11/07/2025
Very excited to share that the UK research project to trial a new way of diagnosing CSID, and then developing a better way of treating it, has now finally been approved and is going ahead!
The project is looking for the following participants, who will receive a basic remuneration and expense package:
- those with confirmed CSID through biopsy and /or genetics
- over 18
- resident of mainland UK
If you fit this criteria please contact the research team on MS-genmalcarb2@nottingham.ac.uk, please also just drop a comment below if you are interested
It's a wonderful way to help shape the future of this condition and will also help determine if you have the genetic form.