Tommyqs Neuroblastoma Fight

Tommyqs Neuroblastoma Fight Cheeky, car loving three year old, fighting stage 4 high risk Neuroblastoma 💛

📍https://gofund.me/f7f7434c

💛Tommy Update 💛It’s been a while. We have been enjoying some festivities and had some time settling back into a routine ...
16/01/2026

💛Tommy Update 💛

It’s been a while. We have been enjoying some festivities and had some time settling back into a routine after illness, Christmas and New Year celebrations.

Today is scan day for Tommy.

We are holding onto hope that the results bring positive news and allow him to continue on his path of healing and recovery. We are hopeful to receive the results of these scans in the next week or so.

Thank you from the bottom of our hearts for the continued love, prayers, messages, and support—you are carrying us through this more than you know. 🙏

The Quinns

🦁 💛

Tommys decided to take up cooking 🧑‍🍳 If anyone is needing a new year meal rustled up, get in touch, small fee for produ...
30/12/2025

Tommys decided to take up cooking 🧑‍🍳

If anyone is needing a new year meal rustled up, get in touch, small fee for products only 🤣

This post may seem insignificant to some but Tommy actually ATE some of this meal after helping to make it.

Tommy’s diet has been so limited following treatment that we will take any opportunity to get him back to the food loving child he used to be pre cancer diagnosis!

First round of Tommys immunisations started again. Following Tommys stem cell transplants, his whole immune system was r...
29/12/2025

First round of Tommys immunisations started again.

Following Tommys stem cell transplants, his whole immune system was re-set which includes all immunisations he had as a baby. We had to wait a year after his second transplant before we could consider re-commencing immunisations.

X3 jags today and Tommy smashed it like a boss! Another step closer to being safe to live a normal life again 🫶

Tommys first Panto ✅ SUCCESS! Tommy was asked up onto the stage (randomly!) walked all the way around for him to refuse ...
21/12/2025

Tommys first Panto ✅ SUCCESS!

Tommy was asked up onto the stage (randomly!) walked all the way around for him to refuse to go on without me 🤣

‘He’s behind you!’

Unfortunately, Tommy’s scans have been delayed due to inflammation in his lungs caused by his recent flu. This is normal...
17/12/2025

Unfortunately, Tommy’s scans have been delayed due to inflammation in his lungs caused by his recent flu. This is normal after this virus, however, the anaesthetist feels it would be too risky to put Tommy to sleep.

We’ve been told they will now take place in around three weeks.

This has been incredibly hard and frustrating news to hear (especially after fasting Tommy!) but we understand why the delay is necessary, to ensure Tommy’s safety.

For now, we will enjoy a very merry Christmas together, and praying that January 2026 brings reassuring news when his scans finally take place.

Thank you so much to everyone who took part in Tommy’s Bonus Ball 💙Because of your support, fairy box items, selection b...
15/12/2025

Thank you so much to everyone who took part in Tommy’s Bonus Ball 💙

Because of your support, fairy box items, selection boxes, Christmas PJs and toys were donated to children spending Christmas in our local hospital 🎄✨

Your kindness has helped bring smiles at a really special time of year — thank you all 🤍

Blissfully unaware I’m about to beat him at Connect 4!Wonderful few days at The Ripple Retreat. Well needed R and R 🥹We ...
15/12/2025

Blissfully unaware I’m about to beat him at Connect 4!

Wonderful few days at The Ripple Retreat. Well needed R and R 🥹

We are currently waiting on a very special guest arriving! 🎅

The Quinns 🦁 💛

Today is International Neuroblastoma Day.Eighteen months have changed us forever. We carry the fear, the hope, the sleep...
05/12/2025

Today is International Neuroblastoma Day.

Eighteen months have changed us forever. We carry the fear, the hope, the sleepless nights, and the tiny moments of joy that kept us going. We are endlessly grateful for the treatment and care that helped us through, and for the people who stood beside us when everything felt impossible.

But our gratitude lives alongside a deeper truth: so much more needs to be done. No family should have to face what so many of us have endured. Our children deserve gentler treatments, better options, and real hope for the future.

And we won’t stop—we won’t stop raising awareness, we won’t stop speaking up, we won’t stop fighting—until better, kinder treatments are available for every child facing neuroblastoma!

Today, our hearts are with all the warriors, the survivors, the angels 👼 and the families who carry unimaginable strength every single day.
💛🎗️

Here’s my warrior, currently on day 58/730 of DFMO treatment to try and keep this horrible illness from returning!

26/11/2025

🔔 DING DING 🔔

593 days since treatment began.
8 rounds of intensive chemotherapy
Stem cell harvest
Tumour resection
X2 stem cell transplants
Sternotomy
12 rounds of radiotherapy
6 rounds of immunotherapy
Over 230 nights in hospital (not including day trips!)
49/730 days of DFMO
Various central line replacements/blood transfusions/NG replacements.

TOMMY RINGS THE BELL 🔔

Hero.

26/11/21 🎈 birthday!
26/11/25 🔔 officially kicked cancers butt 💛

Tommy Quinn, you fought like a super hero and showed cancer who was boss. We are forever proud!

Tommy is in bed and the Quinn’s are away to try and celebrate this momentous occasion that we did not think would happen when diagnosed in April 2024.

Onwards and upwards!

Cheers to Tommy Quinn 👏

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