21/05/2024
Welcome to my page. I am planning on documenting Alex's journey/treatment to raise awareness of cancer, particularly MPNST. It is unusual to see this type of cancer in someone Alex's age, the median age people develop this is 49 years old. Also, it normally develops in the soft tissue, however, with Alex it grew within the bone of his humerus. There were very few signs that there was a problem, around Christmas 2023 he mentioned his arm was aching a bit and felt funny. Then at the end of January we had a day out and Alex got knocked into the side of the water rapids at center parcs and instantly said his arm really hurt. A couple of days later his arm swelled up massively and then he could hardly move it so I took him to A&E where they x-rayed him, suspecting a dislocation or fracture. It was then they discovered a large tumour within the bone. From there everything moved quickly, we were referred to Stanmore orthopaedic Hospital in London for biopsies, ct scans and a full bodied MRI scan. They suspected it was some type of cancer from the start, so we were also sent to Adenbrookes for a Hickman line to be fitted and chemotherapy began soon after.
