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The Lost Labia Chronicles, Toronto, ON (2026)

01/11/2025

Hey, beautiful soul.

Happy Saturday!

🎉 It's the Year of the V***a! 🎉

January 17th is right around the corner and you know what that means!? It’s LS awareness day. Yes. A day dedicated for this condition.

There will be a bunch of excited events and project launches that day, so stay tuned for a bunch of exciting announcements in the next few days.

Kick-off 2025 with us and renowned LS specialist at our FREE virtual event for LS Awareness Day!

🗓️ January 17th, 1:00 PM - 2:30 PM EST

✨ What you'll gain:

-Deeper understanding of LS through interactive case studies

-Increased knowledge with fun polls & quizzes

-Expert answers to YOUR questions during a live Q&A

-Don't miss this chance to learn from one of the top LS experts in the world! Space is limited, so register now! 👇

Comment lsaday to get a clickable link in your DM.

Be sure to like, save, and share this widely to help create noise and increase LS awareness everywhere.

Let’s make this year a big one for change in the VLS space!

***a ***arLichenSclerosus

11/18/2024

SPECIAL OFFER BELOW!⁠
⁠
Hey, beautiful soul.⁠
⁠
🌟 Transform Your Pelvic Health Journey with Penny! 🧘‍♀️✨⁠
⁠
Are you seeking a supportive community and effective tools to manage lichen sclerosus (LS) and pelvic floor health? Join Penny's Pelvic Health Yoga Membership and experience the power of live classes designed to promote affirmation, acceptance, and camaraderie! 💖⁠
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🌈 What The Membership Offers:⁠
⁠
Live Pelvic Floor Yoga Classes: Connect with others and find healing through movement and mindfulness.⁠
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Accessible Anytime, Anywhere: Enjoy recorded classes at your convenience—whether you're at home, on vacation, or navigating stressful moments like a pap smear or biopsy or procedure.⁠
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Incredible Resources: Dive into breathwork, podcasts, meditations, and curated music playlists that enhance your practice and well-being.⁠
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💬 What Our Members Say:⁠
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“I cannot put into words the gratitude, love, and appreciation I have for Penny and her work. Her classes provide physical, emotional, and energetic healing that has transformed my journey with LS.”⁠
⁠
✨ Try It for Yourself!⁠
Click the link in my bio for a 30-day free trial and enjoy 30% off your membership afterward! Discover the healing and support that awaits you on your pelvic floor pain journey. Link in bio or comment 'membership' below and I'll get that link over to ya asap!⁠
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🌿 Let's embrace this journey together! 💕⁠
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10/09/2024

Hey, beautiful soul.⁠
⁠
I hope you’re doing well and staying hydrated. If not, this is your gentle and friendly reminder to drink some water. ⁠
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Feeling isolated or scared to talk about your lichen sclerosus (LS) diagnosis? You're not alone! My latest blog post for LSSN is here to guide you through the process of opening up to others. 💬⁠
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🌿 We discuss the common feelings of isolation and shame that come with an LS diagnosis.⁠
🤗 Explore the benefits of sharing your story with friends and family.⁠
🚀 Learn how to prepare and have these important conversations.⁠
📖 Discover tips and guidance for talking to others about your LS.⁠
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Join us as we break down the barriers and stigma surrounding LS. Let's empower each other with knowledge and support! 💪⁠
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Click the link in my bio to read the full post or comment “Talk” in the comments below, and I’ll get that post over to ya!⁠
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Share your experiences and thoughts in the comments below.⁠
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Together, we can make a difference! 🌈⁠
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With love,⁠
Jaclyn⁠
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08/02/2024

Hey, beautiful soul.

Happy Friday. I hope you are doing well and staying hydrated. If not, this is your friendly and gentle reminder to drink some water. ⁠

The lichen sclerosus community often has many questions about LS and the urethra. For instance, you may wonder:

-Can LS impact the urethral/urethral opening,⁠

-What does fusing of the urethral opening look like,⁠

-Why does my stream of urine spray everywhere,⁠

-What can I do for overall urethral health with LS,⁠

- + much more.⁠

If so, you will definitely want to check out my latest video for LSSN where we tackle these questions and more with Dr. Rachel Rubin.

Dr. Rachel S. Rubin is a board-certified urologist and sexual medicine specialist. She is one of only a handful of physicians with fellowship training in sexual medicine for all genders. Dr. Rubin is a clinician, researcher, and passionate educator. In addition to being the former education chair and current Director-at-Large for the International Society for the Study of Women’s S*xual Health (ISSWSH), she serves as associate editor for the journal S*xual Medicine Reviews. Dr. Rubin completed her medical education at Tufts University, her urology training at Georgetown University, and her sexual medicine fellowship training with Dr. Irwin Goldstein in San Diego.⁠

Watch the video by clicking on the link in my bio or comment "Rubin video" in the comments and I will get that to ya!

With love,⁠

Jaclyn

⁠

Have you ever wondered about urethral health and LS?

01/12/2024

Hey, beautiful soul!

Mark your calendars! World Lichen Sclerosus Day is coming up and just around the corner.

January 17th is World Lichen Sclerosus; this is a day to raise awareness, celebrate advances made in research, and push for more change for a better future for all with lichen sclerosus.

Join Clare and me, on January 17th for our Instagram live at 12 pm Eastern Time/ 5 pm UK time.

Clare is one of the OG patient advocates and has been fighting hard and tirelessly for our community for years. She is the co-founder of lichen sclerosus/ vulval cancer UK awareness and a brilliant patient advocate.

During our live, we will address myths about LS, recent scientific advances, the current state of LS research, awareness efforts and much more!

Please share this post widely in your support groups and if you can, please join us and bring your questions.
If you cannot make it, the replay should be up shortly after we end the live.

With love,
Jaclyn

07/28/2023

Hey, beautiful soul.⁠
⁠
Happy Friday.⁠
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A while ago I shared an online survey with the online community asking questions about sexualhealth. ⁠
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One of the biggest pain points that was mentioned was low libido.⁠
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So many folks struggle with lichen sclerosus and low libido.⁠
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The truth is, libido is multifaceted and complex. Therefore, we brought expert speaker Dr. Lori Brotto on to discuss this topic. Dr. Lori Brotton is a Professor in the UBC Department of Obstetrics and Gynaecology, and a Registered Psychologist in Vancouver, Canada. She has been the Executive Director of the Women’s Health Research Institute of BC located at BC Women’s Hospital since 2016. Dr. Brotto holds a Canada Research Chair in Women’s S*xual Health.⁠
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She is also the author of Better S*x Through Mindfulness: How Women Can Cultivate Desire and The Better S*x Through Mindfulness Workbook. I own both and they are brilliant; highly recommend everyone order a copy of both.⁠
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To learn more about lichen scleorsus and low libido, click on the link in my bio to watch the video.
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With love,⁠
Jaclyn⁠
⁠

03/28/2023

Hey, beautiful soul. I hope you are staying warm and cozy. Let me know how your LS is doing in the comments below.⁠
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In my last post, I discussed what lichen sclerosus is, why steroids are the gold standard treatment, what version is best, how often you should use them, and the best practice for the application. ⁠
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But, you might still be wondering:⁠
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-What are the main side effects from using steroids to treat lichen sclerosus⁠
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-and, if I have any of those side effects, what are my options?⁠
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These are fantastic and important questions and I address these in today’s blog post. Treatment is a fundamental piece of getting your symptoms under control and getting into remission. However, many doctors do not discuss treatment options with us, let alone how to use our treatment, and what the benefits and risks are. In today’s post, I review different side effects that *may* accompany steroid use and what you can do if they happen to you. ⁠
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To read the post, simply click on the link in my bio or DM me saying ‘blog link please’ and I’ll get that to ya ASAP.⁠
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Be sure to bookmark that page and discuss your options with your doctor if you’re having difficulties with your steroid; there are many kinds of steroids and options available to you if the first kind you were prescribed doesn’t work for you.⁠
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With love, ⁠
Jaclyn⁠
⁠

03/24/2023

Hey, beautiful soul. Happy Friday!⁠
⁠
I hope you are doing well and staying hydrated. If not, this is your reminder to drink some water.⁠
⁠
Alright, today’s YouTube video is one that has been highly requested and I am happy to share it is now live on LSSN’s YouTube channel. Building on our seggsual health series, the focus of this video is clitoraal issues and lichen sclerosus. In this video, I touch on loss of sensation due to clitoraal fusing (something many of us with LS have). Further, I share three evidence-based options to help release the fusing and increase sensation (thereby increasing seggsual satisfaction).⁠
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Click on the link in my bio to watch the video today! Alternatively, DM me ‘video link please’ and I’ll get that to ya! ⁠
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Don’t forget to subscribe to LSSN’s channel (which is where I create LS videos) and leave a like on the video so we can show the algorithm that LS information is important.⁠
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There’s a lot to digest in this video, but I hope it provides you with a sense of hope!⁠

If ever you are struggling and need extra support, I offer 1:1 LS Peer Support Calls (link in my bio).⁠
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With love,⁠
Jaclyn⁠
⁠

03/14/2023

Hey, beautiful soul.⁠
⁠
Does this sound familiar to you?⁠
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“You have lichen sclerosus. It’s considered autoimmune. You are at a slightly higher risk for developing vulvar cancer. There is no cure. Apply your steroids daily”.⁠
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When I was diagnosed with LS, that is all the information and guidance I got from my general physician. “Apply your steroids daily” is vague and unhelpful. “How many times a day”, I wondered, “and where and how should I be applying the medication”? ⁠
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Many of us aren’t given information about our treatment plan when we are diagnosed. Your treatment plan is one of the most fundamental pieces with respect to managing your symptoms, slowing the progression of the disease, getting into remission, and reducing your chances of developing vulvar cancer.⁠
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In order to bring more evidence-based information and education to the LS community, I will be doing a treatment series on LSSN’s blog where I review various treatment options and what the science says about them.⁠

For today’s post, I start with ultrapotent topical corticosteroids. It will be a two-parter, so make sure you come back for more! In today’s post, I share what lichen sclerosus is, why steroids are the gold standard treatment, what version is best, how often you should use them, and the best practice for the application. In the next post, I will review different side effects that *may* accompany steroid use and what you can do if they happen to you. ⁠
Click on the link in my bio or DM me saying ‘blog link please’.⁠
⁠
Let me know how much information you were given about treatment when you were diagnosed in the comment section below.⁠
⁠
With love,⁠
Jaclyn⁠
⁠

The Lost Labia Chronicles

01/11/2025

11/18/2024

10/09/2024

08/02/2024

01/12/2024

07/28/2023

03/28/2023

03/24/2023

03/14/2023

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