My Several Worlds - Chronic Pain and Disability Awareness

11/05/2025

👉 Yes I have. Housebound for 10 years. The only person I see regularly is my doctor.

"Have you ever thought of what it would feel like to be stuck in your house for 10 years, and the only people you get to see, you have absolutely nothing in common with?

No new thoughts, no new ideas, nothing new you haven't heard before. Everything is grey. Everything is frozen. The same day repeats 10,000 times over. You are still the same, and nothing changes."

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11/04/2025

"I paint my own reality. The only thing I know is that I paint because I need to, and I paint whatever passes through my head without any other consideration." ~Frida Kahlo

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11/04/2025

Ontario’s healthcare system is often described as being in crisis, and there are some big reasons why.

Ontario’s healthcare is a mess because demand is outpacing supply. There aren't enough staff, there's not enough primary care, and we have more sick people than ever who require complex treatments.

Having watched family and friends struggle to access care and being asked non stop why I haven't moved back to Canada, I thought I'd address my reasons.

Plain and simple - I will not receive the kind of care in Ontario, Canada that I receive in Taiwan.

The single biggest reason I have for not moving back to Ontario is the lack of primary care doctors and family doctors.

I would literally have to wait years to get the assistance I have now in Taiwan!

Here are the main factors that make it Ontario healthcare such a mess right now:

✔ Family doctor shortages
✔ Staffing shortages
✔ Emergency Room overcrowding & ER closures
✔ Aging population
✔ Funding & privatization Debates

While Taiwan also has these problems, the healthcare system here is easily accessible. I don't have to book an appointment to see a primary care doctor. I can literally roll to a clinic at any point during my day for help if I need it.

11/04/2025

Have you tried this for a cure for your incurable disease? This worked for my friend of a friend and maybe it will help you too.
People just can’t help themselves with unsolicited health advice! Read it:
🔗
https://www.myseveralworlds.com/2024/01/09/have-you-tried-this-for-a-cure/

11/04/2025

Via Cynthia Covert, The Disabled Diva

Resting isn’t lazy—it’s my masterpiece. 🎨💤
When your body demands downtime as often as mine does, you learn to rest with style.
Cozy blanket? Check.
Warm drink? Check.
Master’s degree in horizontal living? Double check. 😌

11/04/2025

"If arthritis could be cured with diet and supplements, 1 in 5 of us would NOT be living with the exquisite agony of arthritis!" ~Carrie,

Did you know I've got apparel for arthritis, fibro & Spoonie folks? I love wearing this t-shirt!

Get it here:
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Everyone has suggestions for arthritis, right? "If arthritis could be cured with diet and supplements, 1 in 5 of us would NOT be living with the fire of arthritis." Carrie Kellenberger, MySeveralWorlds.com • Millions of unique designs by independent artists. Find your thing.

11/04/2025

Yup. And they are all popping off at high intensity today. It started late last night.

"Most painful points in
fibromyalgia:

[neck, brain, hands, hips, front of skull, behind the knees, SI joints and lower back, feet, elbows, shoulders, in front of the knees, sternum and chest]

Credit Unknown

👉 They forgot the tears on my face! 😭

11/04/2025

My Experiences With Filthy Medical Labs in Taiwan

I've tried hard to forget this happened but my monthly blood draw at my hospital makes this memory slam back into me. It was so bad, my husband now comes into my blood draw appointments with me. A few weeks ago he stopped a tech from slapping my arm again.

At this point, we now wait for my favorite tech who is the most gentle person I've ever met. I had a chance to ask him last week about why some techs do this in Taiwan. He said they have bad training and no patient should ever be slapped because a tech can't find a vein.

The other thing we chatted about is old and outdated medical 'labs' in Taiwan. He thinks there are not many left and he was shocked when I showed him the photos in my post.

Read more about having to visit someone's home blood lab for NIH coverage for my extremely disabling . The people who run this DNA lab live upstairs. Their upstairs living situation is also visible downstairs in their cluttered, dusty, and chaotic health lab with no PPE or sterilizing cotton in place.

I’ve never been afraid of needles or blood draws until these past two years with three experiences at these NIH labs. Apparently they are still in use because they are cheap. I'd rather pay more to have a fast and painless draw in a sterile lab.

You've been warned. The photos will make you queasy!
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https://www.myseveralworlds.com/2025/04/03/my-experiences-with-filthy-medical-labs-in-taiwan/

11/03/2025

What do I want other people to know about my disabled life? I want others to know that I am not my disability.

Here are 5 things I want readers to know about my disabled life.
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https://www.myseveralworlds.com/2023/07/30/its-disability-pride-month-im-not-my-disability/

11/03/2025

Spoonie Holiday Gift Guide: For Chronically Ill & Disabled Friends

Introducing a Spoonie Holiday Gift Guide for chronically ill and disabled friends

Wondering what to get for someone who lives with disability or chronic illness? Check out my holiday gift list!

Choosing gifts for chronically ill and disabled individuals requires thought and consideration. This is because people who live with chronic illness or disability have unique needs and preferences. It’s essential to keep in mind that we have specific needs, preferences, and limitations.

I started putting this gift guide together in August 2023. I add a little each time something new and wondrous shows up in my life! I hope my Spoonie Holiday Gift Guide helps you find the perfect gift for that special someone in your life.

Disclosure: No adverts or affiliate links on my site.

https://www.myseveralworlds.com/2023/11/01/spoonie-holiday-gift-guide-for-chronically-ill-disabled-friends/

11/03/2025

SIGNS I'M STRUGGLING

💜 My body feels heavy & tired
💜 I can't motivate myself
💜 I find it hard to respond to messages
💜 I can't stop scrolling through social media
💜 I feel like nothing I do is good enough
💜 I have panic attacks
💜 I spend more time by myself
💜 Little things get to me
💜 I find it hard to get up & ready in the mornings
💜 My usual coping mechanisms don't help very much
💜 I can't focus or still my thoughts
💜 Things become disorganised & untidy
💜 I doubt myself

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11/02/2025

"It is only when we truly know and understand that we have a limited time on earth and that we have no way of knowing when our time is up that we begin to live each day to the fullest, as if it were the only one we had."
~Elisabeth Kübler-Ross

Who is Elisabeth Kübler-Ross?

Her work helped revolutionize the care of the terminally ill and helped change attitudes toward pain control and death. She was known for having identified five stages of grief experienced by people who are chronically ill or living with terminal disease: denial, anger, bargaining, depression, and acceptance.



[Carrie is seated in her new manual wheelchair at home. She is wearing her My Several Worlds t-shirt.]