NORTH EAST UK Me/cfs/pots

13/05/2026

24/04/2026

The Visible System has had it's first update - well, it's first since I've used it.
Honestly, I think they've broke it!!

Not a chance my day has been that bad! I know I'm just coming out of a crash and I tend to over do things, but never, ever, EVER, like this!!!

I'M FLABAGASTERD!

It's literally portraying that I've ran a fu**in marathon then took part in a 3 legged race and then thought - oh I'll do a sack race too just for fun!!

06/04/2026

So today, I've let my hair down, fought tooth & nail through the pain 💪 and ended up being 'OUT-OUT' first time in many of years!

And I've loved it, felt like my old (younger/healthy) self and I've had so much fun dancing the night away!

Yes - I know I'm going to pay for this [BIG STYLE] But, the way I look at it is.... I'm not going to get to my death bed and think, I wish I stayed in & limited my life more 🤷‍♀️

No matter what s**t, life throws at you and blah blah (mind has gone blank, cant remember the end of the saying lol!)

24/03/2026

Anyone been on
Nefopam?

09/03/2026

Got some good news today. Gp going to start prescribing something to help POTs 🎉👏

07/02/2026

Definitely in the midst of a POTs flare 🥴

07/02/2026

Thought i was dead clever today - finally being able to finish off painting the stairs that i started last month. Took regular sit downs & everything. 😒

I dont usually suffer with syncope but my god - came on really fast! Laid on the floor with legs up for half hour before it started to pass 😬😮‍💨

06/02/2026

Elvanse medication helps my daily battles in more ways than one!

Check out Mandy Bland’s video.

06/02/2026

Today I thought screw it - couldn't wait any longer for a conversation with the cardiologist to whether it's safe to resume my adhd meds.

And thanks to said meds - today is literally the best I've felt this year!!

My POT's might be having a lil wobble with a high of 141 bpm just sat blow drying my hair but there is some random lows.

So I personally don't feel the meds are causing a knock on effect - they help me more than anything just to get through the pain, constant fatigue, weakness, brain fog, dizziness etc etc everyday!

Oh and I got some new photochromic blue light geggs to try prevent migraines 🤓

05/02/2026

😪😮‍💨😴🫩

Watch, follow, and discover more trending content.

02/02/2026

Big day tomorrow.

I'm at court for a Case Management Hearing for not paying a penalty notice for taking my kids out of school for a respite holiday due to my disabilities. I've done all my own research since July and I'm defending mysel.

I just hope I don't get myself all worked up and end up having a huge flare up!