Aminata’s Trisomy 13 journey

Aminata’s  Trisomy 13 journey Aminata is diagnosed of Trisomy 13 , 2 weeks after birth of 36 weeks pregnancy .

Missing them
20/07/2025

Missing them

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17/07/2025

Aminata, sweet and true,
Defied the odds, shone through.
With love and care, you lived your life,
Six years of joy, laughter, and strife.

Though blind, your heart saw so much more,
Recognizing love, forever in store.
A nod of your head, a smile so bright,
Communicating love, in your own light.

You taught us to cherish every day,
To love without condition, come what may.
Your life was precious, a gift so rare,
A treasure to behold, beyond compare.

In memory, your love will stay,
A beacon of hope, guiding us on our way.
Aminata, dear one, you may be gone,
But in our hearts, your love lives on.

27/05/2025

WHAT IS AUTISM SPECTRUM DISORDER

Autism Spectrum Disorder (ASD) is a neurological and developmental disorder that affects how individuals perceive and interact with the world around them. It's characterized by differences in:

1. *Social interaction and communication*: People with autism might have difficulty understanding social cues, initiating or maintaining conversations, and developing relationships.
2. *Repetitive behaviors or interests*: Individuals with autism might exhibit repetitive movements, have strong interests in specific topics, or follow strict routines.

The term "spectrum" refers to the wide range of symptoms, skills, and levels of disability that can occur in people with autism. Each person with autism is unique, and their experiences can vary significantly.

Some common traits associated with autism include:

- Sensory sensitivities
- Difficulty with changes in routine
- Strong attention to detail
- Repetitive behaviors or movements
- Challenges with social interactions or communication

It's essential to understand that autism is not a disease or defect, but rather a neurological difference that requires acceptance, accommodation, and support. By promoting inclusivity and understanding, we can create a more supportive environment for individuals with autism to thrive.

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I've received 400 reactions to my posts in the past 30 days. Thanks for your support. 🙏🤗🎉
09/03/2025

I've received 400 reactions to my posts in the past 30 days. Thanks for your support. 🙏🤗🎉

20/02/2025

Forever in my heart

Aminata will be laid to rest today. I will keep you updated
31/01/2025

Aminata will be laid to rest today. I will keep you updated

Happy birthday to my priceless jewelBest wishes , it’s been six years through the journey of trisomy 13We are grateful L...
09/01/2025

Happy birthday to my priceless jewel
Best wishes , it’s been six years through the journey of trisomy 13
We are grateful Lord

Big shout out to my newest top fans! 💎Alusine Koroma
24/11/2024

Big shout out to my newest top fans! 💎

Alusine Koroma

🌐 Today is Genetic Counseling Awareness Day! 🌐Genetic counselors play an essential role in helping families and individu...
09/11/2024

🌐 Today is Genetic Counseling Awareness Day! 🌐

Genetic counselors play an essential role in helping families and individuals understand the complexities of genetic conditions, testing options, and the implications of their results at every stage of life:

* Before Birth: They support couples who may carry a higher chance of passing on inherited conditions.
* Childhood: Counselors guide families when a child has a suspected or confirmed genetic condition.
* Adulthood: They assess risks for conditions like cancer based on family history, helping with preventive care and informed decisions.

Have you met with a genetic counselor? We’d love to hear about your experience and how they helped you and your family.

16/08/2024

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