My Several Worlds - Chronic Pain and Disability Awareness

My Several Worlds - Chronic Pain and Disability Awareness MySeveralWorlds.com supports people living with chronic illness, chronic pain, & disability. My name is Carrie and I'm a chronically ill Canadian in Asia.

My Several Worlds - Chronic Pain and Disability Awareness by Carrie Kellenberger

➡️ I write so you can better understand life with disability related to Chronic Pain, Fibromyalgia, Arthritis, Spondylitis, MECFS, and more.
➡️ Former world traveler
➡️ Veteran patient advocate

Hello, beautiful warriors and friends! I've lived here since 2003 and I've called Taiwan 'home' since early 2006. I've suffered from chronic pain for over two decades. I'm 49 years old and disabled. I've been using a wheelchair and cane to get around since 2009. At 34 years of age, after suffering from really odd joint problems and pain for many years, I was diagnosed with Ankylosing Spondylitis in February 2009. Now more commonly referred to as Axial Spondyloarthritis, my inflammatory arthritis attacks my joints and everything else in my body. My central nervous system is a mess. I suffer from several kinds of arthritis: axSpA, PsA and OA. Additional diagnoses: fibromyaglia, ME, APS, chronic primary insomnia since age 24, multiple chemical sensitivity syndrome, MCAS, migraine, skin rashes, mouth ulcers, otitis media, depression, anxiety, and more. I'm touching the tip of the iceberg here to give you an idea of my messy and uncool body! I grew up in a small town called Carleton Place in Ontario, Canada. I got a law and anthropology degree, then got my ESL teaching certificate, and moved to Asia. At that time, I had pain, but was able to convince myself it was from running and working out. Many patients normalize their pain and strange symptoms because they think everyone feels that way. When you're a sick teen, you're often not believed as well and that is what happened to me. Like most of you, I woke up one morning and things weren't working right. I couldn't put weight on my left foot; my right shoulder was frozen, I felt like I had the flu all the time; I had extreme muscle weakness and my back was on fire. The fatigue was crushing me, and my joints were not happy. It wasn't uncommon for me to wake up with knees the size of bowling balls. Once it affected my ability to stand, we had to seek medical attention and voila - 'You have AS, Carrie!' My first thought was, 'Thank goodness it's not Rheumatoid Arthritis!' I had no idea that Spondyloarthritis is just as bad as RA if not worse. It has completely derailed my life. In 2014, after having more health problems crop up, I received fibromyalgia and MECFS diagnoses. I'm told autoimmune diseases LOVE to party together. It turns out I am also a chronic EBV patient and all of it stems from recurring mono infections. I've also been treated for CRPS and myofascial pain syndrome. I started blogging about our life abroad in early 2007. What you see here on MSW is more than two decades of research and writing. This page supports chronically ill and disabled patients who are looking for research and citations. Ask questions. Make new friends. Welcome to My Several Worlds. Chronically yours,
Carrie

PS: I'm not a medical professional and none of the information I provide on my website or on this page should be taken as professional advice. Please consult your doctor on health matters and medical care. PROFESSIONAL BIO:

Created in January 2007, My Several Worlds is a health website for chronically ill patients in Asia and around the world. I write so you can better understand life with disability related to Chronic Pain, Fibromyalgia, Arthritis, Spondylitis, MECFS, and more.

*MSW provides much needed health resources and information in English.
*2022 Support Fibromyalgia Legacy Winner
*Best Blog for Fibromyalgia with Healthline in 2018, 2019, and 2020
*Finalist for WEGO Health Awards 2020 for Lifetime Achievement Award in health advocacy
*I work with several non profit organizations to help disperse up to date information and research to patients all over the world
*930+ articles on this site covering a range of health topics and travel options in Asia for readers to enjoy.
*I'm an experienced public speaker and content creator for health topics.
*If you're interested in hiring me, please feel free to get in touch. I'd love to hear from you!

It's   and I'm featuring pain stats all month long for  . Join in and help us raise awareness by commenting and sharing....
09/02/2025

It's and I'm featuring pain stats all month long for . Join in and help us raise awareness by commenting and sharing. Follow my page for pain stats every day this month. ~Carrie

CHRONIC PAIN STATISTICS

🔴 CHRONIC PAIN IN NUMBERS

100 MILLION The number of Americans who suffer from chronic pain.

ONE IN TEN Americans has experienced pain every day for three months or more

1.5 BILLION+ The number of people worldwide who suffer from chronic pain

🔴 MOST COMMON TYPES OF CHRONIC PAIN
27% Low back pain
15% Headache/Migraine
15% Neck pain
4% Facial pain

► EFFECTS OF CHRONIC PAIN
77% of people report feeling depressed due their chronic pain
51% of chronic pain sufferers feel they have little or no control over their pain
20% of American adults report that pain disrupts their sleep at least a few nights a week

🔴 WHERE DO PEOPLE SEEK HELP?
63% Doctor
15% Chiropractor
25% Doctor specializing in pain

🔴 PAIN AS A CAUSE OF LONG-TERM DISABILITY

#1 CHRONIC PAIN is the number one cause of long-term disability in the United States.

HEADACHES, MIGRAINES, AND FACIAL PAIN
2x women are twice as likely to suffer from severe headaches or migraines and facial pain than me

PERSISTENT PAIN THAT WON'T GO AWAY
7% of persistent lower back pain cases develop into chronic pain.

Compiled/curated by The Good Body


REAL

September is  . I've lost track of how many years I've participated in this event and can only say that it's been over a...
09/01/2025

September is . I've lost track of how many years I've participated in this event and can only say that it's been over a decade.

Chronic pain is devastating. It affects and infects every aspect of your life. The only thing we can do is continue.

Pick yourself up every day and keep going! You reach a breaking point many times when you don't know HOW to keep going, but you do. You keep going.

This is my chronic pain story. I hope it helps others understand what it is like to live with in pain. You are not alone.

🔗 https://www.myseveralworlds.com/2019/09/19/lets-talk-about-pain-chronic-pain-awareness-month/

Did you know 350+ million people around the world live with rheumatic diseases? It's   aka  This awareness initiative is...
09/01/2025

Did you know 350+ million people around the world live with rheumatic diseases? It's aka

This awareness initiative is led by the American College of Rheumatology (ACR) with rheum patients and orgs around the world highlighting 100+ rheumatic diseases this month.

Common Rheumatic Diseases: Spondyloarthritis, Rheumatoid Arthritis,
Gout, Lupus, APS, Vasculitis, Sjogren’s Syndrome, Scleroderma, Polymyalgia Rheumatica & more. We advocate for awareness and push for better care and more research. Learn more here:
🔗
https://www.myseveralworlds.com/autoimmune-disease-101/

It's okay if you thought you were over it, but it hits you all over again.It's okay to fall apart even if you thought yo...
09/01/2025

It's okay if you thought you were over it, but it hits you all over again.
It's okay to fall apart even if you thought you had it under control.
You're not weak.
Healing is messy.
And there's no timeline for
healing.

Credit: Mintelligence

 ... DEVASTATING    "It affects every single aspect of your life, and the only thing we can do is continue...pick yourse...
09/01/2025

... DEVASTATING


"It affects every single aspect of your life, and the only thing we can do is continue...pick yourself up every day, and keep going. You reach a point many times when you don't know how to keep going, but you do."

September is .
➡️ Use the hashtag and your description.

Let's Talk About Pain!
🔗 link in comments

September is a huge month for awareness. Look at all the different awareness causes we support every September!🔴 Chronic...
09/01/2025

September is a huge month for awareness. Look at all the different awareness causes we support every September!

🔴 Chronic Pain Awareness aka

🔴 Childhood Cancer Awareness Month

🔴 Sickle cell disease

🔴 Rheumatic Disease Awareness Month ( )

🔴 Ovarian Cancer Awareness

🔴 Leukemia and Lymphoma Awareness

🔴 Arthritis Awareness 🇨🇦

🔴 Muscular Dystrophy Awareness 🇨🇦

🔴 Migraine Awareness (Sept 4-10)

🔴 Alzheimer's Awareness

🔴 S*cide Prevention Month

🔴 Reye's Syndrome Awareness

The Travel Vault:   Too often, people fly to a destination and miss the country they're traveling to. Whenever possible,...
08/31/2025

The Travel Vault:

Too often, people fly to a destination and miss the country they're traveling to.

Whenever possible, drive! We entered Cambodia by bus. Despite having a bruyal scam border crossing in Thailand, we decided to drive from to . I will never forget driving quietly through the Cambodian countryside and the pictures of country life that flashed by. Read more:
🔗
https://www.myseveralworlds.com/2007/12/16/journey-through-the-cambodian-countryside/

In Their Own Words: MECFS & Fibromyalgia Patients Describe Their Symptoms by Health Rising by Cort Johnson "I would not ...
08/31/2025

In Their Own Words: MECFS & Fibromyalgia Patients Describe Their Symptoms by Health Rising by Cort Johnson

"I would not wish this illness on my worst enemy (if I had one)... sometimes I wish the naysayers could live in our bodies."
🔗
https://www.healthrising.org/forums/resources/in-their-own-words-chronic-fatigue-syndrome-and-fibromyalgia-patients-describe-their-symptoms.199/

I would not wish this illness on my worst enemy (if I had one), but sometimes I wish the naysayers could live in our bodies for a few days.. The symptoms are taken from a thread on the Health Rising Forums in which people with ME/CFS and FM were...

Ankylosing spondylitisYou stand until it hurts soyou sitYou sit until it hurts so you liedownYou lie down until it hurts...
08/31/2025

Ankylosing spondylitis

You stand until it hurts so
you sit
You sit until it hurts so you lie
down
You lie down until it hurts so you stand.
Wash and repeat.

Credit: Nikki

So true! When I got my diagnosis in 2009, my joints were so swollen and my back was so bad, I could barely stand, but sitting in a wheelchair was equally torturous. Over the years with this disease, I've learned over and over again that standing, sitting, and lying down are all agony when it's active and wreaking havoc. I also have to watch where I sit because some things are simply impossible to sit on!

Incredible news for Taiwan's   campaign. It's hard to believe it has come so far since our first meeting in March 2023! ...
08/30/2025

Incredible news for Taiwan's campaign. It's hard to believe it has come so far since our first meeting in March 2023! Onwards and upwards, Taiwan!

My Several Worlds continues to highlight the problems that disabled individuals face in Taiwan each day and I look forward to more progress as time goes by!

Bringing Taiwan to the World and the World to Taiwan

I use art to cope with  . I adore flower arranging especially  .  Have a look at 14 Japanese floral arrangements along w...
08/30/2025

I use art to cope with . I adore flower arranging especially . Have a look at 14 Japanese floral arrangements along with my comments on my creative process with living art at
🔗
https://buff.ly/33LTe9h

Address

Carleton Place
Carleton Place, ON

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