May 17 DIPG Day of Awareness / 17 mai Journée de Sensibilisation au GITC

05/17/2024

Thank! Merci! CN Tower / Tour CN

Live views / vuew en direct: https://www.cntower.ca/live-views

03/01/2024

Please help us raise funds for DIPG/DMG research. Brain Cancer Canada is matching dollar for dollar up to $50k. Every dollar will make a difference.

08/15/2023

GALA TICKETS ON SALE NOW!!!

Beating brain cancer requires the power of the whole community. Brain cancer research requires time and dedicated philanthropic investment, particularly when research funding in the field is in decline. Site-specific research for the most lethal and complex adult and childhood cancers must not diminish.
Nine Canadians a day are relying on us to make a difference.

Brain Cancer Canada, and event sponsor Auto|One Group invite you to join us, on Friday, October 6, at Paramount Event Space, for the 2023 Gala for Brain Cancer Research. Be a part of an elegant and entertaining event and invest in Canada’s next brain cancer breakthrough by purchasing a ticket or becoming a sponsor.

Visit https://braincancercanada.akaraisin.com/ui/2023gala/event to purchase tickets or sponsor.

05/18/2023

« j’affirme espérer de tout cœur que, grâce à cette collaboration du Sénat et de la Chambre, aujourd’hui marquera le dernier 17 mai avant que cette journée devienne officiellement reconnue comme étant la Journée nationale de sensibilisation au GITC au Canada. » / "I sincerely hope that, thanks to this collaboration between the Senate and the House, today will mark the last May 17th before it officially becomes National DIPG Awareness Day in Canada."

Merci! Joël Godin - Député de Portneuf—Jacques-Cartier! Merci!

💛

05/17/2023

Merci! Thank you! Brain Cancer Canada

GRANT ANNOUNCEMENT 📢 Brain Cancer Canada (BCC) has just matched the incredible $50,000 raised by the relentless DIPG community, bringing the total to a extraordinary $100,000! This grant is awarded to the brilliant Dr. James T. Rutka, Paediatric Neurosurgeon at SickKids Foundation, and his team, pioneering a novel approach to combat Diffuse Intrinsic Pontine Glioma (DIPG), a disease without effective treatments.

“The primary aim of our research is to explore innovative methods to deliver therapeutics more effectively to DIPGs,” Dr. Rutka said. “We are excited that our encouraging pre-clinical studies on DIPG have now been translated into the ‘first in human’ clinical trial for children with this otherwise fatal brainstem tumour. By combining MRgFUS with patient-specific biologicals, we hope to increase the concentration of active compounds within this brain-stem tumour, potentially influencing tumour growth and survival.”

Click link for official press release: https://www.globenewswire.com/news-release/2023/05/17/2671067/0/en/Brain-Cancer-Canada-Matches-Community-Fundraising-to-Support-Groundbreaking-DIPG-Research.html

We are thankful for the support offered by all involved in the DIPG community, and incredibly grateful for the efforts of the Borkowski, Morissette-Gagne, Ellsworth, Palmowski and Shankar families. It's your strength, your resilience, and your unwavering commitment that has brought us here today.

This is neither the beginning nor the end of this fight. We're in this together, for the long haul.

To everyone who's contributed, whether through fundraising, raising awareness, or lending emotional support, we see you and appreciate you. Thank you.🩶💛

This grant is the third of five Brain Cancer Canada will issue in May 2023 as part of the Gray in May brain cancer awareness month campaign. By providing crucial funding for high-risk, high-reward projects like Dr. Rutka’s, Brain Cancer Canada aims to accelerate the development of new therapies and improve the lives of those affected by brain cancer.

05/17/2023

Merci! Thank you CN Tower / Tour CN

For years, DIPG families across Canada have been fervently petitioning the Canadian government to designate May 17th as DIPG Awareness Day, following the lead of Australia, the United States, and some countries in Europe.

We are thrilled to announce their persistence is so close to paying off. Next year, at this time, May 17th should officially be recognized as DIPG Awareness Day in Canada.

Tomorrow, the CN Tower will light yellow💛 and grey🩶 for DIPG awareness.

BCC would like to thank Ambassadors, Michal and Jackie Borkowski for arranging this special lighting for their DIPG angel, Isabelle, and all the other families who have been affected by this most dreadful disease.

🧠ABOUT DIPG
Diffuse Intrinsic Pontine Glioma (DIPG) is an aggressive, cancerous tumour that develops in the brain stem (pons). This area of the brain controls basic functions: breathing, hearing, talking, vision, and more. It is the most lethal type of pediatric brain cancer, and the #1 cause of cancer death in children under 15. There are no known effective treatments, with a survival rate of 0%. Surgery is typically not recommended because the outcome would likely cause more harm than good. Unlike with many other types of pediatric cancers, there has been very little progress in finding effective treatments, due to the location of the tumour as well insufficient funding.

NOTE: The CN Tower Toronto lighting begins at sunset but will not be fully visible until the sky darkens sufficiently, approximately 30 minutes later. If you can’t make it to Toronto, you can catch the lighting on Earthcam https://www.cntower.ca/live-views

Brain Cancer Canada would like to thank in Toronto for their ongoing support in helping us shine a light on the need for greater awareness and funding for malignant brain tumours.

05/17/2023

Thank you! Merci Town of Carbonear

05/17/2023

It has been a few months since we've shared an update about our efforts to petition the federal government to declare May 17 National DIPG/GITC Awareness Day in Canada. / Il y a un moment que nous n’avons pas partagé une mise à jour concernant notre pétition pour déclarer le 17 mai la Journée Nationale de sensibilisation au GITC/DIPG.

Much as been happening behind the scenes and it feels incredibly fitting to be sharing this news with you today, on May 17! / La majorité des avancées ont eu lieu derrière la scène, mais cette mise à jour est très importante en ce 17 mai.

On April 20 Joël Godin - Député de Portneuf—Jacques-Cartier shared some amazing news! With the help of Senator Yonah Martin, Bill S-260 was tabled for its first reading in the Senate. If Bill S-260 is approved by the Senate, May 17 will become a National DIPG/GITC Awareness Day! To say we are grateful and in awe of this news is an understatement! / Le 20 avril, le député Joël Godin - Député de Portneuf—Jacques-Cartier a partagé une nouvelle incroyable! Avec l'aide de la sénatrice Yonah Martin, le projet de loi S-260 a été déposé en première lecture au Sénat. Si le projet de loi S-260 est approuvé par le Sénat, le 17 mai deviendra une journée nationale de sensibilisation DIPG/GITC ! Dire que nous sommes reconnaissants et impressionnés par cette nouvelle est un euphémisme !

Bill S-260 still has a few steps to follow through official Senate procedures before it is officially approved so we are all anxiously awaiting confirmation of its final approval and will share news here as soon as we know! / Le projet de loi S-260 a encore quelques étapes à suivre dans les procédures officielles du Sénat avant son approbation officielle, nous attendons donc tous avec impatience la confirmation de son approbation finale et partagerons des nouvelles ici dès que nous le saurons !

Thank you MP Joel Godin and Senator Yonah Martin! Because of you, families faced with DIPG/GITC will be seen. Official recognition of May 17 as DIPG/GITC Awareness Day in Canada is a very large step towards more support, treatment and a cure! We are all so grateful for your support! / Merci au député Joël Godin et à la sénatrice Yonah Martin! Grâce à vous, les familles confrontées au DIPG/GITC seront reconnues. La reconnaissance officielle du 17 mai comme Journée de sensibilisation DIPG/GITC au Canada est un très grand pas vers plus de soutien, de traitement et de guérison! Nous sommes tous très reconnaissants de votre soutien !

Link to view Bill S-260: https://www.parl.ca/DocumentViewer/en/44-1/bill/S-260/first-reading?col=2
Lien pour voir le projet de loi S-260 : https://www.parl.ca/DocumentViewer/fr/44-1/projet-loi/S-260/premiere-lecture?col=2

Thank you to all the MP's who have supported past petitions / Merci à tous les députés qui nous ont appuyés Joël Godin - Député de Portneuf—Jacques-Cartier, Alex Ruff, MP (Bruce-Grey-Owen Sound), MP Julie Dabrusin (Toronto-Danforth), MP Terry Sheehan (Sault Ste. Marie) and Mr. Stephen Fuhr (former MP Kelowna—Lake Country).

An extra special thank you to the families who initiated the 4 previous petitions that helped to get us to this point. / Un merci bien spéciale aux familles ayant initiées les 4 premières pétitions, nous ainsi permis d’en arriver à cette nouvelle aujourd’hui.

Stay tuned! We told you, this is just the beginning of our fight in honour of our brave warriors! We do this all for them. / Restez à l’affût. Nous l’avions promis, cela n’ait que le début de notre combat pour honorer nos guerriers. Tout ça, c’est pour eux.
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04/22/2023

With your help we were able to raise $50k dollars which was matched by Brain Cancer Canada for a total of $100k. Thank you ❤️

This money has been allocated already to a DIPG trial at Sickkids Hospital with Dr. James Rutka.

12/31/2022

If you are planning on making a year-end gift, would you consider donating to pediatric brain cancer research?

Back in November, Brain Cancer Canada pledged a donation match of up to $50,000 towards a research grant to study DIPG - the #1 cause of cancer death in children under 15. We need help to reach our goal and making possible a grant of up to $100,000 to doctors and scientists who are fighting to save children diagnosed with the pediatric brain cancer with 0% survival.

https://lnkd.in/gVfBZugx

Your donation doesn’t just help BCC fund critical pediatric research; it also allows them to gift a child diagnosed with cancer one of their snuggly new ambassadors and a Certificate of Bravery (pics below) - for any donation over $250. Because of generous donations received to date, BCC has already been able to deliver over 30 gifts to paediatric cancer units across the country: Janeway Children’s Health and Rehabilitation Centre in Newfoundland, CHUL, Charles-Bruneau in Quebec, and McMaster’s Children’s Hospital in Ontario. Your support can help deliver more.

Wishing you and your loved ones best wishes for a healthy and happy new year.

With gratitude.

P.S. Contributions received by December 31 are eligible for a 2022 charitable tax receipt.

11/23/2022

This holiday season, you can double your impact. Brain Cancer Canada will match your donation, up to a total of $50,000, towards a research grant to study Diffuse Intrinsic Pontine Glioma (DIPG).

DIPG is the most lethal type of pediatric brain cancer – the #1 cause of cancer death in children under 15. DIPG is an aggressive high-grade glioma that lives in the brainstem of children, with no known effective treatments. The survival rate is 0%.

No child should be given less than one year to live.

With your gift, you are making possible a grant of up to $100,000 to doctors and scientists who are fighting to save children diagnosed with DIPG.

With a donation of $250 or more, you can fund critical DIPG research AND gift one of our snuggly new ambassadors to a child diagnosed with cancer.

Donate Now: https://braincancercanada.akaraisin.com/ui/dipgresearch/donations/start
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En cette période de fêtes, vous pouvez doubler votre impact. Brain Cancer Canada s’engage à faire un don correspondant jusqu’à 50 000 $ à une subvention de recherches pour étudier le Gliome pontique intrinsèque diffus (GITC).

GITC est le type de cancer du cerveau pédiatrique le plus mortel – la première cause de mortalité par cancer chez les enfants de moins de 15 ans. DIPG est un gliome à forte teneur qui vit dans le tronc cérébral des enfants pour lequel il n’existe aucun traitement efficace connu. Le taux de survie est de 0 %.

Aucun enfant ne devrait avoir moins d'un an à vivre.

Avec votre cadeau, vous rendez possible une subvention de jusqu’à 100 000 $ à des médecins et à des scientifiques qui luttent pour sauver les enfants diagnostiqués avec GITC.

Avec un don de 250 $ ou plus, vous pouvez financer des recherches essentielles pour le GITC ET donner un de nos nouveaux ambassadeurs réconfortants à un enfant diagnostiqué d’un cancer.

Faites un don maintenant: https://braincancercanada.akaraisin.com/ui/GITC/donations/start