ME Research UK

ME Research UK We hope you find it useful, informative and interesting. We cannot fund research without your help.

We are a charity (SCIO number SC036942) with the principal aim of commissioning and funding scientific (biomedical) research into the causes, consequences and treatment of ME/CFS, a disease which affects people of all ages, and social and ethnic groups On our page, we post information about the activities of the charity, fundraising events undertaken by our supporters, recent research int

o ME/CFS, and anything else we think may be of interest to our supporters. If you are holding an event for us, please let us know – and if you've held one, let everyone know how you got on. There are many ways that you can support us and help to fund our biomedical research studies. To learn more and to support us, visit our website which contains a wealth of information and comment.

Great news! ME Research UK has won £5,000 in Benefact Group Movement for Good's Health & Wellbeing special draw. Every p...
29/05/2026

Great news! ME Research UK has won £5,000 in Benefact Group Movement for Good's Health & Wellbeing special draw. Every penny will be invested in our research work.

A huge thank you to everyone who nominated us.

Do you live in the UK, 18+ and have symptoms suggestive of endometriosis (but not a diagnosis) and can complete an onlin...
29/05/2026

Do you live in the UK, 18+ and have symptoms suggestive of endometriosis (but not a diagnosis) and can complete an online, anonymous survey? A Masters student at UWE Bristol is assessing the psychological impact of the long wait for an endometriosis diagnosis. Survey: https://tinyurl.com/c6ndbr7t

Endometriosis and ME/CFS - https://tinyurl.com/mtkzf7bu

NB - Not an ME Research UK-funded study

On the 23rd of April 2026, the fourth meeting of ME Research UK’s ‘Researcher Circle’ took place online.The Circle meets...
28/05/2026

On the 23rd of April 2026, the fourth meeting of ME Research UK’s ‘Researcher Circle’ took place online.

The Circle meets every other month, and alternates between more structured sessions with a speaker followed by time for questions and discussion, and informal ‘catch-ups’ which aim to provide a friendly forum to network and share relevant knowledge, to discuss progress and challenges faced, and to practice presentations.

Read more: https://bit.ly/4dvNK6q

The Spring 2026 issue of Breakthrough magazine is now available online, with news of the ME research you are helping to ...
27/05/2026

The Spring 2026 issue of Breakthrough magazine is now available online, with news of the ME research you are helping to fund: bit.ly/4act0hR

This issue includes newly funded projects exploring autoimmunity in ME/CFS, the use of cell electrophysiology to develop a diagnostic test, and the search for blood-based biomarkers; findings from Prof. Elisa Oltra on the role of HERVs in ME/CFS; Prof. Bhupesh Prusty’s study on how viral infections may influence the development of ME/CFS updated estimates of the UK prevalence of ME/CFS, and much more.

If you want to help support more vital research like this, please consider making a donation: bit.ly/49o2bXJ

On 18th June, a short debate (no more than 1 hour) in the House of Lords has been secured for 'The treatment of, and res...
26/05/2026

On 18th June, a short debate (no more than 1 hour) in the House of Lords has been secured for 'The treatment of, and research into, severe myalgic encephalomyelitis' - https://tinyurl.com/2heh47r4

Last May, a team of researchers led by Braeden Charlton and including ME Research UK-funded researcher Associate Profess...
26/05/2026

Last May, a team of researchers led by Braeden Charlton and including ME Research UK-funded researcher Associate Professor Rob Wüst published a pre-print paper, which made a case against deconditioning as a primary cause of ME/CFS symptoms.

Read more: https://tinyurl.com/3zntm88j

ME Research UK-funded researchers Prof. Elisa Oltra and Prof. Simon Carding have recently contributed to a review articl...
25/05/2026

ME Research UK-funded researchers Prof. Elisa Oltra and Prof. Simon Carding have recently contributed to a review article on the role of human endogenous retroviruses (HERVs) in ME/CFS. Published in the International Journal of Molecular Sciences, the article discusses the evidence linking this family of viruses to immune and neurocognitive dysfunction in the disease, the potential of HERV signatures as biomarkers, and the promise of HERV-targeted antibodies as treatments for ME/CFS. Read more: bit.ly/3R9aZut

Our fundraisers are the beating heart of the charity. Every mile, challenge, and act of kindness helps us invest in ME r...
22/05/2026

Our fundraisers are the beating heart of the charity. Every mile, challenge, and act of kindness helps us invest in ME research worldwide.

For Rosie, fundraising was deeply personal. Her mum, brother and friend all live with ME/CFS - and last month she took on the London Marathon to support them.

“What people with ME need most is to be believed, respected and supported in managing their energy on their own terms. Too often, they’re dismissed, gaslighted or judged. That’s something we have to change.”

Thank you, Rosie 💙

If Rosie’s story has inspired you, we have created a page that walks you through how to fundraise, step by step.

https://www.meresearch.org.uk/fundraising/how-to-get-started-fundraising/

From runs and walks to coffee mornings, gaming streams, and community events, every fundraiser helps us move closer to a future without ME/CFS.

On the 7th and 8th of May, the International ME/CFS Conference 2026 took place in Berlin and online, and ME Research UK ...
22/05/2026

On the 7th and 8th of May, the International ME/CFS Conference 2026 took place in Berlin and online, and ME Research UK was in attendance remotely. Highlights of the conference included a presentation on the results from the DecodeME study and discussion of next steps, and a presentation on whole-body positron emission tomography (PET) scans for ME/CFS.

Read more: https://tinyurl.com/2crj6zd6

NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ...
21/05/2026

NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- https://tinyurl.com/y3wrh3ru

ME Research UK attended remotely the International ME/CFS Conference 2026 – Understand, Diagnose, Treat (May 7-8th). Pro...
21/05/2026

ME Research UK attended remotely the International ME/CFS Conference 2026 – Understand, Diagnose, Treat (May 7-8th).

Prof. Dr. Nina Babel’s presentation highlighted notable clinical and immunological similarities between long COVID and Post-Acute COVID Vaccination Syndrome (PACVS).

What is interesting is the the inclusion of post-exertional malaise (PEM), hallmark feature of ME/CFS; and shortness of breath, which is not seemingly frequently associated with acute vaccine reactions but is associated with PACVS.

Read more: https://tinyurl.com/3rv8nfje

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