27/08/2025
Hello all you parent carers at the more extreme end of things :-)
We are talking rare chromosome conditions, feeding tubes, early surgeries or multiple surgeries, Downs syndrome, syndromes without a name, learning disabilities, suction tubes, regular medical procedures, no/low mobility, or anything else that makes you feel that you might well be at the more extreme end of things with your child, disability-wise. If you are unsure please don't hesitate to check, or just come along and try it for size and vibe!
If your child is over 5 but you still feel very lost in it all, please do come along - we aren't strict about ages.
This is a space for
-those of us who are finding ourselves part of a club that we never wanted to be part of (or never thought we did),
-those who are feeling like a bomb has gone off in their life
-those who are overwhelmed by the care-needs of their child
-those who feel isolated from main-stream parents or even their own extended family
-those whose hearts swing between hope and dread for their child's future
-those who want to feel a sense of belonging with a parent group who may well get it
We meet monthly, first Thursday of the month, 10-12 at St Annes house. Support with child care is provided in the same room if you book in advance.
Book via our linktree or here: https://www.eventbrite.co.uk/e/1214803743699?aff=oddtdtcreator
Feed back from one of our participants:
'Navigation and Nurture allows much needed space to find solutions to practical issues and over complicated systems for disabled children. The Nurture element is a perfect monthly well being check in, as we travel on this emotional rollercoaster. The community of people who get it is vitally important too.'
