Digestive Cancers Europe - for Patients

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Digestive Cancers Europe - for Patients

DiCE is a European non-profit umbrella organisation of nearly 40 national Member Organisations across Europe.
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31/10/2025

The pancreas plays a vital role in helping the body digest food and regulate blood sugar levels through hormones such as insulin.

Pancreatic cancer happens when cells in the pancreas start growing uncontrollably. It often goes unnoticed until the late stages, making pancreatic cancer the third leading cause of cancer deaths in Europe.

Throughout history, the disease has touched many well-known lives. From opera legend Luciano Pavarotti to actor Patrick Swayze. Their stories remind us that
this disease can affect anyone, regardless of age, status, or where you live.

This November, during Pancreatic Cancer Awareness Month, we reflect on the stories of well-known people who faced this disease, reminding us that awareness
and early action can make all the difference.

Pancreatic Cancer Ireland Pancreatic Cancer UK World Pancreatic Cancer Day
Pancreatic Cancer Action Network EU Can Beat Cancer

30/10/2025

This week, DiCE participated in the European Association for Cancer Research - OECI Organisation of European Cancer Institutes: Patient Involvement in Cancer Research virtual event.

In our discussion, key topics included patient co-creation and engagement in research. At DiCE, we strongly believe that patient participation is not just desirable; it is essential to make research more relevant, inclusive, and impactful for the patients it ultimately aims to serve.

30/10/2025

𝐑𝐞𝐚𝐝𝐲 𝐭𝐨 𝐬𝐭𝐞𝐩 𝐮𝐩 𝐟𝐨𝐫 𝐚 𝐠𝐨𝐨𝐝 𝐜𝐚𝐮𝐬𝐞?🏃‍♀️
Digestive Cancers Europe - for Patients and Outdoor Against Cancer are partnering for a 5K Fun Run & Walk at ESMO GI 2026 in Munich 🇩🇪 this July!

Join Ambassadors Benedikt Westphalen and Florian Lordick, along with a community of patients, families, advocates, healthcare professionals, researchers, and friends, for a run or walk open to everyone. No matter your fitness level, you can take part at your own pace.

Move your way, meet inspiring people, and help raise awareness for digestive cancer prevention and early detection.

➡️ Sign up now for event updates and early registration: https://funrun.digestivecancers.eu/ #
📩 Interested in becoming an Ambassador or Sponsor? Contact funrun@digestivecancers.eu

ESMO - European Society for Medical Oncology World Health Organization (WHO)EU Can Beat Cancer

30/10/2025

We need your input to shape a trusted !

The Cancer Information Portal Project is developing a reliable, easy-to-use platform to make information on cancer prevention, diagnosis, and treatment more accessible to everyone.

To ensure it truly meets the needs of our digestive cancer community, we’re inviting patients and carers to share their views. Your feedback will help define the quality standards for the EU-CIP Cancer Portal.

Take a few minutes to complete our short survey — available in:
🇬🇧 👉 https://forms.gle/8kbV4oXu5SjkfQAT9
🇫🇷 👉 https://forms.gle/84NuHZeesJwEn7mc7
🇱🇹 👉 https://forms.gle/cVPUKxpbY2oAYWDGA
🇵🇹 👉 https://forms.gle/Fh5cycZg9jKepLkHA
🇪🇸 👉 https://forms.gle/6oAew4CVrGPTi87Y9
🇸🇪 👉 https://forms.gle/LboSNcSEUM1k1NzA6
🇺🇦 👉 https://forms.gle/cx2EDVzvZrqJJdvZ9

Your voice matters. Together, we can build a resource that empowers and supports everyone affected by cancer.

fans EU Can Beat Cancer EU Science & Innovation EU Science Hub - Joint Research Centre Youth Cancer Europe Charité - Universitätsmedizin Berlin European Cancer Organisation

29/10/2025

Elena Baltacha, Britain’s former top tennis player, passed away from liver cancer at just 30. Her story serves as a reminder that this disease doesn’t discriminate based on athletic ability or gender.

Although men face nearly twice the risk of liver cancer compared to women, with a lifetime risk of 1 in 91 for men versus 1 in 333 for women, liver cancer remains a leading cause of cancer deaths in Europe for all.

Knowledge and prevention are key to saving lives. Find out more about how to take charge of your liver health ➡️ https://digestivecancers.eu/liver-cancer-prevention/

fans EU Can Beat Cancer European Liver Patients' Association

28/10/2025

📣 In the context of the READI project, we joined the insightful session organised by EUPATI on Exploring Patient Engagement and how to create a long-term partnership to ensure their voices are heard and considered.

We discussed key concepts such as patients, patient organisations, patient experts, and individual patients, diving deeper into their complementary roles.

The session highlighted how patients’ lived experiences and insights bring incredible value to the design and ex*****on of clinical trials, ensuring that research truly reflects patients’ needs and realities.

This event marked Part 1 of a 3-part “READI To Learn” 📚 🖥️ series by EUPATI:
1. Patient Involvement 101: Setting the Stage for a Long-Term Partnership
2. Patients at Every Phase: Exploring Patient Roles in the Clinical Studies Ecosystem
3. Opening the Doors: Who’s Missing in Clinical Studies and Why It Matters

EU Can Beat Cancer EU Science & Innovation EU Science Hub - Joint Research Centre

28/10/2025

Last week, DiCE joined other patient organisations in a constructive discussion with DG SANTE on the EU Joint Procurement of medicines under the Critical Medicines Act (CMA).

We emphasised that patients should be part of the decision-making process, not sidelined by it. Their inclusion in the governance group that decides on joint procurements is essential to ensure transparency, accountability, and equitable access across all 🇪🇺 countries.

We also called for more accountability on how joint procurements are prioritised and implemented, so that smaller Member States are not left at a disadvantage.

🔜 We will refine our CMA amendment proposals to reinforce transparency measures and formally embed patient participation in governance. Because meaningful patient engagement is the foundation of a fair and resilient EU health system.

fans EU Can Beat Cancer EURORDIS-Rare Diseases Europe

27/10/2025

🥳 𝟏,𝟎𝟎𝟎,𝟎𝟎𝟎,𝟎𝟎𝟎 𝐬𝐭𝐞𝐩𝐬 𝐜𝐨𝐦𝐩𝐥𝐞𝐭𝐞𝐝 𝐰𝐨𝐫𝐥𝐝𝐰𝐢𝐝𝐞!
STEPAPP has achieved a historic milestone, comparable to walking back and forth between 🌏 and 🌑.

This achievement shows what’s possible when we move together for our health. Walking regularly isn’t just good for staying healthy and fit; it also helps lower the risk of digestive cancers.

Every step counts. Together, we’ve turned movement into meaningful impact.
Thank you to everyone who’s walked with us. Here’s to the next billion.

Do not forget to either download or update the latest version of !
➡️ https://stepapp.digestivecancers.eu/

fans

24/10/2025

At the ESMO Congress in Berlin, our patient advocate Lāsma Nikolaisone delivered a standout presentation on early-onset cancer in young adults.

She dismantled age-related misconceptions, highlighted gaps in recognition and referral among healthcare professionals (HCPs), and underscored the essential role of psychological support throughout the care pathway.

Lasma also called for concrete action to close the awareness, care, and support gaps in early-onset digestive cancers, including timely access to precision medicine, improved eligibility and navigation for clinical trials, and the advancement of patient-centred policies, such as Europe’s Right to Be Forgotten, to ensure survivors aren’t penalised long after treatment.

Onkoalianse
EuropaColon Latvija ESMO - European Society for Medical Oncology

23/10/2025

The World Health Organization (WHO) has sounded the alarm over a rising tide of antibiotic resistance, with one in six common bacterial infections in people worldwide in 2023 resistant to antibiotic treatments and with the highest rates in South-East Asia, the Eastern Mediterranean, and Africa.

WHO Director-General Dr. Tedros Adhanom Ghebreyesus warned that antimicrobial resistance (AMR) is outpacing medical advances and urged stronger global surveillance, responsible antibiotic use, and greater investment in diagnostics, vaccines, and new treatments.

For people living with cancer, this growing resistance poses a serious risk. Infections are among the most frequent and serious complications during and after treatment, especially for those undergoing chemotherapy or surgery, when the immune system is weakened.

When antibiotics lose their effectiveness, even common infections can become life-threatening, and essential cancer treatments may need to be delayed or modified.

For digestive cancer patients, who often face complex procedures and hospital stays, antibiotic resistance further jeopardises recovery and quality of life.

The WHO calls for urgent R&D efforts, as the number of pharmaceutical companies developing antibiotics has dropped from around 20 in 2000 to just four today.

🔗 https://pharmaphorum.com/news/who-sounds-alarm-over-rising-tide-antibiotic-resistance

WHO Regional Office for Europe EU Can Beat Cancer fans

22/10/2025

Beat poet Allen Ginsberg died of liver cancer in 1997 at age 70. A diagnosis that underscores how this disease can affect anyone, regardless of fame or background.

We now know that prevention matters, and that everyday choices, from protecting yourself against hepatitis to maintaining a healthy lifestyle, can make a real difference in lowering your risk of liver cancer.

To learn more about all the things you can do to protect your liver, visit: https://digestivecancers.eu/liver-cancer-prevention/

fans EU Can Beat Cancer EU Science & Innovation EU Science Hub - Joint Research Centre European Liver Patients' Association International Liver Cancer Association (ILCA)

21/10/2025

At this past weekend, Olivier Exertier from the IKCC, as well as Natasha Stephens Münch and Nikola Mihinjač from Digestive Cancers Europe (DiCE), the communications team behind the project, had the opportunity to connect at the Patient Advocacy Hub.

It was an inspiring space to listen, learn, and exchange with patients and advocates affected by kidney, colorectal, and pancreatic cancers.

We’ll stay actively engaged and look forward to sharing new insights and results from the DISCERN trial in the coming months.

fans EU Can Beat Cancer

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https://digestivecancers.eu/

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