Amelia's heart journey

15/05/2026

We escaped reality a little this week and headed off on a caravan holiday ❤️
After everything life has thrown at us , it was so special to step away, make memories, and just enjoy being together. Our Amazing boys had an absolute ball, and seeing them carefree and happy meant the world to us.
And our beautiful Amelia? She has truly been living her best life 🥹 From smiles and adventures to soaking up every moment, she absolutely loved it. Seeing her happy, making memories and simply being a child is something we’ll never take for granted.

21/04/2026

Amelia update 💛

We’ve had such a wonderful few weeks, just enjoying precious quality time together as a family.

Amelia is doing amazingly well. Today she had her PICC line removed—such a huge milestone for her! We’re now on reviews every two months, and it really feels like things can only keep improving from here.

Without the PICC line, she can finally enjoy simple things like baths and splashing around without worrying about getting her dressing wet. No more weekly dressing changes, and a little less fear of infection. It’s a small step in some ways, but for us it lifts a big weight of stress and worry.

She’s still on her feeds and water top-ups, but we’re hopeful that as she continues to improve, her intake will too. It would be so incredible to see her beautiful face without the NG tube one day.

She truly is amazing, and I’m so, so proud of her 🥹💛

31/03/2026

Two years ago our fit and healthy baby girl suddenly became unwell and was diagnosed with dilated cardiomyopathy. In a moment, our whole world changed.

We hoped medication would help Amelia, but sadly it wasn’t enough. The only way she could survive was with a heart transplant. She had to be supported by a Berlin Heart while we waited and hoped for the call that could save her life.

Nearly a year ago, that call came. Amelia received the most incredible gift — a new heart — from a brave and selfless family who chose to say yes to organ donation during the most difficult time of their lives.

Because of that decision, our little girl is here today.

We were told she may have 15–20 years, but we hold onto hope that medicine continues to move forward and that Amelia will be given many more years to grow, laugh, and live her life.

Heart transplantation saves lives. Organ donation saves families. Our family is living proof of that.

Please take a moment to talk to your loved ones about organ donation. One decision can change — and save — so many lives.

Today we remember how far Amelia has come, and we will forever be grateful to the family who gave our daughter the gift of life. 💗

25/03/2026

Please take a moment to read and share if you can 💕

This Amazing family are going through an incredibly difficult time. They’ve already been through so much, and there’s still a lot of uncertainty ahead for them.

They’re raising money to help with the cost of weekly hospital appointments for Ava. During these appointments, Dad has to miss work to stay home and care for Ava’s brother, who is profoundly autistic and non-verbal, so Mum can take Ava to the hospital.

If you’re able to donate, it would mean so much — but even just sharing their JustGiving page could make a huge difference and help it reach more people.

Thank you so much for your kindness and support 💕

Iʼm raising money to Support my 6 year old daughter who is in lung transplant rejection . Support this JustGiving Crowdfunding Page.

22/03/2026

🙌🏻💕

“He’s fine now, right?”
People ask me all the time.

Repair of the heart doesn’t mean someone is “fine.”
A transplant doesn’t mean someone is “fine.”

It means survival.
It means constant monitoring, medications, appointments, and a quiet awareness that things can change in an instant.

It means celebrating things that others never have to think twice about.
It means carrying both gratitude and fear in the same breath.

“Fine” suggests an ending, like the story is over, like everything has been fixed and life goes back to what it was before.
But for some, this isn’t the end. It’s a lifelong chapter.

So when people ask if he’s “fine,” I know it comes from a place of care. I truly do.
But maybe a better question is, “How is he doing?”
Because the answer is more honest, more human.

He’s living.
He’s fighting.
He’s thriving in ways that don’t always look easy or simple.

And that matters more than “fine” ever could.

15/03/2026

Last year I spent Mother’s Day at GOSH with Amelia, away from her three brothers. It was one of the hardest days, being apart from them all.

This Mother’s Day is so different. I get to spend it with all four of my babies. 🥹

We had such a lovely afternoon at Edinburgh Zoo — Amelia’s first time back since her heart transplant. Just being able to go out together as a family again felt so special.

Moments like these mean everything to us, and we are forever grateful. 🤍

04/03/2026

Amelia update 💜

We got discharged this afternoon 🥹
She’s on oral antibiotics for the next 5 days, but she is doing absolutely amazing and of course battles everything with that beautiful smile 💪🥹

She was due to have her liver biopsy tomorrow, but because she’s been quite poorly and needed oxygen, they’ve decided to postpone it again until it’s safe to go ahead. There are ongoing discussions between the two hospitals about whether it should be done at all.
Her neutrophils are low again, so we’re being extra careful and staying in isolation for now. If she spikes a temperature, we’ll be straight back in — which we’d need to do anyway because of her PICC line — but we’re really hoping we can avoid hospital for a little while 🤞🏻🙌🏻

Thank you all for the continued love and support 💕

27/02/2026

I was planning to share a positive update today about how well Amelia has been doing, but sadly things changed very quickly last night.

One minute Amelia was happily exploring and enjoying her afternoon, and the next she was back in hospital with a high temperature, needing oxygen and being sick. It’s a stark reminder of just how quickly things can change for transplant/ immunocompromised patients.

For Amelia, something as simple as a cold or a bug can become very serious very quickly. Life after transplant still comes with real risks, and infections can mean hospital stays and setbacks.
We share this as a gentle reminder to please be mindful around vulnerable people. If you or your children are unwell, even with mild symptoms, please consider staying home and avoiding visits. These small precautions really can make a big difference.
Thank you 💛

03/02/2026

Best friends, Double the cuteness 🥹🐶💕

02/02/2026

Amelia update 💛
Really good clinic today. Echo unchanged and the team are happy. Her liver numbers are improving (ALT now 500 from 700) and kidneys are back to normal 🥳

Back again in a month. If her ALT continues to fall, it’s looking more likely she’s just very sensitive to tacrolimus — fingers crossed this continues 🤞

01/02/2026

Amelia update 💕

Amelia is doing amazing at the moment and I’m so proud of her! She’s getting more cheeky and sassy by the day 🥰

Unfortunately her liver (ALT) has gone back up from 63 to 703, and her kidney (urea) has also increased to 12.2.

We still aren’t 100% sure what’s going on, but the teams are starting to think she may be very sensitive to her tacrolimus (her heart transplant medication).

Amelia has bloods and clinic tomorrow, so we’ll update more when we know more.

But for now, she’s doing amazing physically, which is such a blessing 🥹🥳

Beach walk today with Amelia’s brothers and our dog Bella — loved watching the boys play, and Amelia had some special one-on-one time with her Daddy 💕