Dystonia Support & Awareness - Thompson/Okanagan

09/10/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on September 17, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

09/03/2025

For anyone interested in books and music written by those in the Dystonia community, please visit https://dystoniacanada.org/arts.

The dystonia community is filled with resilient and inspiring people. Below is a collection of books and music that has been developed by individuals from the dystonia community that are helping to make a difference.Books for the Dystonia Community About the AuthorPeople Like FrankJenn AshtonJenn is...

08/28/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on September 3, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link

08/21/2025

For anyone interested in trying Neurologic Music Therapy, you can access online sessions (on Thursdays) at https://dystoniacanada.org/events/NMT.

Neurologic Music Therapy for movement disordersNeurologic Music Therapy (NMT) is the evidence-based practice that makes use of standardized musical exercises that can be applied to areas of functioning including cognition, motor skills & communication.NMT classes will be offered by student music the...

08/14/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on August 20, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link.

Send a message to learn more

08/06/2025

For any teens needing guidance, please visit https://dystoniacanada.org/guideforteens?.

FR “I am thrilled that the DMRF Canada gave me the opportunity to participate in reviewing this guidebook. As a grade 12 student living with Generalized Dystonia, I can relevantly connect many aspects of this information back to my own school experience. The one thing that I wish I had realized so...

07/31/2025

🔵 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on August 6, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link.

Send a message to learn more

07/28/2025

For anyone in need of assistive devices, therapies, and/or techniques, please visit https://essentialtremor.org/resource/assistive-devices/?fbclid=IwY2xjawIjH-FleHRuA2FlbQIxMQABHSAT2fY0_OoDa_Zi5SqsVT494UGyzgriwupleNIlqIfzOqkjs0ZXv7KarA_aem_pU1v6Aan5K2EhdpV_0vfjw.

Assistive Technology is an umbrella term that includes assistive, adaptive, and rehabilitative devices for people with disabilities. The IETF hopes you find the assistive devices and technologies listed enable you to perform daily tasks with greater ease.

07/15/2025

For anyone needing guidance on which exercises trigger Dystonia, please visit https://dystoniacanada.org/exercise-triggers-dystonia.

The benefits of exercise and physical activity for neurological disorders is well-known. A team of exercise scientists and physical therapy experts at University of Auckland in New Zealand conducted a survey of 260 dystonia patients about physical activity and barriers to exercise. The survey reveal...

07/04/2025

🔵 Upcoming Meeting!

We will be hosting an online meeting (via Teams) on July 9, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link.

Send a message to learn more

07/01/2025

For anyone searching for employment resources, please visit https://dystoniacanada.org/employment-resources-for-dystonia-patients.

On this page, dystonia patients will find resources that assist individuals with challenges market themselves in a competitive job market. A challenging movement disorder like dystonia need not be an obstacle in carving a purposeful journey towards the job you'd like to have. These resources can hel...

07/01/2025

For anyone wanting to read the stories of others living with Dystonia, please visit https://dystoniacanada.org/index.php/patient-stories.

We would love to hear your dystonia story. If you’re interested in sharing your story with us, it could be included in an upcoming newsletter or e-newsletter.Read on for some of the latest stories of persons with Dystonia below.Generalized DystoniaMuscle groups affected: Throughout the bodyJennife...