Scleroderma Unit Royal Free Hospital

Scleroderma Unit Royal Free Hospital Scleroderma is a rare chronic autoimmune disease affecting the vascular system and connective tissue. There is currently no cure.

Scleroderma patients are desperate for a cure and improved treatments, with many unmet clinical needs - please donate to Prof Denton's research where 100% of your donation will be used for research.
Investment in medical research is desperately needed. The Scleroderma Unit led by Prof Chris Denton is a worldwide healthcare centre of excellence for medical r

esearch. Please donate where 100% will be used for scleroderma medical research purposes only :

https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

https://royalfreecharity.org/events/scleroderma-awareness-2020/ scleroderma-raynauds

http://www.scleroderma-royalfree.org.uk/Mission_Statement.php

https://academic.oup.com/rheumatology/article/55/10/1906/2196591/BSR-and-BHPR-guideline-for-the-treatment-of

Early diagnosis is crucial to prevent irreversible life threatening damage. Professor Chris Denton studied medicine at Guy’s Hospital in London and obtained a PhD from University College London and trained in connective tissue diseases in London. Following a Wellcome Trust Advanced Fellowship in molecular genetics at the M.D. Anderson Cancer Center in Houston, USA he was an Arthritis Research UK Senior Clinical Research Fellow 2000-2010. He has published extensively on laboratory and clinical aspects of connective tissue disease and pulmonary hypertension. He leads a large clinical programme in scleroderma at the Royal Free Hospital and co-ordinates multidisciplinary care for more than 1400 patients. He was previously chair of BSR's Heberden Committee and currently chairs the UK Scleroderma Study Group (UKSSG). Although, I, Nicola Whitehill, run this page, I have set it up in the hope that it will be a vibrant community with much patient participation by way of sharing experiences of Scleroderma and the Scleroderma Unit . As well as, a helpful source of information. I am eternally grateful to Prof Denton and Dame Prof Carol Black.



blog.raynaudsscleroderma.co.uk

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http://www.scleroderma-royalfree.org.uk/

31/05/2026

June is 🌻
We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW πŸ™

2026: celebrating 31 years of the Scleroderma Unit Royal Free Hospital. Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton, Prof Oong, Dr Kevin Howell and team.

Medical research provides hope. Hope that the cure, better treatments and better understanding of the cause of scleroderma will be discovered. NIHR Research Delivery Network

There are currently 13 ongoing research trials for scleroderma at the Royal Free London NHS Foundation Trust. If you would like to take part in any of the scleroderma studies or would like some additional information, please contact the clinical trial team:

Email: rf-tr.rheumclinicaltrials@nhs.net.

Tel: 020 7317 7544.

https://royalfreecharity.org/how-we-help/research

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free Hospital. Your donation will be used for medical research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity:

Donation Page : https://royalfreecharity.org/donate

Choose your amount, then click, donate now.

Step 1, click on the box next to

'I'd like to donate to a specific appeal or fund'

Scroll down the menu until Scleroderma and Raynaud's option (last option in list). Click on this option.

OR

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Thank You πŸ™

'Living with a rare disease without a cure, is most character building, that's for sure' :

blog.raynaudsscleroderma.co.uk

Social Media:



YouTube

30/05/2026

June is 🌻
We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW πŸ™

2026: celebrating 31 years of the Scleroderma Unit Royal Free Hospital Royal Free London NHS Foundation Trust. Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton, Dr Kevin Howell and team.

Medical research provides hope. Hope that the cure, better treatments and better understanding of the cause of scleroderma will be discovered.

There are currently 13 ongoing research trials for scleroderma at the Royal Free hospital. If you would like to take part in any of the scleroderma studies or would like some additional information, please contact the clinical trial team:

Email: rf-tr.rheumclinicaltrials@nhs.net.

Tel: 020 7317 7544.

https://royalfreecharity.org/how-we-help/research

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free Hospital. Your donation will be used for medical research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity:

Donation Page : https://royalfreecharity.org/donate

Choose your amount, then click, donate now.

Step 1, click on the box next to

'I'd like to donate to a specific appeal or fund'

Scroll down the menu until Scleroderma and Raynaud's option (last option in list). Click on this option.

OR

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Thank You πŸ™

'Living with a rare disease without a cure, is most character building, that's for sure' :

blog.raynaudsscleroderma.co.uk

Social Media:



YouTube

16/05/2026
15/05/2026
12/05/2026

Happy πŸ₯³

Here I am with the amazing Rachel who is head nurse of clinical trials Scleroderma Unit Royal Free Hospital, at the annual family day, last year.

This year's family day is THIS Saturday, 16th May. Free to attend and accessible to all.

Living with a rare disease without a cure, is most character building, that's for sure!
blog.raynaudsscleroderma.co.uk

Medical research offers HOPE. Hope that improved treatments, better understanding and ultimately a cure will be found. NIHR Research Delivery Network

We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW πŸ™

There are currently 13 ongoing research trials for scleroderma at the Royal Free London NHS Foundation Trust

My experience of taking part in clinical trials:

https://blog.raynaudsscleroderma.co.uk/2017/04/taking-part-in-raynauds-scleroderma.html

https://blog.raynaudsscleroderma.co.uk/2018/09/medical-research-get-involved-take-part.html

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free Hospital. Your donation will be used for medical research purposes ONLY. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity:

Donation Page : https://royalfreecharity.org/donate

Choose your amount, then click, donate now.

Step 1, click on the box next to

'I'd like to donate to a specific appeal or fund'

Scroll down the menu until Scleroderma and Raynaud's option (last option in list). Click on this option.

OR

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a FREE, no cost, Will writing service ☝️

OR

Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

Thank You πŸ™

1 week to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³FREE, accessible t...
09/05/2026

1 week to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³
FREE, accessible to all, no ticket required.
HUGE thanks to the Royal Free Charity CTS team who will be providing FREE massages throughout the day πŸ˜‡
Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton and team πŸŒŸπŸ™

Read about scleroderma research Royal Free London NHS Foundation Trust :
https://royalfreecharity.org/how-we-help/research
https://royalfreecharity.org/focus/scleroderma/
https://royalfreecharity.org/news/story/grants-awarded-to-improve-patient-experience/
https://www.royalfree.nhs.uk/services/scleroderma

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free London NHS Foundation Trust. Every penny will be used for research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the :

Donation Page : https://royalfreecharity.org/donate
https://m.youtube.com/shorts/s_hGOWFigmU
Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

Thank You πŸ™


2 weeks to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³FREE, accessible ...
02/05/2026

2 weeks to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³
FREE, accessible to all, no ticket required.
If you are unable to attend, but would like to thank Prof Denton and the team, please comment below and I will pass your comments on.

Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton and team πŸŒŸπŸ™

Read about scleroderma research Royal Free London NHS Foundation Trust :
https://royalfreecharity.org/how-we-help/research
https://royalfreecharity.org/focus/scleroderma/
https://royalfreecharity.org/news/story/grants-awarded-to-improve-patient-experience/
https://www.royalfree.nhs.uk/services/scleroderma

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free London NHS Foundation Trust. Every penny will be used for research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity :

Donation Page : https://royalfreecharity.org/donate
https://m.youtube.com/shorts/s_hGOWFigmU
Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

Thank You πŸ™


3 weeks to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³
FREE, accessible to all, no ticket required.
If you are unable to attend, but would like to thank Prof Denton and the team, please comment below and I will pass your comments on.

Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton and team πŸŒŸπŸ™

Read about scleroderma research Royal Free London NHS Foundation Trust :
https://royalfreecharity.org/how-we-help/research
https://royalfreecharity.org/focus/scleroderma/
https://royalfreecharity.org/news/story/grants-awarded-to-improve-patient-experience/
https://www.royalfree.nhs.uk/services/scleroderma

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free London NHS Foundation Trust. Every penny will be used for research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity:

Donation Page : https://royalfreecharity.org/donate
https://m.youtube.com/shorts/s_hGOWFigmU
Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

Thank You πŸ™


3 weeks to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³FREE, accessible ...
25/04/2026

3 weeks to go, Saturday 16th May: annual family day and 31st year anniversary of the scleroderma unit πŸ₯³
FREE, accessible to all, no ticket required.
If you are unable to attend, but would like to thank Prof Denton and the team, please comment below and I will pass your comments on.

Eternal gratitude to Dame Prof Carol Black, Prof Chris Denton and team πŸŒŸπŸ™

Read about scleroderma research Royal Free London NHS Foundation Trust :
https://royalfreecharity.org/how-we-help/research
https://royalfreecharity.org/focus/scleroderma/
https://royalfreecharity.org/news/story/grants-awarded-to-improve-patient-experience/
https://www.royalfree.nhs.uk/services/scleroderma

Please donate to medical research to identify a cure and the cause of scleroderma, at the Scleroderma Unit Royal Free London NHS Foundation Trust. Every penny will be used for research purposes only. Thank You πŸ™

There are several ways as to how you can donate:

Via the Royal Free Charity:

Donation Page : https://royalfreecharity.org/donate
https://m.youtube.com/shorts/s_hGOWFigmU
Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.

Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/

The Royal Free Charity provides a free Will writing service ☝️

Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree

Thank You πŸ™


20/03/2026
27/02/2026

Tomorrow, 28th February,
'Living with a without a cure, is most character building, that's for sure' ... Read more:
blog.raynaudsscleroderma.co.uk
DYK:
The Scleroderma Unit Royal Free Hospital will be celebrating it's 31st year anniversary at the annual family day, Saturday 16th May 2026, FREE to attend, accessible to all. Eternal Thanks to Prof Chris Denton and team Royal Free London NHS Foundation Trust πŸ˜‡β­
https://royalfreecharity.org/how-we-help/research
Please donate to medical research to identify a cure and the cause of scleroderma, Scleroderma Unit Royal Free Hospital. Your donation will be used for medical research purposes only. Thank You πŸ™ NIHR Research Delivery Network
There are several ways as to how you can donate:
Via the Royal Free Charity:
Donation Page : https://royalfreecharity.org/donate
Scroll down to tick box 'your donation will be used where the need is greatest. However please tick this box if you would like to donate to a specific appeal or fund'. Click on the box to reveal 'a where would you like to give to' drop down menu. Scroll down to the Scleroderma and Raynaud's research option and click on this option.
https://youtube.com/shorts/s_hGOWFigmU?feature=share
Leave a gift in your Will : https://royalfreecharity.org/giftsinwills/
The Royal Free Charity provides a FREE Will writing service ☝️
Just Giving Page : https://www.justgiving.com/fundraising/sclerodermaunit-royalfree
Thank You πŸ™

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Buntingford

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