Maisies GA1 Journey

Maisies GA1 Journey Welcome to Maisie’s Journey about living with GA1 - we can’t wait to share her life with you all and how we deal with GA1 as first time new parents.�

13/09/2022

Good morning everyone!!

Maisie had a full weetabix today! With some cows milk 🥛

She had 50ml of blue milk which was 1.3 grams of protein ✅

Then a full Tesco’s weetabix which was 2grams ✅

And some berries which are free!

And she ate it all! And drank the milk afterwards 😅🥰

I’m so so proud of her, also looks like she’s a leftie with the spoon holding!😂🥰

Have a nice day -

Amanda ❤️

Hello everyone, I thought I would post as I actually forgot about our page!! I know how terrible of me! We have been so ...
07/09/2022

Hello everyone,

I thought I would post as I actually forgot about our page!! I know how terrible of me!

We have been so busy with some changes and getting used to the summer and enjoying exploring! 🧚🏼‍♂️

We have had a few admissions over the months since February but luckily Notning has come from it, Maisie now is on 10grams of protein a day. Which is a massive difference as she used to only be 6g.

She’s amazing, and doing great - she has now developed taste buds so wasn’t taking her GA Explore sachet, but with new added flavouring it’s made a massive difference

I would also like to welcome Carol Burch to the page, her granddaughter was recently diagnosed with GA1.

Amanda ❤️

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