Senski Support

Senski Support Senski is a voluntary service dedicated to providing information, advice and support for all matters

04/09/2022

As the school holidays end and another year commences, many children will be excited to get back to class and see their friends again. Some will be starting new adventures in a higher year group, some may be transitioning into secondary phase, further education, or even their first year of compulsory education. Others may be about to commence a placement in a suitable educational setting after years struggling in the wrong environment.

Many parents will be relieved that the holidays are over, that they can get back to the routine of school. Some are desperate for the break, looking forward to catching up with the familiar faces of the playground or excited to see their child take the next big step.

Some families will have been struggling without the help from free school meals, or with finding childcare during the holidays.

The return to school is a positive and exciting time for many. But it is important not to forget that for others, this is a time of dread, fear and despair. Children will be returning to unsuitable settings where their needs can't be met. There will be meltdowns, shutdowns, panic attacks, sleepless nights, uneaten breakfasts, dinners and lunches. There will be nausea, tears, anger, or resigned acceptance.

Parents will be taking a deep breath as they prepare to fight for the Needs Assessment, for the reasonable adjustments, for the correct placement, for the inevitable conversations.

Some children may not have a placement. They may have been excluded due to the way their distress manifests in school. They may be too anxious to set foot through the gate. Their mental or physical health may have become so affected that they can barely leave the house, let alone access a school environment. Some may have been offered the minimal provisions for children without a suitable placement. Others' caregivers may be facing prosecution by Local Authorities who fail to acknowledge the validity of their illnesses. Many families are merely left to fend for themselves.

Some families will have been led to believe that their only option is to choose Elective Home Education, and are now solely responsible for their child's education with minimal resources. Others would do anything to be able to Home Educate their children but it is simply not a feasible option for them. Some families have had to choose Elective Home Education in order to save their child's life.

So yes, the return to school can be an exciting and positive time, but it can also be the complete opposite. Despite popular belief, school is not the best place for all children to be - especially mainstream education, which, with the best will in the world, often remains inaccessible to students with SEND. There are only so many adjustments that can be made to a mainstream classroom, and for children with, for example, sensory processing differences or anxiety, a small room with 29 other children sat shoulder to shoulder is never going to be accessible. Even with movement breaks. Even with ear defenders. Even with fidget toys.

Good luck to all this coming week, regardless of which category you fall into. I hope that this academic year brings positive changes to those who need them, and I will continue to do all I can to support the quest for these changes!

22/07/2022

I will be taking a short break to manage my personal life over the next coming days - if I am due to support you with anything upcoming don't worry, you can still contact me to discuss it and I'll still be carrying out any planned support work, but I won't be writing any letters or reports, or taking on any new clients for the rest of July. I'll resume in August but services may be slower than usual due to the summer holidays.

In the meantime, I hope everyone enjoys their summer :)

14/07/2022
I've been sent a link to a research study aimed at improving mental health therapy provisions for those of us who are ne...
10/07/2022

I've been sent a link to a research study aimed at improving mental health therapy provisions for those of us who are neurodivergent. The study is a short survey for anyone between the ages of 16 and 30 who are either diagnosed or self-identify as neurodivergent. The link is here:
https://bathpsychology.eu.qualtrics.com/jfe/form/SV_3juOlMpRh6iif1s

13/06/2022
11/06/2022
10/06/2022

I have a 5 year old with communication differences and even she can explain her needs better than some of the professional reports I've seen over the years.

"I used too many energies in the park and didn't have enough for the fair."

"In Year 2 I will need more things to keep me comfered"

I'm sure I'm looking at a future SEND Support Specialist here!

18/05/2022

If I'm working with you and I talk to your child, or a child in your setting, I just want you to know that they don't have to respond. They don't have to look at me. You don't have to explain or apologise, you don't have to try and prompt them to reply, you don't have to ask them to use a communication method they're not comfortable with for my sake.

Or anyone's sake.

No one is obliged to talk to a stranger. No one is obliged to talk if they're anxious, or stressed, or just don't feel like talking. No one is obliged to talk to someone who makes them feel uncomfortable. No one is obliged to talk if they cannot actually talk.

But everyone deserves to be acknowledged. Everyone deserves to be made to feel part of the conversation when the conversation is about them. Everyone deserves an opportunity to share their voice. Their voice may be words. Their voice may be silence. Their voice may be pictures, signs or an app. Their voice may be written or typed. Their voice may actually be 327 facts about Five Nights At Freddy's. Their voice is important.

So if I'm working with you and your child growls at me or hides in a bag for half an hour, please don't feel the need to apologise. Sometimes, half an hour hiding in a bag can say more than a thousand words.

If you don't believe me, just ask my children. They will probably just growl at you or hide in a bag, but that kind of proves my point! 😁

18/05/2022

Yes, she seems fine, she will always seem fine
She physically can’t let you see she’s not fine
Her body's self preservation protocol
Activates each time she walks into school
She’s internally begging to let herself show
Her terror and turmoil so people will know
The pressure she’s under – the stress and the pain
That she keeps reliving again and again
She wants to be heard but her voice has been silenced
And once she feels safe her sadness turns to violence
Then rage to self-hatred and anxiety
And a looming fear that she will never be free
But as long as she looks fine then no one will pry
No one will see her get angry or cry
No one will tell her her feelings don’t matter
No one will stare, or whisper or chatter
Her internalised anguish keeps on getting worse
The effects on her body and mind are adverse
She’s desperately in need of support
But because she seems fine there’s nothing of the sort
If only if only she could show them why
If only she could just break down and cry
If only if only she could scream and shout
Like she does in her safe space – just let it all out!
But why should she have to bear her heart and soul
Why should she need to become vulnerable?
Why must her distress be externalised
For someone to care how she’s feeling inside?
Yes, she seems fine, she will always seen fine
But please believe her when she says she’s not fine!
(C) Mana Avey of Neurodiversity Now

Share directly from page only, do not copy and paste!

18/05/2022

It is time for everyone to realise that TWO different presentations of the same child in two different settings is a HUGE RED FLAG!

It is time for schools to know that when a screaming, physically frustrated child immediately stops crying and becomes "happy" as soon as mum leaves does NOT make this a parental problem. It makes it a school problem.

Everyone has their own baseline of anxiety, some are higher than others, whilst some are relatively low. A baseline of anxiety is needed to keep ourselves safe from harm. Like crossing roads, stranger danger etc.

When we are anxious, sometimes we can use that anxiety to propel ourselves through an activity that we find scary, or a threat. We mask, camouflage our fear to SURVIVE.

This is what is happening when a distressed child leaves their parent in a state of anxiety and "cheers up" or "settles down" as soon as we leave.

They are NOT fine. They are using every ounce of energy and becoming physically and mentally exhausted by fooling you into thinking they're fine.

The onus is on schools to dig deep. Investigate. Observe. Watch, and help that child to de-camouflage and feel safe in their environment.

If schools continue for many years ignoring parents when they say their child is struggling, and they are appearing fine in school, schools are neglecting their responsibility to safeguard our children and become the reason they are missing from education.

----------------------------------------

Let's think about this for a moment.

Bee goes to school really happily, she loves it and cannot wait to get there. When hometime approaches, Bee's behaviour escalates, she won't put her stuff away, is reluctant to stop her art work and refuses offers of help with her coat. The nearer the end of the day and she becomes frustrated, throws around her work books, pushes over tables, and unconsciously hurts other human beings. She screams and shouts, "I don't want to go home, I hate it at home, My mum always shouts at me, and my Dad doesn't understand me, please don't send me home, please, please, please. I want to stay here with you"

Upon arrival of the parents pick up, Bee calms down, grabs her coat, skips out happily to mum and runs off into the sunset.

---------------------------------

The teacher phones mum later and tells her about what happened and asks if everything is okay. Mum replies breezily "Oh I wouldn't worry, she's absolutely fine, it's just separation anxiety, she completely changes as soon as she's in the car"

Alarm bells would ring, and Bee's mum would receive a phone call for an urgent visit from social services as they have received a report from school about her extreme behaviour in school"

Let that sink in.

Join our membership waitlist to join us in The Nook in June!

https://thenurtureprogramme.activehosted.com/f/5

17/05/2022

As the weather gets nicer and we move towards half term and the summer holidays, I was thinking it might be nice to start compiling a list of disabled-friendly days out, in terms of both physical accessibility and attitude towards accomodations etc. Not just places that offer a "SEND day" or "Autism Hour" - places that will make us feel like we deserve to be members of the community every day!

Comment below with reccomendations of your personal experiences with UK attractions and locations, from theme parks to coffee shops, and I will update this post to form a list!

***List***

C

-Cherry Tree Farm IP26 4PJ

P

- Pensthorpe Natural Park NR21 0LN

S

-Stanwick Lakes NN9 6GY

W

-Willow Woods - Chapel Farm House - Forest School Sessions PE38 0BA

13/05/2022

My 9 year old loves coding using Scratch. Today, she independently made this animation about helping children who are struggling in school.

https://scratch.mit.edu/projects/690210973

Your browser has Javascript disabled. Please go to your browser preferences and enable Javascript in order to use Scratch.

Kids love technology. Kids love being able to independently learn and experiment without relying on adult input. Kids lo...
09/05/2022

Kids love technology. Kids love being able to independently learn and experiment without relying on adult input. Kids love experimenting with cause and effect.

For so many, AAC apps are the intuitive option but they are blocked and discouraged from use until the child can engage with a frustrating and laborious paper-based system that relies on adult input and memorising the meaning of symbols.

AAC apps afford independence in communication and can be fun and engaging to learn.

Did you know - there are many more AAC options than proloquo2go for the iPad. There are cheaper options for various devices and even some free apps (although these are very limited they can be of use in assessing whether a communicator is interested by the concept).

29/04/2022

So true - Not all or needs are visible!










29/04/2022

Yesterday was a very tough day at Long Road HQ ..

I think this sketch probably says it all 😔

We need to stop calling it “school refusal” - it isn’t. (Emotion Based School Avoidance) is a realisation of “I just can’t do this any more”. It’s a culmination of lots of little “micro-aggressions” .. moments of overwhelm and tiny triggers … until the child just can’t handle the school environment any more.

“School refusal” is such a punitive way to look at what’s actually a cry for help and understanding.

We wouldn’t chastise an adult for taking time off work for their , but the school system still don’t yet understand or accommodate children - or otherwise - who need that too.

The system needs to change.








I'm on Instagram too!

Original artwork (c) The Long Road 2022. All rights reserved. No unauthorised use.

26/04/2022
11/04/2022

Other people: "Say Yes to the Dress!"

Me: "Say Yes to Assess!"

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