Canadian NeuroEndocrine Tumour Society

Canadian NeuroEndocrine Tumour Society Charitable Registration Number: 85623 3986 RR0001

Education, Support, Advocacy, Awareness, Research Charitable Registration Number: 85623 3986 RR0001

Now Open: CNETS 2026 Student NET Research Scholarship ApplicationsAre you a student researching neuroendocrine tumours? ...
02/17/2026

Now Open: CNETS 2026 Student NET Research Scholarship Applications

Are you a student researching neuroendocrine tumours? Get funding to support your work and advance NET diagnosis and treatment.

📅 Deadline: April 27, 2026
Don’t miss your chance to make an impact.


Email from CNETS APPLY NOW FOR A $10,000 NET RESEARCH GRANT! ATTENTION STUDENT NET CANCER RESEARCHERS UP TO THREE (3) NET CANCER RESEARCH SCHOLARSHIPS ARE AVAILABLE! PLEASE DISTRIBUTE THIS CALL WIDEL

CNETS would like to remind our community of the following financial assistance available to them: The Howard D. Trotman ...
02/13/2026

CNETS would like to remind our community of the following financial assistance available to them:

The Howard D. Trotman NET Patient Assistance Program fund provides up to $3,000 per family to help NET patients
with:
◘ Travel and accommodation for appointments
◘ Treatment costs not fully covered by insurance or other programs
What’s new?
✅ A simpler, streamlined application process
✅ Easier access for patients and families
✅ A direct contact for questions: HDTassistance@cnets.ca
This program was founded in honour and loving memory of
Howard D. Trotman, a remarkable NET patient advocate and community leader.
Apply today or share this with someone who may benefit: https://cnets.ca/hdt-net-patient-assistance-program/

https://www.facebook.com/share/p/181Pvhd4KE/

The Howard D. Trotman NET Patient Assistance Program is a financial assistance program for neuroendocrine cancer patients, in honour of Howard’s legacy.

UPCOMING 2026 CNETS NATIONAL NET PATIENT CONFERENCE - SEPT 26, 2026 IN OTTAWA !
02/12/2026

UPCOMING 2026 CNETS NATIONAL NET PATIENT CONFERENCE - SEPT 26, 2026 IN OTTAWA !

Email from CNETS Sep 26, 2026 - Ottawa, Ontario SAVE THE DATE CNETS 2026 NATIONAL NET PATIENT CONFERENCE Saturday, September 26, 2026 Ottawa, Ontario The 2026 National NET Patient Conference will feat

Immunotherapy isn’t always top of mind when it comes to neuroendocrine tumors (NETs) — but under certain circumstances, ...
02/07/2026

Immunotherapy isn’t always top of mind when it comes to neuroendocrine tumors (NETs) — but under certain circumstances, it can be a valuable treatment option.

Join us this Monday February 9th at 6pm for an exciting webinar with Dr. Aman Chauhan, a clinician-researcher from the USA who will explore when, why, and how immunotherapy may be used in NET cancer care.

🗓️ Monday | 💻 Online
👉 Register now at the link below to learn more and be part of the conversation.

Email from CNETS MONDAY FEBRUARY 9, 2025 @ 6:00 pm EST NET EDUCATION WEBINAR CNETS Virtual NET Education Webinar Monday, February 9, 2026 6:00 pm - 7:30 pm EST THE LATEST ON IMMUNOTHERAPY FOR NEUROE

The CNETS Board of Directors is pleased to announce the election of Liz Wood as Incoming President, beginning July 1.Wit...
01/29/2026

The CNETS Board of Directors is pleased to announce the election of Liz Wood as Incoming President, beginning July 1.

With over a decade of senior leadership experience, Liz will help guide CNETS through its next chapter, following a thoughtful transition.

We extend our deepest thanks to Jackie for her remarkable 13 years of leadership and are grateful she will remain involved in an advisory role during the transition year.

Read the full announcement here: https://cnets.ca/2026/01/cnets-board-announces-incoming-president/

https://conta.cc/4a8FF4L

Email from CNETS     BOARD OF DIRECTORS ANNOUNCEMENT INCOMING PRESIDENT   Canadian Neuroendocrine Tumour Society (CNETS) is a National Charity founded in 2007, dedicated to supporting and advocating

Pheochromocytoma Support Board
01/25/2026

Pheochromocytoma Support Board

Email from CNETS CNETS CANADA WIDE PPGL PATIENT EXPERIENCE SURVEY     Good day, we hope you are well! You are receiving this voluntary survey because you are registered with the Canadian Neuroendocri

REMINDER! CNETS is still hoping to reach community members living with or caregiving for someone with paraganglioma and ...
01/25/2026

REMINDER! CNETS is still hoping to reach community members living with or caregiving for someone with paraganglioma and pheochromocytoma for participation in a short survey!

Calling the PPGL Community in Canada 🇨🇦
CNETS is inviting Canadians living with pheochromocytoma or paraganglioma (PPGL)—and caregivers—to share their real-world experiences through a confidential, voluntary survey.
🕒 Takes ~15 minutes
📝 Up to 32 questions
🌐 Available in English & French
🔒 Anonymous & confidential
Your voice can help shape future treatment reviews, advocacy efforts, research, and support resources for the PPGL community across Canada.
👉 Whether you’re a patient or a caregiver, your experience matters.
Together, we can strengthen PPGL care in Canada. 💙

Email from CNETS CNETS CANADA WIDE PPGL PATIENT EXPERIENCE SURVEY     Good day, we hope you are well! You are receiving this voluntary survey because you are registered with the Canadian Neuroendocri

Calling the PPGL Community in Canada 🇨🇦CNETS is inviting Canadians living with pheochromocytoma or paraganglioma (PPGL)—...
12/17/2025

Calling the PPGL Community in Canada 🇨🇦

CNETS is inviting Canadians living with pheochromocytoma or paraganglioma (PPGL)—and caregivers—to share their real-world experiences through a confidential, voluntary survey.

🕒 Takes ~15 minutes
📝 Up to 32 questions
🌐 Available in English & French
🔒 Anonymous & confidential

Your voice can help shape future treatment reviews, advocacy efforts, research, and support resources for the PPGL community across Canada.

👉 Whether you’re a patient or a caregiver, your experience matters.

Together, we can strengthen PPGL care in Canada. 💙



Email from CNETS CNETS CANADA WIDE PPGL PATIENT EXPERIENCE SURVEY     Good day, we hope you are well! You are receiving this voluntary survey because you are registered with the Canadian Neuroendocri

Webinaire sur les tumeurs neuroendocriniennes (TNE)📅 11 décembre 2025 | ⏰ 12 h à 13 h 20 | 💻 En ligne via une plateforme...
12/03/2025

Webinaire sur les tumeurs neuroendocriniennes (TNE)
📅 11 décembre 2025 | ⏰ 12 h à 13 h 20 | 💻 En ligne via une plateforme de visioconférence

Les tumeurs neuroendocrines (TNE) sont des cancers rares et complexes, encore peu connus, ce qui entraîne souvent des retards de diagnostic et de prise en charge. Dans le cadre d’un projet financé par le Marathon de l’espoir, une équipe du CHUM et ses partenaires développent un Parcours d’Apprentissage Patient Personnalisé (PAPP-TNE) pour aider les patients à mieux comprendre leur maladie et naviguer dans le système de santé.

👉 Au programme : témoignages de patients et médecins, présentation du parcours d’apprentissage, démonstration de la plateforme numérique, et période de questions.
📌 Le webinaire aura lieu en ligne avec traduction simultanée en anglais.

Neuroendocrine tumours (NETs) are rare, complex cancers that remain poorly understood, often leading to delayed diagnosis and referral to specialized centres. As part of a research project funded by the Marathon of Hope, a team at CHUM and partners are developing a Personalized Patient Learning Pathway (PAPP-NET) to help patients better understand their condition and navigate the healthcare system.

👉 The event will include patient–physician testimonials, an overview of the learning pathway, a live demo of the digital platform, and a Q&A session.
📌 The webinar will be held online with simultaneous English translation.

Inscrivez-vous maintenant au lien ci-dessus
Click the link below to register.





évaluation



de l’espoir
Petitclerc David Balounaik-Arrowas -
DanielleGrenier

https://conta.cc/3Yb1A5v

Email from CNETS JEUDI, 11 DECEMBRE 2025, de 12 h à 13 h 20 (EST) - THURSDAY, DECEMBER 11, 2025 @ NOON-1:20 pm EST WEBINAR VIRTUELLE SUR LES TUMEURS NEUROENDOCRINIENNES (TNE) VIRTUAL NET WEBINAR Webi

💻✨ Join us for our next CNETS Virtual Education Webinar!On Wednesday, November 19, 2025 (6–7 pm EST), NET patient, advoc...
11/18/2025

💻✨ Join us for our next CNETS Virtual Education Webinar!
On Wednesday, November 19, 2025 (6–7 pm EST), NET patient, advocate and support group leader Angela Griffin will share her journey and insights on living with Lung NETs.
This free session is open to NET patients, families, and caregivers. Don’t miss the chance to learn and take part in an interactive Q&A.
👉 Register now at https://register.gotowebinar.com/regi.../5762334183243789658


https://conta.cc/4pj5vsO

Email from CNETS WEDNESDAY, NOVEMBER 19, 2025 @ 6:00 pm EST NET EDUCATION WEBINAR CNETS Virtual NET Education Webinar Wednesday, November 19, 2025 6:00 pm - 7:00 pm EST BREATHING THROUGH IT MY JOURN

🩵 NET Cancer Day Spotlight: Pheo/Para Tumours 🩵Pheochromocytomas and Paragangliomas (Pheo/Para) are rare neuroendocrine ...
11/10/2025

🩵 NET Cancer Day Spotlight: Pheo/Para Tumours 🩵

Pheochromocytomas and Paragangliomas (Pheo/Para) are rare neuroendocrine tumours that can release high levels of stress hormones like adrenaline—causing symptoms such as headaches, racing heartbeat, and sweating.

Often called “the great masqueraders,” these tumours are frequently misdiagnosed because their symptoms mimic other conditions.
👉 Average time to diagnosis: about 3 years
👉 Up to 40% of cases are linked to inherited genetic mutations

Early detection can save lives.
Learn more about Pheo/Para tumours, how they’re diagnosed, and why awareness matters this NET Cancer Day.

HOOFING IT 2025 RAISES $40,662 FOR NET CANCER RESEARCHBetween June 1 and October 31, 2025, we asked the Canadian NET can...
11/10/2025

HOOFING IT 2025 RAISES $40,662 FOR NET CANCER RESEARCH
Between June 1 and October 31, 2025, we asked the Canadian NET cancer community to come together and join or donate to CNETS' summer-long virtual fundraising campaign, HOOFING IT 2025, for Neuroendocrine Cancer Research.

The continued engagement, commitment and dedication of the NET cancer community from coast to coast was outstanding. With 11 teams, 23 registered participants (plus their extended family, friends, and supporters), and over 150 donors, HOOFING IT raised $40,662 for Neuroendocrine Cancer Research in Canada.

Huge thanks to our participants/fundraisers and teams and everyone who participated, supported, and donated to HOOFING IT 2025! We couldn't have done it without you!
Check out all our awesome participants: https://www.canadahelps.org/en/charities/cnets-canada/p2p/HOOFINGIT2025/ #

Address

333 Pitt Street/Suite 102
Cornwall, ON
K6J3R1

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+14166283189

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Our Story

CNETS provides support and education for Canadians on all aspects of NeuroEndocrine Tumours (NETs). We help Canadian NET patients seek and obtain personalized diagnostic and therapeutic options. We also advocate on behalf of individual patients and for policies to support NET patients.