02/03/2026
"Mild," "level," "severe"...
We use these labels to describe mental health based on how much we feel they affect us,
but a lot of people don't question the damage they do when it comes to receiving support;
Where does the label end and the person begin?
____________________
MANY people use these labels for a wide array of
neurotypes and disorders,
and this post is NOT telling you that you can't use these labels.
This post is pointing out the potential harm of them
from the perspective of the autistic community.
And because of the immense overlap between autism and ADHD, many advocates in
the ADHD community are shifting towards this understanding as well.
This post is meant to be provocative, an opportunity for you to consider
for your neurotype or disorder
whether or not the label is actually serving you.
If it is?
Okay. Absolutely, do you.
And if it's not...
See the last two sections.
____________________
Labels like the ones I've mentioned are harmful to us.
They are provided from the external perception of others, and they don't actually help us to
identify with our autism but rather serve to
reduce people to their ability to
financially produce and
be a "good member of society" 😮💨
Let me ask you:
Are YOU a productive member of society?
Should that define your value as a human being?
Your worth?
Your afterlife?
Your soul?
Should that define your mother's life?
Should that define your son's life?
It's a much harder question to confidently answer "yes" when we put it into perspective.
____________________
The labels are NOT helpful, for many reasons:
1) External versus internal: the labels are about
other people's experience of us rather than
our experience of ourselves.
The second SHOULD matter more to people.
____________________
2) Defining your ability to function in society requires you to reflect on
what you DO, not
who you ARE,
and autism is a direct reflection of who we are. Not to mention,
people deserve to be appreciated for who they are,
not what they do for others -->
believing otherwise leads to
people-pleasing behaviors which then leads to
inauthenticity and
self-betrayal,
plus betrayal from people who don't actually understand
lack of consent.
____________________
3) This is something labelers really don't understand because they just look at their experience of us, they see our "behaviors" and conclude "that's autism."
No.
When autistics are
supported with
scaffolding,
neuroaffirming support,
and systemic support...
We don't "look" autistic.
We only "look" autistic when we are in moments of distress, and
longterm distress creates trauma from living as a
neurodivergent in an unsupportive society.
____________________
4) Our "level" therefore can change over time as a result of
how supported we are, as well as
how unsupported we or any life changes are:
stage of life,
hormone changes like puberty and perimenopause,
neuroaffirming loved ones versus neuronormative loved ones,
working a job that believes in balance versus working for an employer who just sees numbers...
The list goes on.
____________________
So how DO we describe our "amount of autism"?
We don't.
We accept that to be autistic is to be autistic, that just because a person
"looks" autistic in one way
does not make them less autistic in others.
We recognize that different autistics present differently based on which
autistic traits and which
neurodivergent trauma traits
they display and the ones they experience for themselves.
We recognize that the concept of a "level" society has recognized is in fact the
combination of autistic traits with autistic trauma traits, as well as other
physical,
intellectual,
or developmental disabilities,
and therefore the appropriate way to discuss these is not to refer to levels, but diagnosis:
I am autistic with cerebral palsy.
I am autistic and am dyslexic.
I am autistic and have PTSD.
____________________
Your most important questions now...
What do you struggle with?
Is it something that society can or should change?
How much does that reflect on you changing anything?
If something needs to change for you, how can you change it to have
healthier,
neuroaffirming mindset,
scaffolding,
and support
so you are better supported in YOUR way,
rather than other people's ways?
____________________
I highly recommend following autistic & ADHD content creators like
Neurodivergent Parenting: Think Outside The Box
The Occuplaytional Therapist
The Autistic Self Advocacy Network
The Autistic Teacher
to get you started on questioning what you think you know about neural development;
even if you are not autistic or ADHD, you deserve to recognize your own place in the spectrum of being human.