ACMCRN

07/17/2025

We have had 3 new Recurring Donors sign up!
Thank you!
Now, can we find only 22 more?
Thanks for helping us advance Arachnoiditis care and research!



!

07/17/2025

Feeling disconnected?
Join Rida Viljoen—Resilience & Personal Growth Life Coach & Chronic Warrior—for a live peer workshop:
🗓️ July 29 | 🕑 2PM EST
Come as you are.
🔗 https://www.acmcrn.org/event-details/peer-coaching-workshop-with-rida-viljoen

07/11/2025

Be part of history. Help us open the first International Arachnoiditis Patient Registry. If 25 people give $25/month, we can launch it—and get one step closer to real treatment options and a cure. One-time gifts matter too. Will you be one of the 25? Donate at acmcrn.org/donate.

07/11/2025

🌟 July is Arachnoiditis Awareness Month! 🌟

Arachnoiditis is a rare, painful spinal cord disease that’s too often overlooked. This month, we’re shining a light on the challenges we face—and the hope we’re building together.

If you or someone you love lives with Arachnoiditis, you’re not alone. Join us for stories, support, resources, and ways to get involved—because awareness leads to action, and action leads to change.

🔗 Learn more & get involved:
Arachnoiditis Awareness Month Info: acmcrn.org/aa-awareness-month
Awareness Toolkit: acmcrn.org/aa-awareness-toolkit

💜 Follow for:

Real patient stories & faces of Arachnoiditis

Upcoming events & support groups

Educational tools & advocacy resources

Ways you can help advance research and support our community

Let’s break the silence around Arachnoiditis—share this post, tag a friend, and help us spread awareness!

07/03/2025

It's Arachnoiditis Month!

The July Arachnoiditis Awareness Newsletter is here!

This month is packed with important updates:
*Special events with Rida & Edward
*New awareness videos on our YouTube channel
*Faces of Arachnoiditis stories
*Volunteer news & community features
*Plus, a spotlight on our 20 for $25 campaign to support the Patient Registry

Read the latest updates and get involved in Arachnoiditis Awareness Month.

ACMCRN

07/01/2025

Happy Canada Day!
Wishing all of our Canadian family & friends a very Happy Canada Day!;

06/30/2025

Are you seeking a community that understands the challenges of living with ?

We are a collaborative network that shares the opportunities, information and educational materials, created by our own ACMCRN team, as well as materials etc from all those working on our common cause:

You can find our groups and channels at the following:

ACMCRN Public Information Group
ACMCRN private support group (Arachwarriors)
ACMCRN INTERNATIONAL

Discord: https://discord.gg/w38wVyPA

Tik tok:
https://www.tiktok.com/.verton

IG:
Threads:

LinkedIn: https://www.linkedin.com/in/loriverton

Our most comprehensive resources can be found on our website: www.acmcrn.org

06/28/2025

$chronic illness

Get your graphics and share with 5 friends! Let's see if we can each share awareness graphics with 5 friends or families, and as them to do the same!
www.acmcrn.org/social-media-toolkit

02/21/2025

STARTS TONIGHT! 💥
Hack your Brain, Hack your Pain. Hosted by Scott Groves

Hack Your Brain, Hack Your Pain – Hosted by Scott Groves

🗓 Day: Fridays (Ongoing)
🕖 Time: 7:00 PM EST

📍 Zoom Link: https://us06web.zoom.us/j/83037941722?pwd=c8xjl6upEVlhPjOeCRdRyePSBG3Ptm.1

📞 Meeting ID: 820 9959 3604 | Passcode: 083776
👤 Host: Scott Groves

Scott Groves, once bedridden, discovered neuroscience-based behavioral techniques that helped him return to an active, joyful life. Now, he’s sharing his knowledge to help you rewire your brain and find joy again.

Join him to learn about:
How neuroplasticity can change pain perception.

The connection between movement and pain relief.

The power of micro-goals to break free from pain cycles.

How creativity and mindfulness can reshape your experience.

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02/20/2025

is one of the 7k+ that affect over 300 million people worldwide when numbered together.

is most likely NOT , only .
This neuroinflammatory condition is usually initiated by physical trauma, compressed/herniated disc, spinal surgeries, bacterial and viral infections, or alongside conditions like , or .

Once the adhesions in the spinal nerve roots are established, we have no effective treatment for the longterm that will remove them. A number of downstream effects can cause significant disability and reduce quality of life.
Find out more!
www.acmcrn.org

02/05/2025

Because of nerve damage in our urogenital areas, can affect both your bladder and s*xual organs.

Has your s*x life been affected?
There are options that your doctor can offer to help.
Don't be afraid to reach out.
Sexual connection is very important for overall wellbeing. Don't give up!