26/04/2026
This is utterly spectacular. This young man is the epitome of what it means to be solution focused and beat the demons of negative forecasting. It's a complete irony that a brain so positive and full of determination will take an unwanted path at some point, but the good that he will do in the meantime is a testament to strength, courage, living in the present and taking one step at a time. Even with a fridge on his back. Truly inspiring š
I'm 29 and running the London Marathon with a fridge on my back.
Because we are all carrying something. And we donāt have to carry it alone.
I was 15 when my mum was diagnosed with Frontotemporal Dementia.
No understanding. No roadmap. Just watching the person I loved slowly disappear.
For 6 years, my world became caring, grieving, and trying to make sense of something that never made sense.
Losing her piece by piece⦠and then losing her completely at 52.
In that same room where we were first told she had FTD, my life changed again.
I learned I had a 50% chance of inheriting it too.
That fear stayed with me.
It broke me at times.
But on the 12th September 2018, it became real.
I tested positive for the MAPT gene.
I will develop the same dementia in my 40s.
How do you process that?
Honestly⦠I didnāt, not at first.
I spiralled. Depression. Intrusive thoughts. Feeling like my future had already been written.
But what saved me was people.
Friends. Family. Support.
People who helped me carry the weight when it felt unbearable.
And thatās what this is about.
This marathon with a fridge on my back isnāt just a challenge.
Itās a symbol.
Because thatās what it feels like sometimes - like youāre carrying something heavy that no one else can see.
Iām doing this to make dementia visible.
But more than that⦠to show you that whatever youāre carrying, you donāt have to carry it alone.