Canadian NeuroEndocrine Tumour Society

09/26/2025

Patient or Caregiver Voice Needed:

Seeking a patient or caregiver to join a national advisory committee on radiopharmaceutical therapy
The Canadian Association of Provincial Cancer Agencies (CAPCA) is looking for one person with lived experience of radiopharmaceutical therapy—either a patient who received it or a caregiver—to join their Pan-Canadian Quality Assurance in Radiopharmaceutical Therapy (PCQRT) Advisory Committee.

What this committee does
Works to improve the quality and safety of radiopharmaceutical therapy across Canada.
Brings together experts from many provinces to guide priorities and support national standards.
(Radiopharmaceutical therapy uses targeted radioactive medicines to treat cancer while limiting harm to healthy tissue.)

Your role
Share patient/caregiver perspectives so real-world experiences inform national decisions.
Help improve care, safety, and outcomes for people receiving these treatments.

Time & term
Meetings: Virtual, quarterly (with occasional in-person meetings if feasible).
Term: 3 years, with a possible renewal.

Interested?
Email Kristi MacKenzie, Executive Director, CAPCA, at kmackenzie@capca.ca by October 17, 2025.

09/26/2025

💻✨ Join us for our next CNETS Virtual Education Webinar!
On Wednesday, October 8, 2025 (7–8 pm EST), NET patient and advocate Brian Smith will share his journey and insights on Perseverance and Self-Advocacy in NETs.

This free session is open to NET patients, families, and caregivers. Don’t miss the chance to learn and take part in an interactive Q&A.

👉 Register now at https://register.gotowebinar.com/register/5762334183243789658



https://conta.cc/4mEbvdY

Email from CNETS WEDNESDAY, OCTOBER 7, 2025 @ 6:00 pm EST NET EDUCATION WEBINAR CNETS Virtual NET Education Webinar Wednesday, October 8, 2025 7:00 pm - 8:00 pm EST PERSEVERANCE AND SELF-ADVOCACY IN

09/15/2025

Exciting opportunity for Canadian researchers! CNETS is launching a new research grant competition for the PLANET Canada NET patient registry. With up to $40,000 available, we aim to enhance patient outcomes through a centralized registry that tracks NET epidemiology and supports vital research. Don't miss out on this chance to contribute to groundbreaking work in neuroendocrine cancer. Applications open September 15, 2025, with a deadline of October 31, 2025. Let's improve NET care together!

https://conta.cc/462hmEL

09/13/2025

NEXT SATURDAY - The International Pheo Para Education Conference is an in-person event that will be held on Saturday, September 20, 2025 in Montreal.

Free for patients, caregivers and all of those affected, this conference is co-hosted by CNETS and PPA in collaboration with the International Symposium on Pheochromocytoma.

The program will feature world-renowned experts presenting cutting-edge information on diagnosis, management, treatment options, genetics and more.

Learn from experts and connect with other patients from around the world. Breakfast and refreshments will be provided.

FOR MORE INFORMATION & TO REGISTER:

https://pheopara.org/2025/02/international-pheo-para-education-conference

09/12/2025

The 8th Annual Bailey Daniels Memorial Kayak-Bike-Hike (KBH) raised a record $89,670 for NET cancer research! Thanks to the KBH community’s dedication and generosity, this will fully fund two $40,000 research grants! Watch the day’s highlights here:

https://www.youtube.com/watch?v=Rg4nn8JVsCc

https://conta.cc/3K2lSKQ

Email from CNETS THE 8TH ANNUAL BAILEY DANIELS MEMORIAL KBH TRIATHLON A HUGE SUCCESS! Dear CNETS Community, We are delighted to share that the 8th ANNUAL BAILEY DANIELS MEMORIAL KAYAK-BIKE-HIKE (KBH)

09/12/2025

Getting ready for radioligand therapy?
🔔 INCA has a new factsheet on – it explains what to expect — clear, reliable information to help you prepare for treatment.
🌍 This factsheet is available in 15 languages: Arabic, Bulgarian, Chinese (traditional), Chinese (simplified), English, French, German, Greek, Hindi, Italian, Japanese, Portuguese (Portugal), Portuguese (Brazil), Russian and Spanish.
✔️ Download in your language: https://lnkd.in/dFFQyhw
The factsheet is part of the Global NET Patient Information Pack with 26 more factsheets on different types of NETs and related syndromes – available in 11 languages.

09/12/2025

With less than a month remaining in HOOFING IT, the opportunity to make a profound impact is still within your grasp!

We invite you to step up and help us raise vital funds for a NET cancer research grant that could change lives.

Email from CNETS HELP US RAISE FUNDS FOR NET CANCER RESEARCH September 7, 2025 UPDATE   FUNDRAISERS 21   TEAMS 10   RAISED $27,930     REGISTER FUNDRAISE DONATE HOOFING IT JOIN US IN THE FIGHT AGAINS

09/10/2025

Nous sommes heureux d’annoncer le relancement du Programme d’aide aux patients atteints de TNE Howard D. Trotman !

Ce fonds offre jusqu’à 3 000 $ par famille afin d’aider les patients atteints de TNE pour :

◘ Les déplacements et l’hébergement pour les rendez-vous
◘ Les frais de traitement non entièrement couverts par l’assurance ou d’autres programmes

Nouveautés
✅ Un processus de demande simplifié et rationalisé
✅ Un accès plus facile pour les patients et leurs familles
✅ Un contact direct pour vos questions : HDTassistance@cnets.ca

Ce programme a été créé en l’honneur et à la douce mémoire de Howard D. Trotman, un remarquable défenseur des patients atteints de TNE et un leader communautaire.

Faites une demande dès aujourd’hui ou partagez cette information avec une personne qui pourrait en bénéficier :
https://cnets.ca/hdt-net-patient-assistance-program/

09/10/2025

We’re excited to share that the Howard D. Trotman NET Patient Assistance Program has been re-launched!

This fund provides up to $3,000 per family to help NET patients
with:

◘ Travel and accommodation for appointments
◘ Treatment costs not fully covered by insurance or other programs

What’s new?
✅ A simpler, streamlined application process
✅ Easier access for patients and families
✅ A direct contact for questions: HDTassistance@cnets.ca

This program was founded in honour and loving memory of
Howard D. Trotman, a remarkable NET patient advocate and community leader.

Apply today or share this with someone who may benefit: https://cnets.ca/hdt-net-patient-assistance-program/

08/14/2025

Lace up for HOOFING IT 2025!

This summer, from June 1 to September 30, 2025, the Canadian Neuroendocrine Tumour Society is thrilled to bring back its 6th annual virtual fundraiser, HOOFING IT, in support of neuroendocrine cancer research in Cnets Canada

Join us on this fun, flexible, and impactful journey—whether you're walking, swimming, cycling, or doing whatever moves you, every step (or splash or pedal) helps fuel research and hope. Let’s come together as a community, challenge ourselves, and make a real difference.

Ready to get moving? Sign up, set your goals, and rally your friends and family to support this meaningful cause. Together, we can make strides toward a cure! 🦓💪

CNETS 6th annual summer-long virtual fundraiser, HOOFING IT FOR NEUROENDOCRINE CANCER RESEARCH! From June 1st to September 30th, 2025, the Canadian neuroendocrine cancer community will unite virtually once again to raise $60,000 for neuroendocrine can...

07/18/2025

CNETS is proud to announce the 2025 NET Research Grant Competition exclusively for CommNETs members. Grants of up to $22,500 are available for collaborative projects between Canada, Australia, and New Zealand focused on Neuroendocrine Tumors (NETs). This initiative aims to support innovative research that enhances patient care and understanding of NETs. Applications are open now until September 18, 2025. Don't miss this chance to advance NET research!

https://conta.cc/4lV4jKi

07/09/2025

Access to care and NET diagnosis isn’t always a smooth path—and we want to help change that.

💬 If you're a NET patient or caregiver anywhere in Canada, we want to hear from you. Your experience matters, and your voice can help improve care nationwide.

📢 Take the survey and help shape the future of NET support in Canada.

https://www.surveymonkey.com/r/ACCESSTONETCARE