Thomas’ Story

03/07/2025

💙💞💙

Today is National Bereaved Parents Day and we need your help! 💜

We need to spread the word as far as we can to show bereaved families that they are not alone and their children will never be forgotten.

Please join us at 7pm to light a candle and remember all of the children who lost their lives too soon.

Post about the day on social media and make sure to tag us in your posts and use the hashtags

We thank you for all of your incredible, continued support. Let's make today even bigger than before!

02/07/2025

Tomorrow marks National Bereaved Parents Day. Take a moment to think of those in your life who are grieving the loss of a child or baby whether recently or a long time ago. Your awareness matters. We will be here, always. 💜💜

20/06/2025

Her Royal Highness The Princess of Wales has written a personal and heartfelt message as Children’s Hospice Week continues. Led by Together for Short Lives it is the only week of the year dedicated to raising awareness of children’s hospice services.

In it, The Princess of Wales says:
“No parent expects to hear that their child has a serious health condition that could shorten their life. Sadly, this is the reality faced by thousands of families across the country, leaving them heart-broken, fearful of the future and often desperately isolated.

“Being able to access the support of one of the UK’s 54 children’s hospices means they don’t have to face that future alone.”

Her Royal Highness is patron of two children’s hospices: East Anglia’s Children’s Hospices and Tŷ Hafan Children’s Hospice.

She invites you all to join her in celebrating the life-changing work children’s hospices do:

“This Children’s Hospice Week, I hope you will join me in celebrating the life-changing work they do and thanking them for the vital care they provide to children and families experiencing the most challenging times.”

Read her letter in full here: https://www.togetherforshortlives.org.uk/her-royal-highness-message-childrens-hospice-week

15/06/2025

We honour all grieving Father's on Father's Day.

Today can be an incredibly painful day for dads who have lost a child or baby. If you're a bereaved father, we see you, we acknowledge your pain, and we honour the love you continue to hold for your child.

Your fatherhood is not defined by presence, but by the everlasting bond you share. We're sending you strength and peace today.

Wishing you the gentlest of days.

From all at A Child of Mine

09/06/2025

Today is International Batten Disease Awareness Day and this is Thomas’ story 🧡🧡🧡
The bravest boy I know 🧡🧡🧡

03/06/2025

Next Monday is Batten Disease Awareness day 🧡

🧡✨ONE WEEK TO GO!!✨🧡

Just seven days until this year’s International Batten Disease Awareness Day!

We can’t wait to see what you all have planned, spread awareness and celebrate the incredible people in our community together. Don’t forget to tag us so we can see how you are raising awareness and share it on our socials too!

Our Awareness Day Big Give Campaign will be live and doubling donations from 9am on the 9th! https://donate.biggive.org/campaign/a05WS000004zxaLYAQ

🧡🎗Let’s go BIG for Batten 2025!🎗🧡

24/05/2025

9th June 2025 🧡🧡🧡

🔶SAVE THE DATE - International Batten Disease Awareness Day 2025🔶

International Batten Disease Awareness Day 2025 takes place on Monday 9th June. One month to go!🌟

This year, the BDFA are going BIG for BATTEN with our very own matched funding campaign on the Big Give platform.

This means donations made during our campaign will be doubled by our matched funding pot made up of our wonderful pledgers’ donations. More details to follow!

As always, we’re aiming to make this day bigger, better and more orange than ever, and we need your help!

We would love for you to get involved with your own BIG fundraiser, whether that’s a big bake sale, a big personal challenge or a big orange day at the office, there’s ideas for everyone🧁🏃🚴

We would love to hear from our Batten families, sharing your BIGGEST achievements, smiles and stories, or any other 'big' moments you'd like to share. Please send to Lisa on admin@bdfa-uk.org.uk 🧡

Feel free to reach out to Sarah on sarahchandler@bdfa-uk.org.uk for more ideas or materials. We look forward to sharing more about our campaign shortly and turning orange on 9th June.🍊🧡🧡

30/03/2025

This Mother's Day we're thinking of everyone who is missing their mother, mothers who are bereaved of a child, those who would have loved to be mothers, and all those who can't be with their mother today, for whatever reason.

For bereavement support, guidance and information, please visit our website: childbereavementuk.org

18/03/2025

3 years ago today you left our world to be free from Batten Disease.
It doesn’t get any easier and we miss you constantly. We take peace that you are free from pain, that you are watching over us and guiding us from your world. Love you Thomas ❤️❤️❤️ ###

04/03/2025

Happy 17th Birthday Thomas 🎂
We shared 14 precious birthdays together. ❤️💙❤️
Miss you so much ###

28/02/2025

💜🌍 Today is Rare Disease Day! 🌍💜

Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️

Let’s use this moment to recognise and highlight the voices and stories of the rare disease community.

Share your story. Share your advocacy. Share your voice.

Go to our website to learn more: https://www.rarediseaseday.org/

22/02/2025

I can truly recommend Joanne Gregory. If you’ve ever watched Tyler Henry the Hollywood medium, Joanne is in the same league as Tyler if not better ✨✨

⁉️ O N E W E E K T O G O⁉️

Hello

We are at Ringwood Hall Hotel & Spa for our evening of clairvoyance with international psychic medium and clairvoyant Joanne Gregory

Joanne has been delivering one to one private readings and entertaining audiences for over 30 years!

⁉️B O O K T I C K E T S T O D A Y⁉️

🏨 Ringwood Hall Hotel & Spa
📆 Thursday 27th February 2025
⏰️ Doors Open at 6.30pm
Show Starts at 7.30pm
🎟 £14.00 per person

To book...
🌏 www.milestone-entertainment.co.uk
📩 Direct Message Us