May 17 DIPG Day of Awareness / 17 mai Journée de Sensibilisation au GITC

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May 17 DIPG Day of Awareness / 17 mai Journée de Sensibilisation au GITC We are petitioning the Canadian House of Commons to declare May 17 National DIPG/GITC Awareness Day L'enfant reste cognitivement conscient de ce qui se passe.

Le Gliome infiltrant du tronc cérébral (GITC) / Diffuse Intrinsic Pontine Glioma (DIPG) est une tumeur cérébrale agressive, qui se trouve dans le tronc cérébral. Elle est inopérable, incurable et le taux de survie est de 0%. Le GITC / DIPG est la principale cause de décès par tumeur cérébrale au Canada et la survie médiane post-diagnostique est de 9 mois. Elle vole lentement les fonctions vitales

- bouger, ouïe, la vue, la capacité d'avaler et éventuellement, la respiration. Le GITC/DIPG s'attaque habituellement aux enfants entre 5-7 ans, mais peut aussi survenir chez les adultes. Parce que ce cancer est méconnu et que le budget alloué aux recherches sur celui-ci sont minimes, il n'y a pas eu d'avancées médicales ou de traitement depuis plus de 60 ans. //

Diffuse Intrinsic Pontine Glioma (DIPG) / gliome infiltrant du tronc cérébral (GITC) is an aggressive brain tumour found in a part of the brainstem called the pons. It is currently inoperable, incurable, and with 0% survival rate. DIPG/GITC is the leading cause of brain tumour deaths in children in Canada and the median survival time is 9 months from diagnosis. It slowly takes away vital functions like - the ability to move, hearing, vision, swallowing, and eventually breathing, while the child remains cognitively aware of what is happening. It affects children typically between ages 5-7 but can also occur in adults. Lack of awareness and funding have delayed any medical advancement and treatments for the last 60+ years. Learn more about the work these Canadian Charities and Foundations are doing to fund DIPG research and support services / apprenez en plus sur le travail et le soutien offert aux familles touchées par le GITC en visitant les pages suivantes :

- https://jordanasrainbows.com/
- https://www.thecurestartsnow.ca/
- https://madoxswarriors.com/
- https://fondationduchildren.com/en/fundraising/kat-d-dipg
- https://www.weloveyouconnie.com/
- https://kidsbrain.ca/about/
- https://www.sickkids.ca/en/care-services/centres/brain-tumour-research-centre/

01/03/2024

Please help us raise funds for DIPG/DMG research. Brain Cancer Canada is matching dollar for dollar up to $50k. Every dollar will make a difference.

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