PD Mama

PD Mama A glimpse into the life of a self-employed mum of two living with Young Onset Parkinson's Disease

Thank you so much for signing and sharing the !The petition surpassed 100,000 signatures last night and will be consid...
17/07/2025

Thank you so much for signing and sharing the !
The petition surpassed 100,000 signatures last night and will be considered for debate in Parliament, which is fantastic news... but now the hard work begins to actually get the stipulations of the Movers & Shakers' Charter implemented to improve the lives of people living with
Please continue to support this cause as this is a huge milestone but there's still a lot of work ahead 💙💙💙
Photo from last night for attention as I was at walking football when this all happened - and scored a penalty! 😆😁

10/07/2025

I was 27 when I first noticed the symptoms of what was ultimately a diagnosis of young onset parkinson's . My dx came age 29: 12 years later and I have a husband and two beautiful children, I try to remain positive but my Parkinson's has progressed and the public's understanding and government funding remains unchanged, while I am left paying for Parkinson's in many ways - not just my prescriptions. It's a condition with over 40 symptoms that are hard and tiring to explain when you don't fit the stereotype. I've switched medication countless times, had 3 brain surgeries, and now therapy is helping with the trauma of the past decade. Please help the Mark Mardell and the Movers and Shakers by signing and sharing the and get heard. Thank you.

https://petition.parliament.uk/petitions/713714

Gillian Lacey-Solymar Gaynor Edwards Spotlight YOPD Cure Parkinson's Parkinson's UK

Fascinating to hear from Harith Akram, one of my neurosurgeons at Queen Square. He explains surgery, which he and his ...
06/07/2025

Fascinating to hear from Harith Akram, one of my neurosurgeons at Queen Square. He explains surgery, which he and his team performed on my brain last year - twice, and one device removal. Such an interesting conversation and brilliant mind. 💙🧡

02/07/2025

The Movers and Shakers desperately need their petition (https://petition.parliament.uk/petitions/713714) to reach 100,000 signatures by Sept 10 - if it does we’ll get a debate in Parliament, if we fail… well we won’t give up but the message will be harder to get across. Signing only takes a couple of minutes but would help us hugely, so please sign now if you haven't already 💙🧡
Mark Mardell Gillian Lacey-Solymar Cure Parkinson's Parkinson's UK Spotlight YOPD Gaynor Edwards

27/06/2025

It’s better to slow down rather than break down.

26/06/2025

Please sign the Parky Charter (if UK based) to help people with Parkinson's, like me, access better care, including timely diagnosis, comprehensive and consistent care, and dignity for all people with as outlined by the Movers & Shakers here -->
https://petition.parliament.uk/petitions/713714
It takes only a couple of minutes to sign and confirm your signature and would really help achieve the 100,000 signatures required to be considered for debate in Parliament.
is considered to be the fastest growing neurological condition in the world... and it's relentless. I didn't expect to get it at 29... This could help future patients, so please sign.
Thank you 💙🧡
Parkinson's UK Cure Parkinson's Spotlight YOPD
Footage cred: podotpods
💫Please share far and wide! 💫

After going to the Sport Parkinson's Sport Parkinson's Try-Athlon 2025 on Sunday I thought I'd look up local walking sp...
26/06/2025

After going to the Sport Parkinson's Sport Parkinson's Try-Athlon 2025 on Sunday I thought I'd look up local walking sports and found a group that plays walking football very close to home - went to my first session last night, on my own, which was pretty huge for me.
As I approached the group (the demographic of which I knew would not exactly fit, being slightly older men, some who are very good at football, something I am not) they initially thought I was there to collect a child as they have other games happening on the same pitches 😆😁
They were a lovely bunch of guys and one other lady, who all really encouraged me. One of the blokes who I was playing with has had for about same length of time as me and was doing a brilliant job as keeper and still managing his symptoms well with meds. I'm a bit scared of the ball but looking forward to next week!

24/06/2025

Having - specifically - makes you realise how much we take for granted when we can do things. Think of everything you find easy, and now make it harder. Increasingly harder as the years go by, but not at a rate consistent with ageing - at a grossly accelerated pace. Just make it really fu***ng hard - tying shoelaces, maybe doing a button or tying your hair up. Walking in a straight line. Knowing what you will and won't be able to do from hour to hour every fu***ng day.
I'm feeling sad again today, another byproduct undoubtedly of nearly 12 years of synthetic dopamine intake.
I'm trying to play my piano. It's s**t. But I'm still trying, people.

23/06/2025

Loved the boxing yesterday with Parky Blinders England Boxing at the Sport Parkinson's Sport Parkinson's Try-Athlon 2025
Suffering a bit today after a brilliant day out yesterday... I've had for nearly 12 years and I'm sick of it! Need to find somewhere local to punch the stress away...

A few highlights from yesterday's Sport Parkinson's Sport Parkinson's Try-Athlon 2025 Highlights were definitely boxin...
23/06/2025

A few highlights from yesterday's Sport Parkinson's Sport Parkinson's Try-Athlon 2025
Highlights were definitely boxing, walking netball and walking cricket. And also getting my copy of Sophie from Romania signed! But mostly being among friends. I feel very lucky to be part of such a great community, shame that it's PD that unites is but glad to have you all!
Had a terrible off last night and went to bed when the kids did... 11 hours of sleep, might even be OK for my class this morning... 🙌
Ps please sign and share the Parky Charter if you haven't already! https://petition.parliament.uk/petitions/713714

Cure Parkinson's Parkinson's UK

Anyone else with struggling in the heat? Fun fact - Parkinson's affects the nervous system, which controls body temper...
17/06/2025

Anyone else with struggling in the heat? Fun fact - Parkinson's affects the nervous system, which controls body temperature, so people with Parkinson's can be more sensitive to heat and cold (temperature dysreguation) 🌤☀️
I bought this squeezy thing to help open out my hand when off, and I'm so off in this weather. Also will try to exercise my hand as rigidity is an issue for me.
🌬A rechargeable hand fan is my must-have when it's hot. I'm still melting 🥵
Any top tips for surviving the heat with ?

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