Sickle Cell Awareness with NAOMI

Sickle Cell Awareness with NAOMI This page is to create awareness to all sickle cell warriors “sicklers “ out there like myself.

06/04/2026

According to history, SCD was first discovered in 1910 by James B. Herrick, an American in Chicago, when he discovered or observed abnormal sickle-shaped red blood cells in a student from Grenada.

It was demonstrated in 1927 that low oxygen conditions cause the cells to sickle by Hahn and Gillespie.

In 1949, Linus Pauling, Harvey Itano, and Colleagues published a landmark study showing SCD is caused by an abnormal “hemoglobin S” molecule, making it the first known “molecular disease”.

Although Sickle cell disease was discovered in 1910 by James B. Herrick, the term “sickle cell” was not introduced until 1922 by Vernon Mason. It is said that the name was inspired by the crescent or sickle-like shaped of the red blood cells observed under the microscope.

From the aforementioned, we might really think that SCD was discovered or first known in 1910 but that’s untrue because during the 1600s in Africa, Sickle cell disease was present but it was not yet known as it is called presently nor understood but instead, people with the disease were known or referred to as “Ogbanges” which means “children who come and go”, because of the high mortality rate of the disease.

Sickle cell disease has a high prevalence in Africa because of the presence of malaria. It is said that, out of four babies born with Sickle Cell Disease in the world, three of that four will be from Africa just to show us how prevalent it is in the African Continent.

That is why I will keep stressing on the fact that we should take awareness seriously and know our genotypes before indulging or committing into any serious relationships or marriages.

The world is evolving but still yet there are still high birth and death rates of Sickle cell disease annually across the world, irrespective of the fact that there are awareness programs, adequate medical care, understanding of the disease as compared to before, new born screening etc.

Let’s take awareness seriously so as to spare children from future pain, suffering and high mortality rates.💜🌸

Nora Brown Official DiDi DiaMond FUNI Dieudonne

23/03/2026

I was recently hospitalized because of sickle cell disease. This jogged some memories and reminded me that living with the disease goes hand in hand with uncertainty. One moment you are fine and the next you are not. Coupled with the antagonizing pain you go through. It hasn’t been an easy journey living with sickle cell since infancy till tomorrow but nonetheless, I am always grateful to God for always strengthening me and bringing me out from every crisis alive. In a nutshell, know your genotype before committing to anyone. Because living with SCD is no joke. Not only the child suffers but the parents too and the family at large.
Courage to every warrior out there..💜🌸

Brown Official,FUNI Dieudonne DiDi DiaMond

06/03/2026

Living with sickle cell is not something many people understand unless they experience it.

There are days when the pain and crisis are so overwhelming. The hospital visits,the fatigue,the tears you shed because of the excruciating pain and not to mention the various injections and cannulas pierced onto your skin.

I for one is a living prove because I have undergone and is still under going so much pain as a result of a sickle cell crisis that I wouldn’t even wish on my worst enemy. There are episodes where I will wish I was never born(though it’s a terrible thing to say or think of). Other moments I will wonder why I am going through all this pain and suffering.

There are also moments when I will go into a crisis and my dad will have no money to take me to the hospital. Mind you,raising a sickler is not something to joke with since it requires a lot of financial assistance, constant care and monitoring, but since I am from a struggling family, there are times when I will go into a crisis and there will be no money to take me to the hospital. Thankfully, I have a father who is very much intelligent and thinks out of the box. On days like that,he will tell my senior brothers to make fire in the kitchen so I can go and sit beside and warm myself so the blood cloth in my joints can dissolve and freely flow so that the pains can subside . When that fails,my father will resort to warming water so as to use it and massage the areas where the pains are and that usually gets the job done.

I come from a family of six,my dad,my mum and my 3 older brothers. I am the last born and the only girl,and also the only child with Sickle cell Disease. My brothers have been very caring and supportive in this journey. There was a time when I went into a crisis on Monday( which is a ghost time in Bamenda). This means there is no means of transportation since everyone is said to be indoors on such days. The severity of that crisis made me not to be able to move. My legs became very weak and I couldn’t move them and as a result,my elder brothers had to take turns in carrying me to the hospital on their backs which was further away from where we lived. I am writing this with tears in my eyes because the journey as a sickle cell patient hasn’t been easy for me and my family since when I was little till tomorrow.

Being a sickle cell patient hasn’t been easy for me but I will never allow it DEFINE me.! There are times when I will go to the hospital and nurses will ask me questions like” how many siblings do you have and how many of them are like you” like me how? Let’s ride on; when I answer and tell them i am the only one,they will be like” so you are the unfortunate one” just listen to what a health personnel is saying to “sickler”, but the fun fact is that,I never let such statements or comments get to me because I know who I am!.

“ To every Sickle Cell Warrior out there,you are stronger than you think. Your condition does not define your worth or your future”.💜
Nora Brown Official

NAOMI💜🌸

06/03/2026

Welcome to Sickle Cell Awareness with Naomi 💜🩸

This page was created to educate, inspire, and create awareness about sickle cell disease.

For many people, sickle cell is just a word they have heard before. But for some of us, it is a reality we live with every day the pain, the strength, the battles people cannot see, and the courage it takes to keep going.

Through this page, I want to Educate people about sickle cell disease, Encourage sickle cell warriors who are fighting every day, Create awareness about the importance of knowing your genotype, Share real experiences and helpful information

My goal is simple; to spread knowledge that can save lives and build understanding.

If you believe more people should learn about sickle cell, please follow this page and share this message so we can reach more people.

Together we can build a community of awareness, support, and hope. 💜
Nora Brown Official
Sickle Cell Awareness with NAOMI

Naomi💜🌸

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