Genetic Aortic Disorders Association Canada

Genetic Aortic Disorders Association Canada Embracing Marfan syndrome and all Genetic Aortic Disorders through Research, Education, & Support

This holiday season, we’re sharing stories that remind us why research matters. Joan’s story shows the power of early de...
12/17/2025

This holiday season, we’re sharing stories that remind us why research matters. Joan’s story shows the power of early detection and specialized care.

Donate today and help us fund Canadian research that saves lives.

Francine Kopun’s recent The Toronto Star article covers the loss of Kathryn Pryla and her unborn son Callum James to un...
12/15/2025

Francine Kopun’s recent The Toronto Star article covers the loss of Kathryn Pryla and her unborn son Callum James to undiagnosed Marfan syndrome. We share this article in solidarity with the families affected, while continuing our commitment to advancing research and care for individuals living with genetic aortic disorders across Canada.

GADA is honoured to be featured in this piece as part of the broader conversation on the urgent need for improved awareness, diagnosis, and coordinated care. These conditions, including Marfan syndrome, are significantly underdiagnosed. While traditionally estimated to affect 1 in 3,000–5,000 Canadians, emerging research shows the true prevalence is likely much higher. Stories like this reinforce the need for increased research, education, and advocacy.

Read the article here: https://www.thestar.com/news/gta/death-from-marfan-syndrome/article_55a35998-a345-476a-bbca-1c87a31cbfbd.html

Heather’s story is reminder of the importance of increased awareness about genetic aortic disorders and the urgent need ...
12/11/2025

Heather’s story is reminder of the importance of increased awareness about genetic aortic disorders and the urgent need for research and early detection.

This holiday season, we honour the strength of families affected by these conditions and the loved ones they have lost far too soon.

Your gift helps GADA increase awareness and prevent unnecessary loss of life - visit www.canadahelps.org/en/dn/474 to donate today.

Share your patient story with us docs.google.com/forms/d/e/1FAIpQLSePnmELciXVGV_d3qTTFnU7UPpiZpZmA_1RV2xMDnUkUf1CtA/viewform.

Canadian research into Genetic Aortic Disorders is essential — and significantly underfunded.Improved genetic testing, s...
12/05/2025

Canadian research into Genetic Aortic Disorders is essential — and significantly underfunded.

Improved genetic testing, screening, and diagnosis are urgently needed to prevent life-threatening aortic dissections.

This holiday season, your donation supports high-impact research that addresses these issues and advances the science that saves lives.

🔗 Visit www.canadahelps.org/en/dn/474 to donate today.

Every story shared helps us see that genetic aortic disorders are hiding in plain sight. Kerry-Anne's story is a powerfu...
12/04/2025

Every story shared helps us see that genetic aortic disorders are hiding in plain sight.

Kerry-Anne's story is a powerful reminder that early recognition and increased awareness can save the lives of Canadians affected by genetic aortic disorders.

This holiday season, we honour the strength of families affected by these conditions and the loved ones they have lost far too soon.

Your gift helps GADA increase awareness and prevent unnecessary loss of life - visit www.canadahelps.org/en/dn/474 to donate today.

📢 Researchers at Université de Montréal are inviting participants for an important online event on Heritable Connective ...
12/03/2025

📢 Researchers at Université de Montréal are inviting participants for an important online event on Heritable Connective Tissue Disorders (HCTDs)!

If you live with Marfan syndrome, Loeys-Dietz syndrome, or vascular Ehlers-Danlos syndrome—or if you’re a family member, healthcare professional, researcher, or part of an organization concerned with these conditions—this event is for you.

On February 17, 2026, join an online bilingual event (French/English) designed to spark dialogue and collective reflection about life with HCTDs.

The goal? To build connections among patients, families, clinicians, and researchers, explore how clinical recommendations are applied in Canada, and identify gaps in care and services.

Here’s what participation looks like:

✔ Complete a short questionnaire before the event

✔ Take part in online discussion groups on February 17 (bilingual support provided)

✔ Share your impressions afterward in another questionnaire to help prioritize themes

🔗 Scan the QR Code to register and learn more

Please note this event and research project are organized by Université de Montréal researchers. GADA Canada is not involved in organizing, conducting, or overseeing this research or event.

Today, on you can help make a difference for individuals and families living with genetic aortic disorders by supporti...
12/03/2025

Today, on you can help make a difference for individuals and families living with genetic aortic disorders by supporting our goal of raising $10,000 toward Canadian research. Donate at https://www.canadahelps.org/en/dn/474

This Giving Tuesday, your holiday gift directly supports lifesaving work. Many people live with signs of genetic aortic ...
12/02/2025

This Giving Tuesday, your holiday gift directly supports lifesaving work. Many people live with signs of genetic aortic disorders for years without knowing the cause. Others only learn they’re at risk after a sudden, life-threatening dissection.

These experiences reflect real gaps in access to timely care, diagnosis, screening, genetic testing, and awareness.

GADA is working to close this gap by investing in Canadian research that leads to better long-term care for those living with genetic aortic disorders.

Donate today, on at https://www.canadahelps.org/en/dn/474 and help us reach our goal to raise $10,000.

This holiday season, you can make a meaningful difference for individuals and families living with genetic aortic disord...
12/01/2025

This holiday season, you can make a meaningful difference for individuals and families living with genetic aortic disorders.

GADA is launching our year-end goal to raise $10,000 in support of Canadian research that saves lives.

Every gift helps drive discoveries that improve diagnosis, treatment, and long-term care. When you give to GADA, you’re helping advance research that changes and saves lives.

🔗 Visit https://www.canadahelps.org/en/dn/474 to donate today. Every dollar makes a difference.

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