09/06/2024
I haven’t posted for a very long time but I thought this was a great time in my MADSAM journey to post again.
First off, I hope those that follow me are doing well and each day is bringing new and better things.
I am writing to say that my first six years at my current hospital (Day Medicine specifically) have been nothing short of amazing and I couldn’t feel more loved and cared for. I will be forever grateful to my nursing family for their kindness and support. They truly have such an incredible purpose and I just honestly can’t say enough good things about them.
I have however been accepted into the SCig program and got my training this week to do my infusions on my own from home. This is a great opportunity for me and my family and will allow for much more flexibility and better time management.
I will not say there’s no pain or discomfort, I won’t say it’s easy…nothing worth while is easy in my opinion. I will say this however, if you’ve been offered SCig, have researched it or are even just reading about it through me…please know that it’s an amazing opportunity to not only learn more about your disease and how to control it, but it allows for travel whenever you please (up to 3 months), provides far more regular dosing for better overall health, there are fewer complications and side effects, plus it helps ease the burden on our health care system.
Everything is provided for the home infusions and the training was simple and very hands on so I basically did everything myself from the beginning.
If you or a family member requires IVig infusions, and you have the capability of doing them from home or have a caregiver that can do it for you, please consider this option and give the hospital appointment times to those that don’t have a choice and must get hospital care.
Take care and I’ll update later on how the infusions are going from home.
This week was week 1…a new adventure awaits!
