Dystonia Support & Awareness - Thompson/Okanagan

10/15/2025

For anyone interested in reading scientific and clinical-practice advancements highlighted by the Dystonia Journal, please visit https://dystoniacanada.org/index.php/news/dmrf-launches-first-scientific-journal-dedicated-dystonia.

DMRF (USA) has partnered with Frontiers Media to launch Dystonia, an open access journal. The journal brings visibility to the growing dystonia field and highlight advancements in science and clinical practice. This is the first scientific journal exclusively dedicated to dystonia and a major milest...

10/11/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on October 15, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

10/02/2025

For anyone interested in learning about the groundbreaking work of the Global Dystonia Registry, please visit https://dystoniacanada.org/you-can-help-shape-dystonia-research.

​​The DMRF Canada is a proud partner of the Global Dystonia Registry. The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials, through the collection of data on persons affected by dystonia. Although the focal dystonias have many dif...

09/24/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on October 1, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

09/19/2025

For anyone interested in learning about the groundbreaking work of the Dystonia Coalition, please visit https://dystoniacanada.org/dystonia-coalition.

​The DMRF Canada is proud to be a member of the Dystonia Coalition. The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups supported by the Office of Rare Diseases Research in the National Center for Advancing Translational Sciences and The National Institute ...

09/10/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on September 17, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

09/03/2025

For anyone interested in books and music written by those in the Dystonia community, please visit https://dystoniacanada.org/arts.

The dystonia community is filled with resilient and inspiring people. Below is a collection of books and music that has been developed by individuals from the dystonia community that are helping to make a difference.Books for the Dystonia Community About the AuthorPeople Like FrankJenn AshtonJenn is...

08/28/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on September 3, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link

08/21/2025

For anyone interested in trying Neurologic Music Therapy, you can access online sessions (on Thursdays) at https://dystoniacanada.org/events/NMT.

Neurologic Music Therapy for movement disordersNeurologic Music Therapy (NMT) is the evidence-based practice that makes use of standardized musical exercises that can be applied to areas of functioning including cognition, motor skills & communication.NMT classes will be offered by student music the...

08/14/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on August 20, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link.

Send a message to learn more

08/06/2025

For any teens needing guidance, please visit https://dystoniacanada.org/guideforteens?.

FR “I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized so...

07/31/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on August 6, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link.

Send a message to learn more