ€™re not just supporting a cause - youโ€™re standing beside real people like Adrian who face the unpredictability of epilepsy head-on.

Join Adrian this October and register at bit.ly/EQ_W4E

Only TWO days left until our special FREE webinar edition of Thinking Outside the Box, 'Why Neuro Matters: A Symposium o...
15/09/2025

Only TWO days left until our special FREE webinar edition of Thinking Outside the Box, 'Why Neuro Matters: A Symposium on the Future of Neurological Care' - have you got your tickets yet?

This free webinar will be available to livestream across the country, featuring keynotes from Professor Patrick Kwan, Head of the Epilepsy Clinic at Alfred Health, and Chris Dougherty, Independent Chair of the Neurological Alliance of Queensland and former Epilepsy Queensland CEO.

Get the latest insight on advances in treatment, advocacy and what these developments will mean for the 1 in 4 Queenslanders living with a neurological condition.

We hope you will join us from 6:00pm on Wednesday, 17 September for this exciting free webinar.

Register to attend virtually here: https://events.humanitix.com/why-neuro-matters

๐Ÿ“ฃ Emerald, Roma and Townsville - it's your turn for a Community Connection event!Navigating an epilepsy diagnosis can be...
14/09/2025

๐Ÿ“ฃ Emerald, Roma and Townsville - it's your turn for a Community Connection event!

Navigating an epilepsy diagnosis can be overwhelming and isolating. In times like these, it helps to talk with others who truly understand what you're going through because they're doing it, too.

Connect with others living with epilepsy in your local area at our FREE Community Connection events coming up in October:

๐Ÿ“ Emerald | 2nd October - https://bit.ly/EQ_EMD1025
๐Ÿ“ Roma | 15th October - https://bit.ly/EQ_ROM1025
๐Ÿ“ Townsville | 22nd October - https://bit.ly/EQ_TVL1025

Free Wills Fortnight is almost over! Have you claimed yours yet?Thanks to Safewill, you can write your Will for free, in...
12/09/2025

Free Wills Fortnight is almost over! Have you claimed yours yet?

Thanks to Safewill, you can write your Will for free, in as little as 20 minutes with their easy-to-use online platform.

It's a simple way you can ensure your family and your legacy will be protected in the future. You can also leave a Gift in your Will to Epilepsy Queensland or another charity of your choosing, ensuring the causes that are close to your heart are able to continue to give back to your community.

This offer ends September 15, so claim your FREE Will today: safewill.com/epilepsyqld

The countdown to Brisbane's biggest fun run has begun and we are SUPER excited to be a part of Bridge to Brisbane again ...
10/09/2025

The countdown to Brisbane's biggest fun run has begun and we are SUPER excited to be a part of Bridge to Brisbane again this year!

On Sunday, Team Epilepsy Queensland will in support of the 50,000 Queenslanders living with epilepsy and those who care for them.

The MacDonald family will be part of our team, running for their son, Gunner, and all the other kids like him who've been diagnosed with epilepsy.

"I came across Epilepsy Queensland on social media at a time when Gunner was just getting diagnosed," recalls Gunner's mum, Paris. "I had no idea about epilepsy and I remember reaching out and felt so supported."

"The most important thing we've learned is to live in the moment, especially when he is seizure free as we don't know what tomorrow brings."

Paris, Dean and Gunner can't wait to join Team Epilepsy Queensland on Sunday, 14 September for the Bridge to Brisbane!

If you'd like to support Team Epilepsy Queensland, you can donate directly to our Bridge to Brisbane Charity Page here: https://b2bepilepsyqld.gofundraise.com.au/

Gunner Macdonald

Whether youโ€™re flying solo for some mindful miles or rallying your mates, family, school or workplace to walk as a team ...
08/09/2025

Whether youโ€™re flying solo for some mindful miles or rallying your mates, family, school or workplace to walk as a team - every step helps start important conversations about epilepsy.

This yearโ€™s theme is 'Walk and Talk' because raising awareness starts with simply showing up, speaking up, and moving forward - together or on your own ๐Ÿ’œ

Walk for the 1 in 25 Australians diagnosed with epilepsy ๐Ÿšถ Talk to create change and break down the stigma ๐Ÿ’ฌ

Register now at bit.ly/EQ_W4E

Did you know, around 60% of Australians don't have a legally-binding Will? If you want to ensure your family is protecte...
05/09/2025

Did you know, around 60% of Australians don't have a legally-binding Will?

If you want to ensure your family is protected in the future by writing a Will, but aren't sure where to start, Safewill's easy-to-use online platform might be perfect for you.

How does it work?
1. Follow the step-by-step guide to write your Will (it can take as little as 20 minutes!)
2. Submit your Will to be reviewed by Safewill Legal, Safewill's Australian-based affiliate law firm, to ensure everything is in order so your peace of mind is guaranteed
3. Once it's reviewed, you can print, sign, and store your Will in a safe place.

It's that simple.

Make sure to claim your FREE Will before 15 September and if you choose, leave a Gift to Epilepsy Queensland to ensure our services can remain available for Queenslanders impacted by epilepsy well into the future.

Get started today: https://safewill.com/epilepsyqld

There are only a couple of days left to check out 'Tiny Strokes, Big Meaning' - Brendon Jones' debut art exhibition at G...
04/09/2025

There are only a couple of days left to check out 'Tiny Strokes, Big Meaning' - Brendon Jones' debut art exhibition at Gallery 4017.

Our very own Leonie Hogarth was in attendance on opening night to witness the colourful pieces in person, and was blown away by his work.

We want to especially acknowledge Brendon's generosity in donating all profits from any artworks sold to our organisation and a special thank you to Councillor Jared Cassidy for also attending the opening night.

You have until this Saturday to check out the exhibition before it closes!

๐Ÿ“ Gallery 4017, Artrageous Arts, Deagon
๐Ÿ•“ Tues - Sat, 10am - 3pm
๐Ÿ—“๏ธ Exhibition closes 6 September

Introducing our keynote speakers for the next special edition instalment of Thinking Outside the Box... Professor Patric...
03/09/2025

Introducing our keynote speakers for the next special edition instalment of Thinking Outside the Box... Professor Patrick Kwan and Chris Dougherty!

Professor Patrick Kwan is a global leader in epilepsy care and research, pioneering the integration of AI into clinical treatment. He will share insights from the groundbreaking PERSONAL trial, among other emerging therapeutic approaches, and discuss why we should listen to our neurons more.

Former Chief Executive of Epilepsy Queensland and key contributor of the Neuro Matters Report, Chris Dougherty brings a wealth of insight into the national neurological landscape. He will speak to the report's findings and subsequent developments - including the Neurological Alliance of Queensland's priorities, and an update on the Queensland Government's $10.5m commitment to neurological health.

Watch their presentations for FREE at this virtual webinar event, available to stream across the country.

Why Neuro Matters: A Symposium on the Future of Neurological Care
๐Ÿ—“๏ธ Wednesday, 17 September 2025
๐Ÿ•• From 6:00pm
๐Ÿ”— Register here:

Join Epilepsy Queensland for a special presentation of our Thinking Outside the Box series, "Why Neuro Matters: A Symposium for the Future of Neurological Care"

Address

Level 2, Gabba Towers, 411 Vulture Street
Woolloongabba, QLD
4102

Opening Hours

Monday 9am - 4pm
Tuesday 9am - 4pm
Wednesday 9am - 4pm
Thursday 9am - 4pm
Friday 9am - 4pm

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Welcome to Epilepsy Queensland

Epilepsy Queensland is dedicated to optimising the quality of life of people with epilepsy and their carers/families through information, support, counselling, education, training, NDIS support, advocacy and research. We also offer in-service training and workshops for health, disability and education organisations so they are better placed to help people with epilepsy.

We aim to increase public awareness and raise community understanding of epilepsy. Epilepsy occurs in one in 50 people and yet there are many misconceptions. Our National campaign to raise awareness occurs in March each year culminating in Purple Day on 26 March. On our page throughout the year we share our members epilepsy stories, information, epilepsy facts and news to help break down the misconceptions and bring epilepsy out of the shadows.

Rugby League legend Wally Lewis is our Patron. Following the successful release of his book โ€˜Out of the Shadowsโ€™ detailing his journey with epilepsy, Wally became a great ambassador for Epilepsy Queensland and an advocate for people living with epilepsy.