PD Mama

Mum of 2 living with Young Onset Parkinson's Disease from age 29. Deep brain stimulation 2024 age 40.

21/03/2026

One of the many delicious treats I had this week whilst at hospital having my looked at by the amazing team at Queen Square
Frustratingly, the right lead of my that controls my left side is not optimally positioned since my whole system was replaced in November 2024. It needs replacing, but this is complex due to my having had multiple surgeries already and a very thin scalp. It would be horrendous to have to have everything removed again, and is risky. I have options, though. The team will discuss my case and I'll know more in May 🤞💙

18/03/2026

💫Exciting announcement! 💫The England Parkinson’s Walking Football Teams are heading to Canada in September to connect with local groups and promote exercise as a way to support those living with Parkinson’s. This team means so much to many, offering friendship, strength, and hope—especially for those who might feel isolated. Please share or consider donating to our fundraiser as even a small share can help spread the word and reach more people who could benefit from this community. Thanks for your support!💙❤️⚽️
Gofund me link in my bio or here-->
https://gofund.me/180f68f38

17/03/2026

Do you have Parkinson's, live in Surrey and are 67 or under, and would like to connect with people in a similar situation. We are creating a Working Age Network across Surrey and would love to hear from you. Either complete this questionnaire https://forms.gle/ARxgtqMSdGjfnj1N6, or contact Katy on kslade@parkinsons.org.uk. We would love to hear your thoughts and ideas to help us build this network.

08/03/2026

What a couple of days this ❤️ training with my team mates on the walking football team for our second training session (and I scored, yippee!) then with the as we prepare for the tournament next month. I'm so grateful and proud to be part of such an inclusive community of women all living with this nonsense and a huge extra thanks to my friend and her hubby, who drove us there and back and put up with my singing in the car! 😆💙

07/03/2026

This is the link to the full written piece i did on impulse control disorders for 2 Parkies in a Pod - it can happen to anyone who takes dopamine agonists in high doses and can be devastating.

https://pdmamablog.wordpress.com/

I've already had messages from people reaching out saying the same happened to them. For me it was 10 years ago and I am able to now talk about it but at the time it was horrendous, as I explain in my blog.

If it's happening to you, please reach out and talk to someone. 💙💙💙

24/02/2026

💙💙💙

22/02/2026

Parkinsons and fatigue.
Why i always feel (and look) so tired. It's one of the main non-motor symptoms and I've had this, as well as sleep issues, since my mid-20s.

21/02/2026

I wouldn't get my diagnosis for another 8 months after sending this email to my parents back in December 2012. This was after several months of back and forth from the GP and a few years of symptoms, some of which i didn't even realise were pd-related like fatigue and sleep issues. Back then I still worked and took things like typing (at all, let alone coherent emails) for granted.
especially in younger females with is real. I shouldn't have felt embarrassed or have been so upset but my GP at the time made me feel like I was a hysterical woman. In hindsight, I'm relieved I pressed for a referral to neurology as I think my journey to diagnosis would have been longer and more traumatic than it was. And it wasn't exactly smooth sailing.

10/02/2026

I've been asked to share the attached by the casting team for Race across the world. They're looking to broaden representation within the cast for the next series. Could be exciting for someone with yopd who could still manage this - sadly it's not for me! 💙💙💙

05/02/2026

💊Meds taken on time today.
💊12 doses.
🤖DBS ( ) is helping my a lot, but I've been told scar tissue where my original DBS was placed in my brain then removed means they couldn't achieve perfect electrode placement second time round. I'm also extremely sensitive to the stimulation and drugs - this means if I increase my stim too much I get side effects, and if I take even slightly too much medication, l get side effects. So I have to dose every 1.5 hours. On days where I exercise, for example, I have to increase my medication just to be able to do so.
🙏 High five if you made it through the day just by taking your on time

Address

Farnham
22410

Website

https://gofund.me/180f68f38

Alerts

Be the first to know and let us send you an email when PD Mama posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Want your practice to be the top-listed Clinic in Farnham?