PD Mama

24/11/2025

Thank you very much (and ) for this pin badge, which had arrived when I got home - I could have done with this today when travelling to hospital... Not sure about the design as the back is difficult to remove for Parky fingers and I'm a little worried it might fall off my clothing or bag and get lost, but the idea is good. We'll see if it works / if the greater public are aware of what it means in due course... I'll browse the papers sent too 💙💙💙

20/11/2025

18/11/2025

💫Soph is 9 tomorrow💫
My daughter at 20 months old... she's an absolute beaut, always making me laugh (posting with her permission) My whirlwind girl 🥰
❤️

17/11/2025

Packed room for the debate on
Was proud to be there and grateful to for speaking on my behalf and to all the MPs who spoke on behalf of the many thousands of people with Parkinson's in the UK, sadly most had a familiar story to tell of prolonged time to diagnosis, lack of comprehensive care and lack of access to specialist services, to name just a few issues... don't get me started on access to benefits...🙄 deserves more attention and funding, end of ✋️
Thanks to Nick for the seat, Gaynor and for the company 💙💙💙. Apparently I was staring at a camera I didn't realise was there!

17/11/2025

Watch the debate on Parkinson's live here at 6 pm -

16/11/2025

We want to wish all those attending the petition debate about the in UK parliament tomorrow evening a successful debate

Well done to everyone that has lobbied their MP to attend, hopefully it will be a good attendance

For those not able to attend in person you can watch it on UK Parliament TV or the UK Parliament YouTube channel.

https://whatson.parliament.uk/event/cal53478

https://m.youtube.com/UKParliament

As a reminder you can find out more about the charter at https://www.moversandshakerspodcast.com

Together we are stronger and our voice is amplified

15/11/2025

Early symptoms that (eventually) led to my diagnosis - - I had just had my system reinserted when I filmed this last year hence the bruised face, slightly weird facial expressions and mild (I don't think it had been switched on yet but I am aware these still happen now).

15/11/2025

My daughter just gave me this, which she made at school yesterday ❤️😭🥰
"Whenever you shake, you don't shake love off me you shake more on"

14/11/2025

Met my MP at a health fair he was hosting in Farnham this morning - he had previously said he would try to attend the debate on on Monday and he confirmed to me he would be, which is great news!
Looking forward to having his support on matters and here's hoping to at least some improvements for people with whether advanced like me
12 years post-diagnosis, or newly diagnosed - There's work to be done in all areas.
I also showed him my badge I was wearing on my bag...

07/11/2025

Motion photo-turned-video - good reminder to take my meds, thanks for the reminder! 💙❣️

26/10/2025