Ride 4 Williams Syndrome - R4WS -

Ride 4 Williams Syndrome - R4WS - The RIDE FOR CHRISTIAN was a cycling event held as a tribute to individuals living with WS. Thanks! But there are major struggles as well.

The RIDE FOR CHRISTIAN is an annual cycling event being held as a tribute to individuals living with the genetic condition, Williams Syndrome. Williams Syndrome is a genetic condition present at birth, which affects individuals simply by chance. Despite medical hardships and intellectual challenges, people with Williams embrace life and everyone around them, with unconditional love and complete acceptance. It is characterized by several medical problems, including cardiovascular disease, developmental delays, and learning disabilities. However, these issues often occur side by side with striking verbal abilities, highly social personalities and a strong affinity for music. Williams Syndrome affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States. It is known to occur in every culture, as well as equally in males and females. Children with Williams Syndrome are known for being social, friendly and endearing. Parents often say the joy and perspective a child with Williams Syndrome brings into their lives has been unimaginable. The majority of individuals with Williams Syndrome have some type of heart or blood vessel problem. They typically develop hypercalcemia, dental abnormalities, musculoskeletal problems and/or kidney abnormalities. As a result, children with Williams Syndrome need costly and ongoing medical care. Early intervention programs (such as speech or occupational therapy) are instrumental in determining one’s success. The RIDE FOR CHRISTIAN was established to raise awareness about Williams Syndrome. All money raised from the 2014 RIDE FOR CHRISTIAN will go towards genetic research through the SickKids Foundation. Together, we can build a better future for children and adults with Williams Syndrome.

May - Williams Syndrome Awareness Month!
05/02/2019

May - Williams Syndrome Awareness Month!

Increased knowledge of Williams syndrome is a year-round priority for the WSA. Our vision is that all individuals with Williams syndrome will have the support they need throughout their lifespan to live healthy, self-directed, productive and fulfilling lives, and that is a tall order. That’s why e...

04/25/2019

R4WS
Next Cycling Event: TBA

Please Note page Header Not Accurate at this time.

04/25/2019

Many thanks to All Cyclists , Volunteers, Friends, and Sponsors of R4WS for all their continued Support !

With Gratitude,
Christian, Liam and Roger

Next Ride: TBA

07/28/2017

Dear Friends of R4WS ,

Our Ride this year has been postponed to next year .

1. All registered cyclists will be automatically registered to R4WS coming July 29, 2018.

2. Any registered cyclist wishing a refund fir the 2017 Registration please advise and contact Roger at rbarrett@rideforchristian.com.

3. All cyclists that raised funds in 2017 will be eligible for all contests in 2018 based on Funds raised .

Many thanks for your continued patronage and support!

Roger

05/14/2017

Happy Mothers's Day to my Mom!

Happy Mothers Day to all Moms!

Mark your Calendars Sunday July 29, 2018R4WS - RIDE 4 Williams Syndrome Our classic grass roots ride returns .Note : All...
04/18/2017

Mark your Calendars
Sunday July 29, 2018

R4WS - RIDE 4 Williams Syndrome

Our classic grass roots ride returns .

Note : All funds raised , and donations go directly to
SickKids Foundation where you will receive a receipt from SickKids directly to your email .

Please support the much needed research for 30, 000 children diagnosed with Williams Syndrome in Canada .

Please see attached video link
Why you should support SickKids Today !

https://youtu.be/2MFrTJpdzkk

Many Thanks for your kind consideration
Roger
President & CEO
R4WS - RIDE 4 Williams Syndrome

Formerly : RIDE FOR CHRISTIAN - Williams Syndrome .

REGISTER TODAY !
rideforchristian.com
Garmin Edge 820 Bundle or Cash Card for Equal Value Contest

Please help us get the word out to cyclists and share this post .
R4WS Presents:

Pfaff Porsche Car Show
Pfaff Audi Car Show
Partnership with OCA since 2014 our First Year
Organic BBQ
Complimentary " Barley Water "
Live Jazz Band
Garmin 820 Bundle
Ice Cream Truck
Meet Toronto Hustle

Donate at www.sickkidsfoundation.com A small but touching glimpse into the lives of patients and their families at SickKids.

02/10/2017

To Whom It May Concern:

SickKids Foundation is extremely pleased to recommend to you an exciting opportunity to support The Hospital for Sick Children (SickKids) through the R4WS – Ride 4 Williams Syndrome (formerly known as Ride for Christian – Williams Syndrome) event which is a community fundraiser that supports the Williams Syndrome Research Fund and the work of Dr. Ronald Cohn, Chief of Genetics at The Hospital for Sick Children.

This year’s event will be held on July 30, 2017.

The Ride for Christian started in 2014 as the first-ever cycling event held as a tribute to individuals living with the genetic condition, Williams Syndrome and to date, the ride has raised $50,000 for the hospital.

Because of the support SickKids receives from this event and other initiatives like it, important advances have been made in child health research, new life-saving medical equipment has been purchased for our clinics and operating rooms, and our young patients continue to receive the best care that science, technology, and compassion have to offer – here in Canada and around the world.

In order to ensure success, the organizers of R4WS – Ride 4 Williams Syndrome require support from companies, organizations, and individuals who share their vision and hope for improved child health. It is my hope that you will consider supporting this initiative.

Your commitment will not only ensure that this event is a fundraising success, it will also make a real difference in the lives of children today and for generations to come.

If you are able to lend your support to this event, please accept our deepest gratitude. Please note this letter is valid for one year from the date issued. Should you have any questions, please contact me at (416) 813-6166 x 2234.

Please direct corporate sponsorship to:

R4WS - RIDE 4 Williams Syndrome
C/O Regency Medical Centre
2737 Keele Street, Suite 110 Toronto, ON, M3M 2E9
Att: Roger Barrett
E: rbarrett@rideforchristian.com
T: 416-398-8300
Thank you for your generosity, and for supporting SickKids’ vision: Healthier children. A better world.

Sincerely,
SickKids Foundation
525 University Ave 14th Floor Toronto ON M5G 2L3 Phone: 416.813.6166
Fax: 416.813.5024
Toll Free: 800.661.1083
www.sickkidsfoundation.com
Canada Revenue Agency Charitable Business
Number: 108084419RR001
February 7, 2017

Niyousha Nejatpour Community Events Associate
SickKids Foundation
525 University Ave 14th Floor Toronto ON M5G 2L3 Phone: 416.813.6166
Fax: 416.813.5024
Toll Free: 800.661.1083
www.sickkidsfoundation.com
Canada Revenue Agency Charitable Business
Number: 108084419RR001

10/21/2016

Hello Everyone ,

Christian is in Grade 2 this year and in his 3rd year at school with a measurable IEP .

However , we have been informed he will no longer receive a F/T Teaching Assistant in class , it's been reduced to half day .

Has anyone been faced with this challenge and please share and send all thoughts and advice to support his claim for a F/T Teaching Assistant .

Thanks
Roger

10/13/2016

Christian Surgery today is a Success !
Many thanks to all for all your positive thoughts and prayers .

Roger

Address

Toronto, ON

Telephone

+14162198847

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