PD Mama

07/05/2026

02/05/2026

I read another post that described as unlike any other and it truly is. Even baking a loaf of bread exhausts me now. I'm getting little joy out of something i would have relished not so long ago. I have to constantly re-read recipes, etc., as i don't retain info like i used to. I think my current medication regimen isn't helping but I have to wait until July to discuss this with a specific consultant. Feels a long time away. Still awaiting next steps for my so no news yet there either.
I'm also getting the sun on me slightly and occasionally, which always makes me look much better than I feel. I can sleep for hours at the moment and still feel knackered. Are you affected by fatigue?

30/04/2026

Yesterday I had my first ever fall (in public) due to . One minute I was walking, the next I felt myself hit the pavement. I managed to break my fall somehow with my hand and wasn’t badly injured (thankfully I didn't hit my head), but I was very shaken. I couldn't get up at first and sat sobbing in a heap on the pavement whilst several people walked past without so much as asking if I ok. Eventually someone checked on me and fortunately my husband was on his way to meet me.

Taking it easy today - feel pretty bruised and sore. Made a very easy recipe: wholewheat sourdough discard crackers with parmesan and herbs. They taste good even if I don't feel good. Carry on we must.

28/04/2026

Who's going? 😃

27/04/2026

I taught myself how to bake in the last 10 days or so. (Inspired by 🙌) This is my first ever little loaf using my active starter, which I have made myself and named Eranu. I have put him and his twin, Uvavu, in the fridge and will give them maintenance feeds. I also have my second ever loaf cold-proofing in the fridge. I am shattered now. Turns out baking sourdough is exhausting. Add and doing a bit too much without a rest this weekend and well... yeah.
But this bread tasted great and looked better than I expected as i made lots of mistakes. Need a rest now. Hope everyone is doing OK.

17/04/2026

🙌

16/04/2026

We are delighted to share news of our first ever South West Parkinson’s Walking Football Festival! This event is being organised by Parkinson’s UK in partnership with Portishead Town FC and the Walking Football Association.

The event will bring Parkinson’s / Neuro Walking Football teams together from all over the South West as well as giving clubs and players a chance to come and find out more. This is a family friendly event with refreshments and activities available throughout the day - please bring your supporter, partner or family members along! We are planning to have a BBQ, bouncy castle, a food van, football activities and more - as well as great games of football of course!

Where: Portishead Town Football Club, Bristol Rd, Portishead, Bristol BS20 6QG
When: Saturday 6 June 2026 10am - 2.30pm (arrive by 9:30am if playing)
Who: Walking Football Teams with players living with Parkinson’s / other neuro conditions

Sign up process:
Team / Club Manager to complete team registration form
Individual players to complete player registration form (please share with your players)
Team / Club Manager to collect £5 per player and make single team participation fee on the day (card payment please)

We are hoping to be able to provide all players with a souvenir t-shirt from the event!

We will be in touch again nearer the time with additional information about parking etc. In the meantime, please do not hesitate to contact me for any further information you may need.

We look forward to seeing you there!

Parkinson's UK
Sport Parkinson's

12/04/2026

Listen to Annie, founder of the only all-women's Parkinson's walking football team, Parkinson's Pioneers, on radio here at around 6.40 pm this evening, talking all things walking football and Parkinson's...💙⚽️💜

Listen live to Radio London on BBC Sounds

11/04/2026

Ten years ago today, I wrote this blog.
Today, I really struggle to write this post.
For people with the struggle really is every day and not always visible. Tremor, stiffness, slowness, speech issues, gait issues, swallowing issues. A lottery of 40+ symptoms and these can vary hour by hour, day to day. Juggling the side effects of our decades-old medication alongside symptoms.
Just another average day.