08/19/2023
It has been a whirl wind of a week. Jaxon continues to battle necrotizing pancreatitis and has been needing insulin. The team consulted for a couple of days; there were plans of going in surgically to remove the pancreas, but given how critical Jax is, the risk of death was too great. They are monitoring it for now and will see if there's enough viable pancreas for it to be fine or if it will liquidize, in which case he would be insulin dependent for life.
Yesterday was easily one of the top most terrifying days. The dialysis catheter in his neck was having troubles, again, but this time, they had to rewire it. Unfortunately, this did not go as planned, and he began to lose a lot of blood. Surgeons were called to come and assess. In the end, he got fixed up by the amazing doctors up in PCICU, received some blood products, and the new line is working better than ever. Due to the dialysis being off and needing blood products, he got insanely swollen like the first pic.
Today, the swelling has come down some, and his infection markers continue to come down! Tomorrow, we prep to decorate his room for his 3rd birthday on Sunday. 💕